Hi Bev, with the new grandbaby and moving I know you've been super busy but I did try and watch your posts to see .........
Did your new onc use the word cured since you're 6 years out from dx and 5 1/2 since the colon resection/ liver resection with no recurrence?
Love those baby pictures!!
Diane
BEV G question
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dianetavegia
- Posts: 2731
- Joined: Sat May 16, 2009 8:47 pm
- Facebook Username: Diane Weldy Tavegia
- Location: Villa Rica, Georgia
BEV G question
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
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Bev G
- Posts: 5856
- Joined: Thu Jan 07, 2010 11:19 pm
- Facebook Username: Bev Golde
- Location: Quechee, VT
Re: BEV G question
Hi Diane,
At the time I had made it 5 years after the liver resection without recurrence he told me he was going to proclaim me "cured". However, at that visit he told me he was quite sure I had a new primary because of numerous hilar lesions seen on the CT. The resulted in having a bronchoscopy and a half dozen biopsies done the following week, all of which turned out to be benign, thank God. The thoracic guy didn't know what they were butt were sure they weren't malignant. there was a brief thought about sarcoidosis, butt I don't have that either. So, though I didn't actually see my onc on the magical date, he had already told me I am "cured"...also told me he planned to do NO follow-up. That wasn't OK with me because of the stage IV diagnosis and the very, very small recurrence risk after five years. Before I have gotten a chance to go back in and speak with him about follow-up plans, I got a letter from him saying he's relocating to Boston....So, I know my doc has a fantastic reputation, and he is faculty at one of the Ivies, but I was never really nuts about him. Perhaps even a little less now after him having said he was "quite sure" I had a new primary, scaring the crap out of me. So I will get a different onc at Dartmouth assigned to me and take it from there.
WHat a long answer to your short and sweet question, butt yes, I guess I'm cured.
xox to you
At the time I had made it 5 years after the liver resection without recurrence he told me he was going to proclaim me "cured". However, at that visit he told me he was quite sure I had a new primary because of numerous hilar lesions seen on the CT. The resulted in having a bronchoscopy and a half dozen biopsies done the following week, all of which turned out to be benign, thank God. The thoracic guy didn't know what they were butt were sure they weren't malignant. there was a brief thought about sarcoidosis, butt I don't have that either. So, though I didn't actually see my onc on the magical date, he had already told me I am "cured"...also told me he planned to do NO follow-up. That wasn't OK with me because of the stage IV diagnosis and the very, very small recurrence risk after five years. Before I have gotten a chance to go back in and speak with him about follow-up plans, I got a letter from him saying he's relocating to Boston....So, I know my doc has a fantastic reputation, and he is faculty at one of the Ivies, but I was never really nuts about him. Perhaps even a little less now after him having said he was "quite sure" I had a new primary, scaring the crap out of me. So I will get a different onc at Dartmouth assigned to me and take it from there.
WHat a long answer to your short and sweet question, butt yes, I guess I'm cured.
xox to you
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
Re: BEV G question
Oh, Bev, CONGRATULATION!!!!!
I've been watching and waiting for those words from you for sometime now. I would be in seventh heaven to hear the word " cured ". Even if it mean always doing follow ups for the rest of my life. You have given us hope that it is possible.
Diane...you are next so stay positive
Jan
I've been watching and waiting for those words from you for sometime now. I would be in seventh heaven to hear the word " cured ". Even if it mean always doing follow ups for the rest of my life. You have given us hope that it is possible.
Diane...you are next so stay positive
Jan
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED
Re: BEV G question
Belated congrats, Bev 
. Such a beautiful word.
. Such a beautiful word.11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection
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SugarBubbie
- Posts: 239
- Joined: Sun Jun 12, 2011 3:55 pm
- Facebook Username: Rhonda Pinkston
- Location: Texas
Re: BEV G question
Terrific news for you and very very happy for you. Feels great doesn't it!!!
DX Stage II anal cancer 2007 age 57
Radiation 6 weeks, Xeloda/oxilaplatin
DX Breast cancer Jun 2011 Stage3 one lymph nodes
Taxol 12 weeks FAC 4 tx, 31 radiations
5 year survivor certificate from MDA 2012 for anal cancer
DX triple neg bc oct 2015 4 rounds adriamyicyn, 20 radiations
"Positivity has no downside"
Radiation 6 weeks, Xeloda/oxilaplatin
DX Breast cancer Jun 2011 Stage3 one lymph nodes
Taxol 12 weeks FAC 4 tx, 31 radiations
5 year survivor certificate from MDA 2012 for anal cancer
DX triple neg bc oct 2015 4 rounds adriamyicyn, 20 radiations
"Positivity has no downside"
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hummingbird3
- Posts: 56
- Joined: Sat Sep 14, 2013 5:11 pm
Re: BEV G question
Congrats to you Bev! I was wondering the same and so glad to hear your news!
Love to hear these success stories, bringing hope to this forum and your wisdom is very appreciated!
Love to hear these success stories, bringing hope to this forum and your wisdom is very appreciated!
9/11 dx CRC, colectomy/ileostomy, Stage IIIC 
11/11 - 6/12 FOLFOX/nulasta
7/12 watching possible cyst on ovary ... 8/12 it grew
10/12 hysterectomy, oophorectomy, complications/blockage, TPN
Stage IVa
12/12 small bowel resection
3/13 -9/13 FOLFIRI/nulasta
NED
10/14 - 2/15 close monitoring
4/15 it grew
PET/biopsy .. local recurrence
8/15 surgery
NED ... No chemo!
11/11 - 6/12 FOLFOX/nulasta
7/12 watching possible cyst on ovary ... 8/12 it grew
10/12 hysterectomy, oophorectomy, complications/blockage, TPN
Stage IVa
12/12 small bowel resection
3/13 -9/13 FOLFIRI/nulasta
NED
10/14 - 2/15 close monitoring
4/15 it grew
PET/biopsy .. local recurrence
8/15 surgery
NED ... No chemo!
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DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: BEV G question
Congratulations Bev! That's wonderful news! 
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: BEV G question
That's so wonderful to hear! Congratulations! And thank you so much for sticking around to support and advise the rest of us. It's meant so much to me to follow your posts.
Judy
Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4
Re: BEV G question
Great news, Bev!!! Congrats!!
Dx 12/12 Stage 3B sigmoid crc T3N1M0
2/13 resection w/ temp Iliost, port insert. Reversal 5/13.
6/13-12/13 Folfox 12 sessions. Oxi stopped @ session 4.
9/14 CT shows 1.2CM nodule on upper lobe of left lung.
3/15 wedge resection left lung (stage 1A lung cancer) no chemo.
9/16 CT/PET shows node activity (SUV 10.6), CEA extremely elevated. Mets from colon. Upgraded to stage 4.
11/16-4/17 Begin Folfiri w/Avastin 8 sessions.
4/19-9/19 endobronchial activity lung mets.
1/20 Stivarga (palliative).
2/13 resection w/ temp Iliost, port insert. Reversal 5/13.
6/13-12/13 Folfox 12 sessions. Oxi stopped @ session 4.
9/14 CT shows 1.2CM nodule on upper lobe of left lung.
3/15 wedge resection left lung (stage 1A lung cancer) no chemo.
9/16 CT/PET shows node activity (SUV 10.6), CEA extremely elevated. Mets from colon. Upgraded to stage 4.
11/16-4/17 Begin Folfiri w/Avastin 8 sessions.
4/19-9/19 endobronchial activity lung mets.
1/20 Stivarga (palliative).
Re: BEV G question
Congrats Bev! And thanks for staying around to help others!
Age 58
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
KRASwt
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
KRASwt
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice
Re: BEV G question
YES, that is fantastic news Bev! So happy for you.
Jean
Jean
Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13
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chrissyrice
- Posts: 1171
- Joined: Thu Sep 23, 2010 8:44 am
- Location: Atlanta, Georgia
Re: BEV G question
Bev, so happy to get the full run down on what you experienced and the outcome.
Also new oncologist sounds like a positive too.
Chrissy
Also new oncologist sounds like a positive too.
Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months
Re: BEV G question
Bev, just adding my congrats to the list! So happy for you!!!
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed
2 Corinthians 12:9
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed
2 Corinthians 12:9
Re: BEV G question
So happy for you Bev, give that baby a extra hug. Nothing like a baby to make us think differently about our lives.
Jackie
Jackie
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Re: BEV G question
Bev, so glad you shared this (Diane, great question)!
Thrilled to read this word-- thrilled for you, your family and for the hope it provides!
Jane
Thrilled to read this word-- thrilled for you, your family and for the hope it provides!
Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)
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