My lastest

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Re: My lastest

Postby CRguy » Fri Sep 25, 2015 10:26 am

Sending love peace and harmony on the journey ahead.
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Posts: 239
Joined: Thu May 21, 2015 8:35 pm

Re: My lastest

Postby ozziej » Fri Sep 25, 2015 10:31 am

F 56 dx 11/14 Stage 1 RC (post EMR)
No neo-adjuvant or adjuvant chemo/RD
3/15 ULAR (open) temp loop ileo
5/15 ileo reversal
NED and hoping to stay that way!! : )

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Joined: Thu Feb 26, 2015 1:50 pm

Re: My lastest

Postby Crystald » Fri Sep 25, 2015 10:51 am


I admire you. Your courage, strength & faith have never wavered. You are a good man. I was especially touched by this remark:

I should also include what I have gained through my cancer journey.

My wife (married 20 years on May 20th) and I have become so much closer. She is the best caregiver I could imagine having. She puts me first in everything. I thought I knew love, but she has shown me what true love really is. Her life revolves around me. I didn't ask for this, but she gives unconditionally. I would give up my life for her this very instant if called upon. This may sound crazy, but I want to get better for her sake more than my own. She did not sign up for this crap, but she faces it daily like a hero. I couldn't repay her in a thousand lifetimes. I would do chemo for the next 20 years for her. She deserves it!

My prayer for you is that you will be free from pain & discomfort. That your family will be comforted and find peace.

I thank you for sharing your journey, the hope, the fear, the joy, the despair.

You & your family are in my prayers daily.

Damn cancer.
Age 58
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice

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Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: My lastest

Postby BrownBagger » Fri Sep 25, 2015 11:33 am

All the best to you, my friend, in this transitional period.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Location: California

Re: My lastest

Postby ziggymonster » Fri Sep 25, 2015 11:58 am

I'm very sorry to hear are a true inspiration....your grace and courage are beyond any words.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

Re: My lastest

Postby drebay » Fri Sep 25, 2015 4:59 pm

Thoughts headed your way for you and yours. I know you will want to be strong for your family, but you don't have to be.

6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

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Posts: 316
Joined: Tue Jan 14, 2014 7:41 am
Location: Detroit

Re: My lastest

Postby Sleen » Fri Sep 25, 2015 5:47 pm

Glad to know that your wife can be with you.
Will be praying for you and your loved ones.

my blog: Cancer Riot

NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]

Married 28 yrs. kids: 24, 21, 17, 12, 10
SE Michigan home schooler, unemployed mechanical engineer, and programmer.

Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: My lastest

Postby Joannerogers » Fri Sep 25, 2015 5:51 pm

My prayers are with you and your family.
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

Posts: 6202
Joined: Sun Apr 16, 2006 4:09 pm

Re: My lastest

Postby Lee » Fri Sep 25, 2015 6:47 pm

I pray you have good days ahead with your family and loved one.

Peace be with you,

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Posts: 263
Joined: Fri Aug 17, 2012 7:11 pm
Location: Atlanta, Ga.

Re: My lastest

Postby mackswife » Fri Sep 25, 2015 8:50 pm

My prayers are with you and your family. I hope your days are as gentle as possible. I know that the words you spoke to your daughters and your declaration of being at Peace will be a source of great comfort to them. God bless you all,

Husband IIIC;
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list

Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: My lastest

Postby jhocno197 » Fri Sep 25, 2015 9:51 pm

Praying for you and your family.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: My lastest

Postby Stanfordmom » Fri Sep 25, 2015 11:33 pm

Dearest Richard,

Sorry you had the talk with your girls. Your strength in this is so inspirational.

Sending prayers and strength to you and your family. wish you all have peace and comfort.


DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

Posts: 54
Joined: Thu Aug 27, 2015 2:28 am

Re: My lastest

Postby PEEJAY » Fri Sep 25, 2015 11:36 pm

Wow. Please know there is a family here in Oregon thinking of you and yours tonight. You are incredibly brave.
Age 33
Stage 4 CC with 20+ mets to liver 1/20/2015
8 Rounds Folfoxiri feb - april 2015
Colon Resection 5/2015
Permanent Colostomy
Peritoneal Carcinoma found
Folfiri + Erbitux 6/2015 - 9/2015
Angiomapping for Y90 9/24/2015
Y90 Treatment 10/13/2015
Power port re-placing sched. 10/23/2015
Due back for chemo 10/29/2015 (right before trick or treating!!!)
11/26 Chemo not working
My colon cancer podcast "I'm Dying Here" in iTunes: ... 1035722798

Nik Colon

Re: My lastest

Postby Nik Colon » Sat Sep 26, 2015 5:22 am

I am so sorry to hear this. Big hugs to you and your family ♡

Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: My lastest

Postby jalusa » Sat Sep 26, 2015 10:23 am

Prayers for you and your family my friend. Jim
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

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