Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

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tammylayne
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Joined: Fri Jul 16, 2010 9:24 am

Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby tammylayne » Wed Sep 23, 2015 11:33 am

Just met with my surgeon and they are recommending I look at hernia repair surgery - preferably within the year. I have 3 separate hernias spanning over 7 inches (Incisional) - 2 of the 3 have "broken through the abdominal wall". the reason they are recommending surgery is because they will of course continue to grow...and as I age health issues will make the surgery and recovery tougher. Right now I am healthy - although overweight - and am approaching my 5 year anniversary date - so the risk of future cancer is reduced...I am in a good place other then the hernias.

My surgeon is a Top rated doctor world wide - he is the king of laproscopic procedures and feels confident that at this stage this is a very real option for me, although there always is the risk of it becoming open. I figure at least if it is laproscopic, that will reduce SOME of the recovery pain.

Sooooo....my question to all you Hernia Warriors before me...how horrible is it???????

My second resection darn near killed me from a pain point of view for almost a month. I did have an open surgery - about 12 inch incision. They removed my rectum, ovaries, 12 more inches of colon, some small intestine and placed an ileo. I also ended up with a wound infection, although this was not a major source of pain. If I had to rate it..I would put it as a 10/10 - the WORST pain ever!!!! Many nights when I went to bed I prayed I would not wake up in the am. I was on percs and T3s for pain management - and I was not afraid to use them!! :roll:

How long was your recovery? I was told it would be a fair size of mesh required, and the internal pain is because of the mesh being sutured to the abdominal wall. It won't last forever - but here is ALOT of pain for the first 6 weeks. True?? Would it be reasonable to be off work for 8 weeks? Less? Longer?

Please share...I want all stories please.....THANKS
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

ams5796
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby ams5796 » Wed Sep 23, 2015 11:44 am

Tammylayne,

I have no experience with hernia surgery, but I just wanted to wish you the best of luck. I'm happy to read that you're healthy otherwise. It sounds like you've been through a lot. I hope that this will be just a small bump in the road for you.


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

KimT
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby KimT » Wed Sep 23, 2015 1:13 pm

I had an open hernia repair in May 2012. It was my easiest surgery but longest recovery. It was easy in that it was the least painful of all my surgeries. I was up and about a couple hours after surgery. I only opted to spend a second night in the hospital for the peace and quiet from my family, lol. I did have a drain for a week. I had a small baby fit when I found out that sucker was going home with me. Most of my post surgery discomfort was due to that drain. Once it came out, I felt so much better. Now on to why it was my longest recovery. When they use mesh, it takes about 6 months for it to adhere to the abdominal wall and sort of become one with your body. I have cadaver mesh. I was pretty much healed up surgery wise about 2 weeks out. But for a good 6 months, I would get occasional pains and a sensation that that mesh was pulling inside me. The pains only lasted a couple of seconds. I would move a certain way and feel a sharp pain and tugging and then it was over. I do feel a whole lot better now that the hernia is repaired. I had a rather large one and it was giving me problems. Sometimes a loop of bowel would get caught in it and that was the worst pain I've ever felt.
2/10 dx colon cancer
right hemicolectomy 3/19/10
Stage 2a 0/43 nodes
Lynch syndrome
3/14/10 colon resection/ removal of metal clips
Nov 11 dx ovarian cancer

curious56
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby curious56 » Wed Sep 23, 2015 2:40 pm

I had an abdominal met removed last summer. It went deep enough that I basically had a hernia repair -- actually, mesh was installed to KEEP me from getting a hernia. My incision is about 8" to 9" long, directly over my resection. Surgery went well. It was supposed to be outpatient, but I had trouble waking up, so they kept me 23 hours. I had percs for pain relief -- worked quite well. The ONLY problem I had was that I developed a seroma -- fluid around the site -- looked like a nerf football under the skin. My doc said this is VERY common with the mesh. The fluid was uncomfortable -- even made taking a deep breath difficult. Doc drew off the fluid at first follow-up appt. -- about 3/4 to 1 cup -- IMMEDIATE relief. He told me to wear a girdle/abdominal binder for a couple of weeks to help keep the fluid from returning. It worked! No more problems. I fell a tug or pull every once in a while. Not painful.
dx 12/12 with CC Stage IIIB - T3N2aMO
6/18 nodes +
Resection sigmoid 12/12
Xelox 2/13 -- stopped, BAD side effects
Vegan and supplements
Clear scan 11/13
Met to abdomen - surgery 7/14
Philippians 4:6-7

JudeD59
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby JudeD59 » Wed Sep 23, 2015 3:20 pm

I've had two incisional hernia repairs for large hernias. Neither of mine were laparoscopic, so yours might be very different. With my first, they used cadaver skin and with the second, they used pig skin. What I remember most about the recovery is feeling like I had either done a couple hundred ab crunches or been punched repeatedly. The muscles in the whole ab area were very, very tender for awhile. When I woke up after the first one, they had put an abdominal binder on me but they had cinched it too tight. I vomited several times before we realized it was the binder. Once it was loosened, I was fine. So if you feel like you can't take a deep breath or start vomiting, loosen the binder a bit. It makes a huge difference.

I had two drains after the first one and they remained in for 6 weeks. I only had one drain after the second and I think it was in for 4 weeks. They are a pain in the neck, but manageable. You can buy gauze drain sponges to go around the tubing and use a lanyard to hold them while you shower. A safety pin will hold them to your clothing so they don't hang down and pull. They need to be emptied regularly and the contents measured. Once the daily output reaches a low enough level, they will remove them. They cut the suture holding the tubing in place and give a quick tug and it's out. It's a quick sharp pain, but not that bad. A scab will form over the opening and mine always took weeks to finally heal, then I was left with a very small round scar. Some surgeons don't use drains, but I think it's good to not have all that fluid floating around in your abdomen. I was happy to have it out.

My first one was so large that I was cut from hipbone to hipbone, so it was quite a long time for full recovery. The second was from belly button to a couple of inches above my crouch. Neither surgery was as difficult for me to recover from as my LAR has been. I'd say that the incision itself stopped bothering me after about two or three weeks, but the drains were annoying, especially when they were tugged accidentally. Even after the drains were removed, the area inside where they had been continued to be achy for a week or so. I had one drain after the LAR and it was the same-soreness internally near the drain site for about a week.

This is my fifth surgery--total abdominal hysterectomy, hernia, emergency bowel resection, hernia, and now LAR and I would say the hernia surgeries were the easiest for me to recover from. With the hysterectomy and the resections, organs are being cut and sewn back together so there is a lot of internal stitches to heal. The hernia surgery is just a patch sewn to your muscles, so it is more muscle pain. Since it isn't your organs being messed with, you don't have to deal with bowel problems once they wake up and your appetite won't be as affected. Just remember to take it easy, don't lift or strain at all, and allow it to fully heal. If you try to jump back into normal life too soon, you'll end up with another hernia. Walking upright and straight helps the healing and holding a pillow over your stomach when you laugh, cough, or sneeze helps, too.

Good luck and if you have any other questions, I'll be happy to answer them.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

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teacher49
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby teacher49 » Wed Sep 23, 2015 4:17 pm

Tammylayne,

I couldn't tell by your signature.....are you asking about abdominal hernia due to open surgery or are you asking about parastomal hernia repair.

I've had APR/colostomy since 2011 and I had a large parastomal hernia that developed in the last year. My surgeon said it wouldn't get better with age...so I had it fixed in August of this year. Same CRC surgeon who did my initial resection. He did a robotic laparoscopic repair with mesh. Stoma still in the same place.....not much post-op pain.....due to laparoscopic procedure. 4 days inpatient. But I always forget how careful a colon cancer survivor needs to be post-op because of anesthesia/surgical trauma/opiate pain meds......and how long it takes for colon to "wake up" and start moving like normal.

I did have GI slowness, in the week post-op, the dreaded: nothing coming out.....but I managed it at home, and since then all has been well.

I'm so glad I had it done. The hard bulge in my left lower belly is gone and my colorectal specialist surgeon looked around while he was in there and said everything looked good internally so that was good news.
F, 62,CRC, Adenoca, mod diff
cT3N0M0 Stage IIA May 2011
chemorad
APR on 9/27/11 Margins & Nodes Neg
comp.after surg/2 pelvic abscesses/Sepsis/Hosp 40 days
10th FOLFOX 6/6/2012 feet went numb
5FU to finish
NED 8/11/2021

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NZJay
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby NZJay » Wed Sep 23, 2015 6:23 pm

I had an open (groin to sternum) incisional hernia repair, with a mesh insert in a diamond shape, basically covering my entire abdomen.

Aside from the open incision, they made 4 laproscopic incisions where the mesh was "stapled" through the abdominal wall, and another for the drain tube.

I was in hospital four nights, and sent home with codeine and paracetamol - I required a further two weeks chilling at home before I could return to my desk job.

Initial post-surgical pain was fine, as they had me on ketamine and morphine. When released, I struggled to control my pain with standard painkillers.

I wore a velcro corset for 3 weeks after the surgery, which was annoying but helped keep everything "tight" and less painful.

Honestly, I still (7 months later) have some tweaks and pains and discomfort. But I imagine I'm full of scar tissue etc, so it's not a big deal.

Overall, it was nothing on my resection recovery. But my resection was fairly hellish, so yeah. Best wishes. You'll be fine.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

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NZJay
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby NZJay » Wed Sep 23, 2015 6:26 pm

Oh... and I needed help cooking, buying groceries, walking my dog etc for approximately one week after returning home from hospital.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

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exaussie
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby exaussie » Wed Sep 23, 2015 6:32 pm

My son had hernia surgery, he had 2 to repair. Well so we thought, 3 hours into surgery the nurse came out and said there were SEVEN of them all along resection scar.
His was so bad, and they were worried about infection they took his side muscle and pulled that together instead of mesh. It worked really well. They also removed his belly button. That was strange...
It took him a long time to recover, he wasn't easy to keep down and ended up having a hole open up...25 year olds still think they are superman. It eventually closed.
If he followed advice better I think recovery would be better.. Follow surgeons recommended VERY seriously and take it easy in recovery.
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

shade
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby shade » Wed Sep 23, 2015 8:54 pm

Best of luck and let us know how it goes. I have an incisional hernia that is worsening, though my surgeon says no to surgery at present. Apparently it is tricky surgery with variable results, but others on this thread have had good outcomes so there is plenty of reason to be optimistic.
Stage IV rectal
10/12 Cancerous polyp removed age 51
6/14 uLAR and resected liver met
12/14 finished FOLFOX / Avastin
1/15 ilio reversed = LARS!!!
1/20 onc said “cured!” - no further monitoring unnecessary
5/21 chest pain revealed new lung mets… radiation
10/21 maintenance avastin/xeloda
9/22 stivarga 2 weeks, d/c'd due to foot pain
10/22 vectabix + irinotecan

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LeonW
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby LeonW » Thu Sep 24, 2015 4:10 am

shade wrote:. . . I have an incisional hernia that is worsening, though my surgeon says no to surgery at present

Same here, but stable. I have a hole where the incisions for colon and liver resections meet. About 1 x 1.5 inches. No pain, just a weird little bubble. So no problem for me to leave it like this and I agreed to the surgeon's suggestion not fixing it. Didn't know that fixing it is 'tricky' and that results 'vary'. Thanks for telling. Another good reason to accept my small extra belly bulge.

My reason for not fixing it is the idea that meshes may make future surgery more difficult. Am I right in assuming that during a future surgery they'd have to cut thru the mesh, leave some of the remnants and a possibly will add another mesh to close everything up again? Rather messy :oops: situation, I'd think.

I haven't spoken about this to my surgeons yet. Anyone here with who can comment? Share experience?
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!

Valorie
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Joined: Mon May 05, 2014 6:33 am

Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby Valorie » Thu Sep 24, 2015 9:51 am

I have to say that between the colon resection and hernia repair - the hernia repair was by far the hardest. I was back to normal very quickly after the resection. Not so much with the hernia repair. I was in the hospital for 5 days (hernia) vs 3 (resection). Pain was considerably more for the hernia repair also. I took a few Advil for the resection pain but broke down and took Norco at night for 3 nights when I got home from hernia surgery. One of the biggest things for me has been the "bite" from the mesh attachment sites . I had my surgery in Feb. and it's taken until just recently to not feel that bite when I did things physically taxing. I live to garden and using a shovel or rake really pinched.
Although it wasn't pleasant - it was doable. You will do fine.
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!

shade
Posts: 162
Joined: Thu Feb 20, 2014 7:08 pm

Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby shade » Thu Sep 24, 2015 5:36 pm

LeonW wrote:
shade wrote:. . . I have an incisional hernia that is worsening, though my surgeon says no to surgery at present

Same here, but stable. I have a hole where the incisions for colon and liver resections meet. About 1 x 1.5 inches. No pain, just a weird little bubble. So no problem for me to leave it like this and I agreed to the surgeon's suggestion not fixing it. Didn't know that fixing it is 'tricky' and that results 'vary'. Thanks for telling. Another good reason to accept my small extra belly bulge.


I have that belly bulge, too. It was my surgeon who told me the surgery was tricky and results vary. Not sure if that is true, but that's what he said. He clearly did not want to bring me back into surgery.
Stage IV rectal
10/12 Cancerous polyp removed age 51
6/14 uLAR and resected liver met
12/14 finished FOLFOX / Avastin
1/15 ilio reversed = LARS!!!
1/20 onc said “cured!” - no further monitoring unnecessary
5/21 chest pain revealed new lung mets… radiation
10/21 maintenance avastin/xeloda
9/22 stivarga 2 weeks, d/c'd due to foot pain
10/22 vectabix + irinotecan

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CRguy
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby CRguy » Thu Sep 24, 2015 5:54 pm

tammylayne wrote:Please share...I want all stories please.....THANKS

from an old post of mine
Quick sidenote, your surgeon is probably up to speed, but there are special meshes which have been effective in prohibiting follow up infections. Not all are, so be sure to check that with him. My "repeat" roommate in hospital had been in for 7 "infected" hernia repairs until my surgOnco agreed to take him on, and went in and redid everything from the inside out with the particular mesh. (I may have posted something a couple of years back ?? ) No problems since.

Guess my message would be :
have a great surgeon, using the best methods for your particular case..... which it appears you have !

Ask a few questions about "meshes" ... there are a number of different kinds ... and see what his take is and why.
Sorry I have not used any as vet surgeon myself, so I had to rely on my hospital roommate's experience when my wife had a minor repair ( same surgeon who fixed my buddy up .... my SurgOnc ! )

Cheers and Harmony !
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Jacques
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Re: Hernia Repair Surgery - I want the Good, the Bad and the Ugly please

Postby Jacques » Fri Sep 25, 2015 3:10 am

Here is an overview of incisional hernia repair methods, taken from a surgeon's website:

Incisional Hernia Repairs
http://www.drbarrygardiner.com/docs/IncisionalHernia.htm
.


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