HIPEC Surgery - Best Surgeons. MSKCC? or ?

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DK37
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Location: San Diego

HIPEC Surgery - Best Surgeons. MSKCC? or ?

Postby DK37 » Fri Sep 25, 2015 8:15 am

I'm posting this on behalf of a friend.
She has a very rare cancer called Pseudomyxoma Peritonei that is treated with HIPEC surgery similar to CRC with peri mets.
I was hoping to hear advice on the current best HIPEC surgeons in the US, ideally ones that specialize in tricky cases which I would consider a rare cancer.
Thank you,
-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
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CM35
Posts: 265
Joined: Tue Dec 03, 2013 1:16 pm

Re: HIPEC Surgery - Best Surgeons. MSKCC? or ?

Postby CM35 » Fri Sep 25, 2015 9:15 am

I can't help with the question of who or where is the best as far as HIPEC centers or surgeons for pseudomyxoma peritoniei, unfortunately. I had HIPEC in May; during my initial consult, I remember my surgeon saying that appendiceal cancer and pseudomyxoma peritonei had the best response to HIPEC. That those tumor types tend to stay on the peritoneal surface where CRC invades the tissue more deeply. However, since those two types of cancer are relatively rare, most HIPEC procures are done on CRC patients. So, this isn't particularly helpful, but I would say the key factor, if this is more extensive/complicated case, the key is finding an aggressive surgical oncologist. The cytoreductive part of the surgery, rather than the HIPEC part, is most important - being able to get that complete resection of disease. I have heard of instances of the surgeon at Mt Sinai (Labow) taking on tough cases. From what I understand, they are also pretty aggressive at UPMC. Another consideration is if there is a good, but perhaps not famous, HIPEC surgeon local to where your friend lives. I chose to go with my non-famous, local surgeon and I am not sorry I did. I had some complications post op, and it was highly comforting to be at home, and there was no stress of trying to coordinate my care over the phone with my surgeon and local doctors. I could just call my surgeon, and be seen in the office that day if needed.

Good luck to your friend!

Colleen
stg IV 4/2013 @34 - liver, ovary/peritoneum
Lots of chemo, surgery and good luck - still doing well 03/2016...

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DK37
Posts: 510
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

Re: HIPEC Surgery - Best Surgeons. MSKCC? or ?

Postby DK37 » Fri Sep 25, 2015 9:26 am

Thank you for the advice Colleen!
-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List

ieowi
Posts: 202
Joined: Mon Jul 27, 2015 1:27 am

Re: HIPEC Surgery - Best Surgeons. MSKCC? or ?

Postby ieowi » Fri Sep 25, 2015 9:44 am

Dr.Paul sugarbaker developed this procedure (Hipec) . You may try going to him directly, in Medstar Washington Hospital Center.
I have also talked to him To see if he can do something to my dad but of course he couldn't.
Father 58 yo , Colon cancer IV + 4 Lymph. 7/2015
K-ras Mutant,GNAS,FBXW7,PIK3CA, MSI-low
4 cycles irinotecan+FU5
developed abdominal met + lung met...Failed
4 cycle Oxaliplatin+folfox. peri met growing...Failed
unofficial trial !!!

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DK37
Posts: 510
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

Re: HIPEC Surgery - Best Surgeons. MSKCC? or ?

Postby DK37 » Fri Sep 25, 2015 9:58 am

Thanks ieowi!
-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List

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H is for Hawk
Posts: 103
Joined: Wed May 20, 2015 4:51 pm
Location: eastern Pennsylvania

Re: HIPEC Surgery - Best Surgeons. MSKCC? or ?

Postby H is for Hawk » Fri Sep 25, 2015 10:44 pm

The folks at Memorial Sloan Kettering referred me to Dr. David Bartlett at the University of Pittsburgh Medical Center - Shadyside for my HIPEC surgery. They perform a fairly high volume of this type of procedure; extensive prior experience is important for this complicated operation.
H is for Hawk (57)
10/14 L. hemi-colectomy 3 x 4 x 1 cm tumor, 13/14 lymph nodes pos. pT4a N2B M0 stage 3 MSS
11/14 - 4/15 12x FOLFOX
5/15 PET scan: 2.5 x 1.5 cm l. colon lesion, peri surface lesion SUV 2.4, adenocar., KRAS wd, BRAF V600E mut
6/15 HIPEC
9/15 Pleural lining & liver mets, CA 19-9: 6000
10/15 Vectibix Tafinlar Mekinist
11/15 1500
1/16 200
2/16 100, add Lentinan
3/16 122
6/16 4500
7/16 20,000, CT scan - three new liver mets
8/16 6700, FOLFIRI
9/16 4900, CT scan - two new liver mets
10/16 2255 vinorelbine

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: HIPEC Surgery - Best Surgeons. MSKCC? or ?

Postby Stanfordmom » Fri Sep 25, 2015 11:24 pm

Dr. Andrew Lowy at UC San Diego is kinda of famous of Doing HIPEC. he might be close to your friend?

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

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DK37
Posts: 510
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

Re: HIPEC Surgery - Best Surgeons. MSKCC? or ?

Postby DK37 » Sun Sep 27, 2015 12:10 am

Thanks everyone! With a couple of choices, I think I have my answer to pass on to my friend!

Cheers,
-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List

Julie YW
Posts: 170
Joined: Tue Aug 27, 2013 2:25 am
Facebook Username: Julie.yip-williams

Re: HIPEC Surgery - Best Surgeons. MSKCC? or ?

Postby Julie YW » Mon Sep 28, 2015 9:56 am

Dr. Daniel Labow at Mount Sinai has performed close to 300 HIPEC surgeries. He's also an amazing guy. Highly recommend him. The other person recommended to me was Bartlett at Pittsburg but I never consulted with him.
DX July 2013, 37yo
12 of 68 LN
Stage IV w/ drop peri met
Folfox 8/12/13
Clean scans 1/24/14
Rising CEA 2/13/14
HIPEC 3/13/14
Folfiri 4/21/14
Recurrence in lungs 12/19/14
Xeloda & Avastin
Follow my blog: http://julieyipwilliams.wordpress.com/about/

User avatar
DK37
Posts: 510
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

Re: HIPEC Surgery - Best Surgeons. MSKCC? or ?

Postby DK37 » Mon Sep 28, 2015 2:40 pm

Thanks Julie!
-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List


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