UPDATED Need help

[Scaredoutofmind]

DH is 42 and has stage iv cc. No mets on lungs or liver, but it's in his peri and on his appendix which was removed in March when he was found out. He has an ostomy which was retracted and after 10 rounds of chemo today he had surgery to fix his ostomy. We were also hoping for a possible debulking of the omentum and anything else.
DH is out of surgery and news is not what we wanted to hear. They found extensive disease in colon and around stomach. They gave him an illostomy instead of fixing current ostomy and did not remove anything. Said for quality of life he needs to go back on chemo

I'm waiting to see him and I'm devastated as I know he will be too. Any advice. We are at Penn in Philly.

They said the tumors were growing around colon and his ostomy that's why it became retracted. This could be the worse news. Any clinical trials?

He is fine and you would never know anything is wrong with him.

[midlifemom]

So sorry to hear. Hugs.
Perhaps a second opinion could help? Memorial Sloan Kettering?

[JDinNC]

I would go for a second opinion....Memorial Sloan-Kettering in NYC is the best. With you living in Philly..NYC would be so convenient for you. Give them a call...

[Ceebo]

I'm so sorry abiut the shocking news! We experienced a similar situation last September, 2014. My husband went into surgery for a liver resection but they were unable to do it after they found numerous tiny peritoneal mets on the colon and in the pelvis. They closed him up and said he needed to get back on systemic chemo. He's been on chemo ever since but had to stop it in July due to tumor progression in spite of the chemo. He's now in a clinical trial -TAS-102, but the drug was just recently FDA approved. We are very thankful that my DH still feels good and is very active. We are praying for some other options if this one doesn't stabilize tumor growth. I'm sure you are still numb with just getting the news. This forum offers a lot of knowledge and support. Keep us updated if you can.

[Nik Colon]

So sorry, yes, I would say second opinion. Best wishes

[Scaredoutofmind]

It's been 24 hours since receiving the news regarding DH. After speaking further with surgeon today he explained how they basically found disease on/through the colon wall and along bowel. I asked why we can't just removed the colon and bowel, he said disease is extensive and it would not change much. Said chemo will eventually stop working and he will get sick. Said possibility of furture obstruction.

Of course completely devastated.

I asked his surgeons to limit information to him. I want to keep him in the best spirits to fight. I talked to his onoc today and he will put him back on 5fu, avastin, oxi and said he will be adding an additional drug too.

I want to get additional opinions as anything is possible and miracles do happen. Anyone else experience similar situation?

[shade]

I am so sorry. I understand your desire to shield your husband from the full impact of his condition. This is difficult to do for very long but it might help him recover somewhat before coming to terms with the news. We all know the turmoil you are going through now. I hope your providers can help find a way forward.

[Nik Colon]

Just me, but I would want full explication as to where with pics, etc, and why removing won't help. I still say get a second opinion also.