My blood test done prior to the CT /MRI is this Friday and CT /MRI is Oct. 2nd. I'll get the results on Oct. 9th and Oct. 10th is our 45th wedding anniversary.
Anyone else scanning in the next weeks?
Scanxiety creeping in
-
dianetavegia
- Posts: 2731
- Joined: Sat May 16, 2009 8:47 pm
- Facebook Username: Diane Weldy Tavegia
- Location: Villa Rica, Georgia
Scanxiety creeping in
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Re: Scanxiety creeping in
Thursday - UGH!
10/9/14 DX Age 50 - MSS
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU
Re: Scanxiety creeping in
My wife had her scan last Wednesday. Got the results today. Went from stable for about a year to a couple of new small spots in her abdominal area. And her CEA is now outside the normal range at 5.9 a 1 point increase in three weeks. Not good I think at all - so Maintenance will be changing to FOLFIRI and Avastin from Just 5-FU Avastin. Damn it all! I was dreading this one quite a bit. I Hope my wife tolerates this as well as she has been tolerating the 5-FU Avastin and the initial FOLFOX. We may look into a trial with Cetuximab and Neratinib in combination if this doesn't work.
Scanxiety never really goes away I think. I tried to be optimistic, but that didn't work this time!
Regards,
GrouseMan
Scanxiety never really goes away I think. I tried to be optimistic, but that didn't work this time!
Regards,
GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017
Re: Scanxiety creeping in
I'm having a camera up my uturus tomorrow because on the xray the obg saw a blob of fluid.
I'm sure it's nothing, although I was sure it was nothing last year on my first colonscopy.
Ah well just one more sleepless night and a zillion peppermint balls.
( I crave soft melt in the mouth peppermint balls, I'm figuring if I eat enough my stoma bag will smell lovely as well
)
Hope you have prepared something really nice for your aniversary! What ever happends the day before, it's worth a big celebration.!!!!
Grouseman, sorry to hear about the new spots. Since she is in good condition, is hipec on the list?
Hug,
Annemiek
I'm sure it's nothing, although I was sure it was nothing last year on my first colonscopy.
Ah well just one more sleepless night and a zillion peppermint balls.
( I crave soft melt in the mouth peppermint balls, I'm figuring if I eat enough my stoma bag will smell lovely as well
)Hope you have prepared something really nice for your aniversary! What ever happends the day before, it's worth a big celebration.!!!!
Grouseman, sorry to hear about the new spots. Since she is in good condition, is hipec on the list?
Hug,
Annemiek
43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9
-
ANDRETEXAS
- Posts: 662
- Joined: Fri Feb 14, 2014 11:01 am
- Location: Austin, Texas (University of Tennessee alumnus)
Re: Scanxiety creeping in
Just got home from CT scan this morning......Quick, easy, painless and sure to be a good result !! Yours will too !!! Andre (COO - Belief in Positive Thinking, Inc.)
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT
3/23/16 - clean CT
2/22/17- clean CT
3/21/18 - clean CT
4/1 - clean colonoscopy
3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !
4/13/23 - clean colonoscopy
ONE DAY AT A TIME !
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT
3/23/16 - clean CT
2/22/17- clean CT
3/21/18 - clean CT
4/1 - clean colonoscopy
3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !
4/13/23 - clean colonoscopy
ONE DAY AT A TIME !
-
ziggymonster
- Posts: 538
- Joined: Tue Feb 05, 2013 3:23 pm
- Location: California
Re: Scanxiety creeping in
First off Diane, wishing you luck on your scans.
During the week of Oct 5th I will be doing a Ct scan to check on further growth of 2 lung mets noted in my June scan, a bone scan to track 2 bone mets in my rib/spine likely from my advanced prostate cancer. Also a CEA and a PSA (prostate) to see if the new meds that I started in June are working. I am petrified since I now have 2 active cancers either one could be big trouble !!
During the week of Oct 5th I will be doing a Ct scan to check on further growth of 2 lung mets noted in my June scan, a bone scan to track 2 bone mets in my rib/spine likely from my advanced prostate cancer. Also a CEA and a PSA (prostate) to see if the new meds that I started in June are working. I am petrified since I now have 2 active cancers either one could be big trouble !!
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now
Re: Scanxiety creeping in
Blaise will be having a CT scan this Thursday (24th) along with labs and a visit with the oncologist. CT in march was clear so that's what we're hoping for again.
Blaise (DH) dx 3/31/14 (age 49)
Stage IIIb Rectal - 4 lymphs involved
Xeloda and Rad 5/5/2014
Surgery 7/29/14 Illeostomy Placed
FolFox 9/11/2014 x 9 treatments
Reversal 1/27/15
NED 9/29/2015
Kathy-Caregiver
Stage IIIb Rectal - 4 lymphs involved
Xeloda and Rad 5/5/2014
Surgery 7/29/14 Illeostomy Placed
FolFox 9/11/2014 x 9 treatments
Reversal 1/27/15
NED 9/29/2015
Kathy-Caregiver
Re: Scanxiety creeping in
CT Scan on 10/13, after 5 rounds with Erbitux to see if it's effective at all. Sharing your scanxiety!!
58 yo female
Dx CRC 2/17/14
perm colostomy 3/14
12 rounds 5FU
Small bowel obstruction 8/14
Multiple nodules both lungs 6/15
FOLFIRI + ERBITUX started 8/11/15
Irinotecan reduced 40% , October
12/15 NED, holiday next 2 treatments, then 5FU only
Mets are back 3/16
Erbitux + Irinotecan only; dropping 5FU
CT Scan 6/16 shows mets still there
5/17 been on Erbitux only
chemo break for 3 months
5 mets now on CT Scan. Back to Erbitux
1/18 lung Mets all increased slightly
Adding Irinotecan back
Dx CRC 2/17/14
perm colostomy 3/14
12 rounds 5FU
Small bowel obstruction 8/14
Multiple nodules both lungs 6/15
FOLFIRI + ERBITUX started 8/11/15
Irinotecan reduced 40% , October
12/15 NED, holiday next 2 treatments, then 5FU only
Mets are back 3/16
Erbitux + Irinotecan only; dropping 5FU
CT Scan 6/16 shows mets still there
5/17 been on Erbitux only
chemo break for 3 months
5 mets now on CT Scan. Back to Erbitux
1/18 lung Mets all increased slightly
Adding Irinotecan back
Re: Scanxiety creeping in
Ct scan on October 7th. My first since surgery in January. Anxiety is definitely ramping up. Wishing only good news for all.
Happy Anniversary!
Happy Anniversary!
Stage III Rectal cancer
Dx 3/14
4/14-7/14 8 rounds Folfox
8/14-9/14 Radiation/Xeloda
1/15 APR colostomy
46 yo wife & mom
Dx 3/14
4/14-7/14 8 rounds Folfox
8/14-9/14 Radiation/Xeloda
1/15 APR colostomy
46 yo wife & mom
Re: Scanxiety creeping in
LB10 wrote:Ct scan on October 7th. My first since surgery in January. Anxiety is definitely ramping up. Wishing only good news for all.
Happy Anniversary!
LB- did you do adjuvant chemo?
Thanks.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.
-
PainInTheAss
- Posts: 678
- Joined: Tue Jul 02, 2013 3:08 am
Re: Scanxiety creeping in
I am actually trying to schedule my scan. The Onc didn't put the order in when I called last week to schedule. I'm hoping to get it done before the end of the month.
I am usually very positive, but the truth is the truth. No amount of positive thinking can change that. I am well aware that my scan can mean business as usual or back on the treatment roller coaster. This one is two years post surgery, so a clear scan will be a really big deal as far as stats go. I am expecting a clear scan so, not too nervous about it, but it looms like a dark cloud on the horizon of my current sunny day.
I am usually very positive, but the truth is the truth. No amount of positive thinking can change that. I am well aware that my scan can mean business as usual or back on the treatment roller coaster. This one is two years post surgery, so a clear scan will be a really big deal as far as stats go. I am expecting a clear scan so, not too nervous about it, but it looms like a dark cloud on the horizon of my current sunny day.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation
Re: Scanxiety creeping in
Yep, just found out I am scheduled for next week, a month earlier than I had planned. Still monitoring the lung nodules but also getting the full body CT. Yikes! Liking to think NED is still in the building. I am finally feeling really good. Anyway, good luck to all heading to the imaging tables.
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16
-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: Scanxiety creeping in
I get my first post surgery chest,abdominal, and pelvic ct scans with contrast October 5th. I am nervous about them. My GI surgeon said that I would have an appointment with him once the results are back. Good luck to everyone having scans!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: Scanxiety creeping in
No scan, but I have my monthly blood work appointment coming up on Thursday. Am trying hard to think positive but optimism definitely isn't my strong suit.
Good luck to all of us!
Good luck to all of us!
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
Re: Scanxiety creeping in
Diane
Sending my thoughts and prayers for a good scan. Just had my scans ex rays and blood work and all OK. The anxiety is always there but what a relief when you get the good results. Happy Anniversary you deserve all the best. Thank you for holding my hand for the past 4 years. Returning the support.
Sending my thoughts and prayers for a good scan. Just had my scans ex rays and blood work and all OK. The anxiety is always there but what a relief when you get the good results. Happy Anniversary you deserve all the best. Thank you for holding my hand for the past 4 years. Returning the support.
DXCCT3N2aMx 5/20LN
Folfox10/10-4/11
Scan 10-13-10,4-4-11,7-4-11,9-22-11,4-9-12,9-24-12,10-1-13,4-9-14,9-17-14,9-10-15,9-15-17NED,
CEA 1. Pre .6 7-4-11 .7 9-22-11 .6
1-13-12 .9 4-9-12 .7 9-24-12 .6 1-4-13 .8 10-1-13 .8 4-9-14 .7 9-17-15.8
Courage, Hope, Health
Folfox10/10-4/11
Scan 10-13-10,4-4-11,7-4-11,9-22-11,4-9-12,9-24-12,10-1-13,4-9-14,9-17-14,9-10-15,9-15-17NED,
CEA 1. Pre .6 7-4-11 .7 9-22-11 .6
1-13-12 .9 4-9-12 .7 9-24-12 .6 1-4-13 .8 10-1-13 .8 4-9-14 .7 9-17-15.8
Courage, Hope, Health
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Who is online
Users browsing this forum: No registered users and 185 guests