Shingles.... Seriously?

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ALW
Posts: 51
Joined: Tue Aug 11, 2015 9:07 am

Shingles.... Seriously?

Postby ALW » Wed Sep 16, 2015 8:19 pm

I just finished my 10th day of xeloda & radiation. I was laying on the table getting radiation and I had this stabbing pain by my belly button. They called in the radiation onc and he said it was well out of the blast zone. So after my treatment I went and talked to my oncologist. Thanks to a recent full body scan he could rule out tons of stuff... Not gallstones, nor kidney stones, nor appendix, nor diverticulitis. They did a urinalysis to check on my kidneys and they are just fine. The only possible thing he can think of it being is shingles as the pain is now going around in a circle, pretty much at my waistline. Now we are just waiting for blisters to form to confirm the shingles then they will start me on the meds for that.

I'm just going to put this out there- this month sucks like no other.
Aug '15 Dx rectal cancer stage 2a @ 41 years old
Sept '15 Radiation & Xeloda
12/3/15 LAR with temp ileo - 0/20 nodes
1/5/16 reversal done early due to complications
2/16 Started 5 rounds Xeloda

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Shingles.... Seriously?

Postby cathy123 » Wed Sep 16, 2015 8:47 pm

Ugh that stinks. Seems like a big coincidence that you got shingles right after starting chemo and radiation, but I guess stranger things have happened.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

ALW
Posts: 51
Joined: Tue Aug 11, 2015 9:07 am

Re: Shingles.... Seriously?

Postby ALW » Wed Sep 16, 2015 9:16 pm

cathy123 wrote:Ugh that stinks. Seems like a big coincidence that you got shingles right after starting chemo and radiation, but I guess stranger things have happened.

I think it's more than a coincidence. Chemo suppresses the immune system so that gives the varicella virus a chance to take over in the form of shingles. It just sucks. I'm having a "why me" day!
Aug '15 Dx rectal cancer stage 2a @ 41 years old
Sept '15 Radiation & Xeloda
12/3/15 LAR with temp ileo - 0/20 nodes
1/5/16 reversal done early due to complications
2/16 Started 5 rounds Xeloda

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Shingles.... Seriously?

Postby lpas » Wed Sep 16, 2015 9:36 pm

Ugh--I'm so sorry. Please feel free to whine all you want. Keeping fingers crossed that it resolves quickly.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

Nik Colon

Re: Shingles.... Seriously?

Postby Nik Colon » Wed Sep 16, 2015 10:02 pm

AngiLouWho wrote:I just finished my 10th day of xeloda & radiation. I was laying on the table getting radiation and I had this stabbing pain by my belly button. They called in the radiation onc and he said it was well out of the blast zone. So after my treatment I went and talked to my oncologist. Thanks to a recent full body scan he could rule out tons of stuff... Not gallstones, nor kidney stones, nor appendix, nor diverticulitis. They did a urinalysis to check on my kidneys and they are just fine. The only possible thing he can think of it being is shingles as the pain is now going around in a circle, pretty much at my waistline. Now we are just waiting for blisters to form to confirm the shingles then they will start me on the meds for that.

I'm just going to put this out there- this month sucks like no other.

Oh no! I had shingles when I was young which is very rare, but I remember the pain! So sorry :( mine was also in that area, actually that's how my parents found out I had chicken pox as mine were never detected or obviously very minor that they didn't know I ever had, but they said you have to have had chicken pox to get shingles

Nik Colon

Re: Shingles.... Seriously?

Postby Nik Colon » Wed Sep 16, 2015 10:09 pm

AngiLouWho wrote:
cathy123 wrote:Ugh that stinks. Seems like a big coincidence that you got shingles right after starting chemo and radiation, but I guess stranger things have happened.

I think it's more than a coincidence. Chemo suppresses the immune system so that gives the varicella virus a chance to take over in the form of shingles. It just sucks. I'm having a "why me" day!

Yeah, not the first time I heard someone on here getting shingles, so I would also think because our immune system is suppressed

ALW
Posts: 51
Joined: Tue Aug 11, 2015 9:07 am

Re: Shingles.... Seriously?

Postby ALW » Wed Sep 16, 2015 11:21 pm

ritz75 wrote:Oh no! I had shingles when I was young which is very rare, but I remember the pain! So sorry :( mine was also in that area, actually that's how my parents found out I had chicken pox as mine were never detected or obviously very minor that they didn't know I ever had, but they said you have to have had chicken pox to get shingles

I had chicken pox as a kid, but it was a very mild case... Like 3 pox was it. I've also heard that having mild chicken pox instead of a full blown breakout also increases your chance of developing shingles. That would make sense in your case as well.
Aug '15 Dx rectal cancer stage 2a @ 41 years old
Sept '15 Radiation & Xeloda
12/3/15 LAR with temp ileo - 0/20 nodes
1/5/16 reversal done early due to complications
2/16 Started 5 rounds Xeloda

Nik Colon

Re: Shingles.... Seriously?

Postby Nik Colon » Wed Sep 16, 2015 11:26 pm

AngiLouWho wrote:
ritz75 wrote:Oh no! I had shingles when I was young which is very rare, but I remember the pain! So sorry :( mine was also in that area, actually that's how my parents found out I had chicken pox as mine were never detected or obviously very minor that they didn't know I ever had, but they said you have to have had chicken pox to get shingles

I had chicken pox as a kid, but it was a very mild case... Like 3 pox was it. I've also heard that having mild chicken pox instead of a full blown breakout also increases your chance of developing shingles. That would make sense in your case as well.

Interesting, I never heard that

PainInTheAss
Posts: 668
Joined: Tue Jul 02, 2013 3:08 am

Re: Shingles.... Seriously?

Postby PainInTheAss » Thu Sep 17, 2015 6:54 am

I got shingles, too, last year. I totally get the "why me" feeling. I got it on my shoulder so I have shingles scars on one side and a port scar on the other. They are little groups of chicken pox like 8 here, 10 there, 6 here. When tney scab over it turns black! At Least mine did. At least they hit all at once so you don't keep getting more clusters once they all appear.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

Nik Colon

Re: Shingles.... Seriously?

Postby Nik Colon » Thu Sep 17, 2015 10:56 pm

All I remember was it was mostly on my back and they run along a nerve. I remember my mom putting some kind of cream or something on it and it would hurt. I also remember always recalling the pain like (in my words at the time) a hundred bees stinging me all at once. I believe the pain would come and go, my mom remembers it much better obviously as I was maybe somewhere around 5 or so

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CRguy
Posts: 10285
Joined: Sun Feb 10, 2008 6:00 pm

Re: Shingles.... Seriously?

Postby CRguy » Fri Sep 18, 2015 8:38 pm

Probably does not help much now for you ALW ...
BUTT having had a close relative with severe shingles, wifey and I both got the Zostavax vaccine a few years ago.
I figured CRC was enough fun for me so I would pass on the shingles opportunity :twisted:

sending healing vibes your way

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

megan120
Posts: 127
Joined: Mon Jun 16, 2014 10:54 pm

Re: Shingles.... Seriously?

Postby megan120 » Fri Sep 18, 2015 11:05 pm

I'm sorry. I had them pop up with my 7th round of folfox. They suck and mine was a pretty mild case, just a few on my side and back. Are you having pain around your whole waistline? Usually shingles follow the nerve and only effect one side. I hope you can figure it out quickly and get some relief soon.
36 year old mama to 3 (8,5,3)
Dx May 2014
Stage IV cc with met to cervix
2/134 pos LN
partial colectomy with temp ileostomy
folfox with avastin 6/14
Oct 14, hyst-mets to uterus, rt ovary implants
1/6/15 6 rounds of folfox
5/4/15 done with 28 tx chemo-rad
7/24/15 completion colectomy, NED!

DarknessEmbraced
Posts: 3578
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Shingles.... Seriously?

Postby DarknessEmbraced » Sat Sep 19, 2015 11:10 am

I hope you feel better soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

JDinNC
Posts: 771
Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

Re: Shingles.... Seriously?

Postby JDinNC » Sat Sep 19, 2015 5:29 pm

My GP gave me a prescription for the shot. At Walmart it would have cost close to $300.00. Doesn't any insurance company pay for it?

Jan
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED

SugarBubbie
Posts: 239
Joined: Sun Jun 12, 2011 3:55 pm
Facebook Username: Rhonda Pinkston
Location: Texas

Re: Shingles.... Seriously?

Postby SugarBubbie » Sat Sep 19, 2015 6:18 pm

I got shingles after my first round of chemo......had onc give me the big blue pills to help. They work, but hard to get down the throat. MD Anderson would not let me get the vaccine while on chemo. Also, cannot get it if you have active outbreak. I've also discovered that I can take the supplement L-Lysine to help clear it up. A lot cheaper than the prescription and for me works just as good. That's after all chemo is finished.

Certain foods can trigger an outbreak in me also, so no peanuts, almonds or watermelon. Excessive heat can also bring it on so I limit my outdoor exposure to our wonderful Texas heat.

Hope this helps
Rhonda
DX Stage II anal cancer 2007 age 57
Radiation 6 weeks, Xeloda/oxilaplatin
DX Breast cancer Jun 2011 Stage3 one lymph nodes
Taxol 12 weeks FAC 4 tx, 31 radiations
5 year survivor certificate from MDA 2012 for anal cancer
DX triple neg bc oct 2015 4 rounds adriamyicyn, 20 radiations
"Positivity has no downside"


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