For the record, pleased to provide a positive report:
5 Years today Post ULAR - No Evidence of Disease - enjoying good health and Bowel Function
It's not always been an easy road despite being diagnosed as stage 1 which doesn't seem such a big deal in comparison to many on this forum - initially a miniscule surgical margin (less than 1 mm distal margin) - incisional hernia - blockage - and then lone paroxysmal developed a-Fib (unrelated and fixed via ablation)
Cancer helped me to take a new view on life and I have taken the foot of the pedal and semi-retired moving to a semi rural coastal spot where we enjoy the good life - taken up cycling and report (in the way of Brown Bagger) 16,000 km since diagnosis (this was restricted for 2 x years by a-fib).
I don't visit this forum often anymore but will always be thankful for the help and support that I received here - this place more than anywhere made me feel normal again and put things into perspective.
Good luck to you all.
John
5 Years NED
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Stomatrooper
- Posts: 490
- Joined: Fri Dec 31, 2010 11:56 pm
- Location: Auckland New Zealand
5 Years NED
John, Diag. 20 5 2010 @55
Rectal, 2cm dia, 3cm from anal verge
T2N0M0
5.5 Wk Chemorad
ULAR Oct 2010
Temp Ileo, infection; blockage; incisional hernia
Takedown Jan 2011
Hernia fix - June 2011
Clean CT 2011; 2012 & 2015
Clean scope May 2013
Rectal, 2cm dia, 3cm from anal verge
T2N0M0
5.5 Wk Chemorad
ULAR Oct 2010
Temp Ileo, infection; blockage; incisional hernia
Takedown Jan 2011
Hernia fix - June 2011
Clean CT 2011; 2012 & 2015
Clean scope May 2013
Re: 5 Years NED
Thanks for posting, so pleased to read this, really good news. I remember years ago when I first joined this site you welcomed me and I am so glad that your treatment has been such a success.
Sophy
Sophy
dx T3N1M0 Feb 2011 when children age 11, 7 and 2
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
June 20 CT shows nodule, bronchoscopy confirms is scar tissue, still NED
Dec 20 stopping Xeloda continue celebrex, cimetedine
Aug 21,March 23 scans show still NED
March 2023 CURED - discharged from Oncology, no more scans or follow up
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
June 20 CT shows nodule, bronchoscopy confirms is scar tissue, still NED
Dec 20 stopping Xeloda continue celebrex, cimetedine
Aug 21,March 23 scans show still NED
March 2023 CURED - discharged from Oncology, no more scans or follow up
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chrissyrice
- Posts: 1171
- Joined: Thu Sep 23, 2010 8:44 am
- Location: Atlanta, Georgia
Re: 5 Years NED
Yes!
Happy 5 yrs!
Happy 5 yrs!
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months
Re: 5 Years NED
"Stomatrooper". That's cute. First laugh I've had all day.
Edited to say: all week!
Edited to say: all week!
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
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jens22
- Posts: 1013
- Joined: Wed Jun 09, 2010 9:26 am
- Facebook Username: jspirio
- Location: Long Island, NY
Re: 5 Years NED
Congratulations. Remember how lucky you have been and give back to those in need. Enjoy Cycling.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.
Re: 5 Years NED
Big congrats! 
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection
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Stomatrooper
- Posts: 490
- Joined: Fri Dec 31, 2010 11:56 pm
- Location: Auckland New Zealand
Re: 5 Years NED
Thanks everyone
@ Sophy - Pleased to see that your treatment is going good (NED) as well.
@ Chrissyrice - remember you from way back - see that you had a recurrence to deal with, good luck and keep battling Chrissy
@sams wife - Thanks, pleased you got a smile, all the best for your Hubbie
@Jens22 - yes I am lucky and will not take it for granted (we never know what may be around the corner) - may luck stay with you too
@ NZ Jay - thanks, see that you are from my neck-of-the-woods - pleased to see you are going well
@ Sophy - Pleased to see that your treatment is going good (NED) as well.
@ Chrissyrice - remember you from way back - see that you had a recurrence to deal with, good luck and keep battling Chrissy
@sams wife - Thanks, pleased you got a smile, all the best for your Hubbie
@Jens22 - yes I am lucky and will not take it for granted (we never know what may be around the corner) - may luck stay with you too
@ NZ Jay - thanks, see that you are from my neck-of-the-woods - pleased to see you are going well
John, Diag. 20 5 2010 @55
Rectal, 2cm dia, 3cm from anal verge
T2N0M0
5.5 Wk Chemorad
ULAR Oct 2010
Temp Ileo, infection; blockage; incisional hernia
Takedown Jan 2011
Hernia fix - June 2011
Clean CT 2011; 2012 & 2015
Clean scope May 2013
Rectal, 2cm dia, 3cm from anal verge
T2N0M0
5.5 Wk Chemorad
ULAR Oct 2010
Temp Ileo, infection; blockage; incisional hernia
Takedown Jan 2011
Hernia fix - June 2011
Clean CT 2011; 2012 & 2015
Clean scope May 2013
-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: 5 Years NED
Congratulations on 5 years NED!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
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wifeandmom
- Posts: 218
- Joined: Fri Nov 12, 2010 1:12 pm
Re: 5 Years NED
Hi John,
How wonderful to hear from you! Thank you for the update; I'm so glad that all is well.
Best wishes!
How wonderful to hear from you! Thank you for the update; I'm so glad that all is well.
Best wishes!
Dx 4/09
Rectal CA T3 N0 M0
Neo-adj. rad/Xelox
Surgery 8/25/09 LAR, temp ileo
Reversal 10/09
Fistula
Surgery 12/21/09 temp ileo
ICU 12/30/09
8 rounds Xelox
Surgery 9/9/10 fix fistula, redo anastomosis
Reversal surgery 12/23/10
Hernia surgery 5/19/11
2018 Dx with radiation-induced Lumbosacral Plexopathy
ATM gene mutation
3/2019 Dx uterine carcinosarcoma Stage 1a
Rectal CA T3 N0 M0
Neo-adj. rad/Xelox
Surgery 8/25/09 LAR, temp ileo
Reversal 10/09
Fistula
Surgery 12/21/09 temp ileo
ICU 12/30/09
8 rounds Xelox
Surgery 9/9/10 fix fistula, redo anastomosis
Reversal surgery 12/23/10
Hernia surgery 5/19/11
2018 Dx with radiation-induced Lumbosacral Plexopathy
ATM gene mutation
3/2019 Dx uterine carcinosarcoma Stage 1a
Re: 5 Years NED
Congrats to you!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?
Re: 5 Years NED
The drive for five buddy ……
NOT to be taken lightly and a huge milestone.
Congrats and Mega Cheers !
CRguy on the Journey
NOT to be taken lightly and a huge milestone.
Congrats and Mega Cheers !
CRguy on the Journey
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
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Stomatrooper
- Posts: 490
- Joined: Fri Dec 31, 2010 11:56 pm
- Location: Auckland New Zealand
Re: 5 Years NED
@ Darkness embraced - thanks
@wifeandmum - thanks Dorothy, please to see you are going well, I think of you from time-to-time and your reports on your reversal (just prior to mine) were a great help and gave me strength when I was feeling low
@Horizon - another name I recall well, all the best
@ CR Guy - great to see you are still supporting 'the club' - all the best (You are right, not to be taken lightly or for granted, who knows what is around the corner?)
@ Nik Colon - thanks and good luck with the ongoing battle - it's looking good!
@wifeandmum - thanks Dorothy, please to see you are going well, I think of you from time-to-time and your reports on your reversal (just prior to mine) were a great help and gave me strength when I was feeling low
@Horizon - another name I recall well, all the best
@ CR Guy - great to see you are still supporting 'the club' - all the best (You are right, not to be taken lightly or for granted, who knows what is around the corner?)
@ Nik Colon - thanks and good luck with the ongoing battle - it's looking good!
John, Diag. 20 5 2010 @55
Rectal, 2cm dia, 3cm from anal verge
T2N0M0
5.5 Wk Chemorad
ULAR Oct 2010
Temp Ileo, infection; blockage; incisional hernia
Takedown Jan 2011
Hernia fix - June 2011
Clean CT 2011; 2012 & 2015
Clean scope May 2013
Rectal, 2cm dia, 3cm from anal verge
T2N0M0
5.5 Wk Chemorad
ULAR Oct 2010
Temp Ileo, infection; blockage; incisional hernia
Takedown Jan 2011
Hernia fix - June 2011
Clean CT 2011; 2012 & 2015
Clean scope May 2013
-
RickWhosoever
- Posts: 47
- Joined: Sun Sep 27, 2015 11:47 am
Re: 5 Years NED
Congrats John!
Jan '15 Dx Stage 2 Rectal Cancer
5 weeks chemo/radiation
May '15 LAR
Oct '15 Finished 8 cycles of Oxi & Xeloda
Now - trying to live life to its fullest
5 weeks chemo/radiation
May '15 LAR
Oct '15 Finished 8 cycles of Oxi & Xeloda
Now - trying to live life to its fullest
Re: 5 Years NED
Great news! Love hearing success stories.
Teddi
Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15
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