Bad Update on my DH's CT

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Bad Update on my DH's CT

Postby ilivebyfaith » Wed Sep 16, 2015 5:05 pm

As we were really hopeful in doing the laser thing in Germany, we got the latest scan results and it showed progression in lung mets size and possibly new hepatic lesions, 3 on each side.

Here's the mets update as per scans:
March 2015 - 120+ lung mets, no other spread (folfiri + erbitux)
June 2015 - Lung mets Reduction in number and size, not defined exactly how many lesions. No other spread. ( folfirinox plus Avastin)
September 2015 - Lung mets increased in size , with lung nodes 35-L and 26-R , (possible) hepatic spread, 3 on each side,biggest being 1.8x2.4x1.8cm (folfirinox plus Avastin)

We will consult our onco today and discuss our options. She mentioned only thru our phone conversation that she might put my husband on oral chemo, not sure if Stivagra is the name.

I've already researched about it and it is not that popular because of its side effects, haven't gotten any news also regarding its efficacy.

I will still mail my husband's latest cd in Germany and try to get Dr Rolle's opinion regarding my husband's condition.

I've learned about this only yesterday and decided not to tell my husband yet, as he was on an all day meeting yesterday and wanted to spare him of this news until today. Might let the doctor be the one to explain the latest results and treatment plan to him.

I've poured a hefty cry yesterday until there's no more tears left, right now I feel numb and still crying On the inside. I have called his mom to go with us, for her to hear the treatment options as well. Im in my valley. I feel as if I'm drowning. I'm so clueless and don't know what else we can do.
Last edited by ilivebyfaith on Wed Sep 16, 2015 5:43 pm, edited 3 times in total.
Carer to DH 42, DX MCRC IV mets liver,lungs 9/9/14;Wild type, KRAS/NRAS nonmutant; Folfox 3x Folfox+Vectibix 3x CTscan, liver mets gone, colon tumor 12 to 15cm, lung mets inc (31-R, 19-L); Change: FOLFIRI + erbitux 6x, colon and liver clear, progress in lungs. Change: folfirinox + Avastin 12x, lung metastasectomy, molecular profiling, folfiri + erbitux, progression, will be switched to stivarga PRAISE GOD FOR HIS FAITHFULNESS!

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Re: Bad Update on my DH's CT

Postby ziggymonster » Wed Sep 16, 2015 5:35 pm

I am very sorry to hear the news, you have every right to a meltdown....embrace it for a brief time, then regroup and get ready for the fight that lies ahead...there is still hope.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

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Re: Bad Update on my DH's CT

Postby stu » Wed Sep 16, 2015 5:46 pm

Really sorry to read this. You have just received some good advise. Treatment options are still being offered and that's a big thing. Hope they get a plan for him soon.
Much love,
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Posts: 309
Joined: Sun Aug 10, 2014 10:32 pm

Re: Bad Update on my DH's CT

Postby Danieljt » Wed Sep 16, 2015 6:03 pm

So sorry for your anguish. Hoping you get a good plan and good results. Hugs to your husband. May he stay strong.
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.

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Joined: Mon May 11, 2015 9:33 pm

Re: Bad Update on my DH's CT

Postby jhocno197 » Wed Sep 16, 2015 6:30 pm

I'm so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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Re: Bad Update on my DH's CT

Postby Sams wife » Wed Sep 16, 2015 7:20 pm

Sorry. : (
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5

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Joined: Tue Feb 17, 2015 8:00 pm

Re: Bad Update on my DH's CT

Postby JENNJ » Wed Sep 16, 2015 8:43 pm

I'm so sorry to hear about this. Have you looked into the TIL trial at NIH? That may be something worth looking into. There are so many trials out there, it can be overwhelming. Keep pushing for trials, testing etc. Has MSS/MSI testing been done?
Best wishes

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Joined: Tue Aug 11, 2015 9:07 am

Re: Bad Update on my DH's CT

Postby ALW » Wed Sep 16, 2015 9:22 pm

I'm so sorry :(
Aug '15 Dx rectal cancer stage 2a @ 41 years old
Sept '15 Radiation & Xeloda
12/3/15 LAR with temp ileo - 0/20 nodes
1/5/16 reversal done early due to complications
2/16 Started 5 rounds Xeloda

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Location: Austin, Texas (University of Tennessee alumnus)

Re: Bad Update on my DH's CT

Postby ANDRETEXAS » Wed Sep 16, 2015 10:05 pm

ziggymonster wrote:I am very sorry to hear the news, you have every right to a meltdown....embrace it for a brief time, then regroup and get ready for the fight that lies ahead...there is still hope.

I agree.
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
3/23- clean CT
2/22- clean CT
3/21 - clean CT
4/11 - clean colonoscopy
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023


Nik Colon

Re: Bad Update on my DH's CT

Postby Nik Colon » Wed Sep 16, 2015 10:14 pm

So sorry :( Best wishes

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Joined: Fri Jul 04, 2014 4:53 pm

Re: Bad Update on my DH's CT

Postby behconsult » Thu Sep 17, 2015 7:28 am

I'm sorry that you have to feel this angst and pain. I pray that you feel comforted and supported through this ordeal. You are courageous. Bob
Stage 4 Age 56 BrafV660E 5/14
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT

Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Bad Update on my DH's CT

Postby cathy123 » Thu Sep 17, 2015 8:52 am

so very sorry...

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

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Joined: Sun Apr 16, 2006 4:09 pm

Re: Bad Update on my DH's CT

Postby Lee » Thu Sep 17, 2015 10:25 am


I am so sorry for this news. You have every right to a cry and a meltdown. ((((HUG))).

I hope Dr. Rolle is able to do something as well as hubby Onc.

Swinging chickens that a plan of action is coming your way.

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Location: Silverton OR

Re: Bad Update on my DH's CT

Postby exaussie » Thu Sep 17, 2015 10:41 am

Now that you have heard the news and had your meltdown and believe me I know a lot about that, research all options. If you haven't had 2nd or 3rd opinion at a well known cancer hospital, do it now. Hard news is handled better when there's a plan of attack. KNOW all options, have very truthful conversations, talk about everything and nothing. Keep looking to the future-it does help the patient. My son was very very ill and what kept him going was planning a wedding. He lay in bed that morning and listened to the house buzzing getting ready for his wedding day with his beloved. Do plan things as if there is a future because there just may be one.
And one thing we learned was keep things as normal as possible, don't bite your tongue if you don't agree with them, as much as I love my son he was very stubborn and loud and cantankerous at times. I would call him on it just as I would if he didn't have cancer.
Find your support circle and we told our friends do not climb down into the hole we are in, stand on the edge and hoist us up!
Love and healing thoughts sending your way.
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

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Re: Bad Update on my DH's CT

Postby DarknessEmbraced » Thu Sep 17, 2015 3:16 pm

I'm sorry!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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