Excited! Anyone have any good news, personal or anything?
We can get through this!
Good news thread
-
Nik Colon
Good news thread
So, my last tx with steroids and 5fu is on the 22nd! CT in October, and then just hope future scans stay that way. They said about 3 month off iri til hair gets full again and it's been over a month I believe! Can't wait til most of this is over, beside the future scans and such. Hopefully the fatigue will get less over time also Excited!
Anyone have any good news, personal or anything?
We can get through this!
Excited! Anyone have any good news, personal or anything?
We can get through this!
Re: Good news thread
Congrats! Very happy for you!
For more good news: I'm 8 weeks away from 3-year survival - 6 weeks from 2-year NED. Counting . . . .
Leon
For more good news: I'm 8 weeks away from 3-year survival - 6 weeks from 2-year NED. Counting . . . .
Leon
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!
Re: Good news thread
Congratulation , Ritz
I know you've been having some rough times lately. Just remember.....it's all about the fight! There's a lot of folks that are also hitting those bumps...but are still here to fight.
Once all the nastiness is out of your body....you'll feel so much better and positive.!
Stay strong and stay happy.
Jan
I know you've been having some rough times lately. Just remember.....it's all about the fight! There's a lot of folks that are also hitting those bumps...but are still here to fight.
Once all the nastiness is out of your body....you'll feel so much better and positive.!
Stay strong and stay happy.
Jan
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED
-
Frenchie's Wife
- Posts: 959
- Joined: Sat May 04, 2013 1:01 pm
- Location: Alberta, Canada
Re: Good news thread
So happy to see that your almost over the hump. Hope your hair comes back normal. With my hair, each strand seems to have its unique hair style. I have to keep it super short or I start looking like a mad scientist !! I will be 6 years stage 4 on the 18th.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017
-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: Good news thread
Congratulations Ritz, Leon and Frenchie! Very happy for you all!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: Good news thread
ritz75 wrote: They said about 3 month off iri til hair gets full again and it's been over a month I believe! Can't wait til most of this is over,
I was on FOLFOX, I was about 6 months out when I got a new hair style. I was real easy to see chemo hair vs my normal hair.
Congratulations on getting this far. It is a major step
Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
-
Joannerogers
- Posts: 260
- Joined: Tue Jun 16, 2015 4:50 pm
Re: Good news thread
Great news, I'm so happy for you. My good news tidbit is that I've got a surgery consult sept 24 at Vanderbilt university hospital! I'm hoping the surgeon, who is a transplant surgeon, will say yes I can do your surgery! Will update once I've consulted with him.
Congrats to all who replied with their good news and the long time survivors! Anyone else have good news?
Congrats to all who replied with their good news and the long time survivors! Anyone else have good news?
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver
10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver
10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
-
Nik Colon
Re: Good news thread
Thank you all, it's great to hear good news. I am wishing you all the best
Re: Good news thread
Woohoo to positive threads! Just to add to the energy, my mom is doing really well. So well, that she kind of has her own life again. For quite a while, I needed to see or talk with her everyday due to Dr appointments, prescriptions, side effects, etc. Now she's handling most of it all on her own. She even went to the last dr appointment without me (the first onc appt ever). He said to her, "I don't even need to ask how you're doing. You must be doing fine if your daughter let you come by yourself!" Lol. Here's to more and more good news throughout the board!
Daughter to Mom, age 71
Dx 10/14 RC - T3bN1bM0
Chemoradiation til 1/15
Surgery 2/15
Temp ileostomy
Failed Xelox round 4/15
1 round straight Xeloda 5/15 - discontinued
Ileo reversal 5/15
8/15 more Xeloda
Dx 10/14 RC - T3bN1bM0
Chemoradiation til 1/15
Surgery 2/15
Temp ileostomy
Failed Xelox round 4/15
1 round straight Xeloda 5/15 - discontinued
Ileo reversal 5/15
8/15 more Xeloda
Re: Good news thread
Three cheers for good news!! Congrats to all of you and keep the good news coming!
Judy
Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4
Re: Good news thread
I was worried I had a melanoma recurrence (which would have made me a DOUBLE Stage IV CRC AND melanoma) but I got the call today, pathology came back benign - no melanoma recurrence!
-DK
-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List
-
Nik Colon
Re: Good news thread
DK37 wrote:I was worried I had a melanoma recurrence (which would have made me a DOUBLE Stage IV CRC AND melanoma) but I got the call today, pathology came back benign - no melanoma recurrence!
-DK
That's definitely good news!
-
Nik Colon
Re: Good news thread
LeonW wrote:Congrats! Very happy for you!
For more good news: I'm 8 weeks away from 3-year survival - 6 weeks from 2-year NED. Counting . . . .
Leon
Awesome!
-
Nik Colon
Re: Good news thread
Frenchie wrote:So happy to see that your almost over the hump. Hope your hair comes back normal. With my hair, each strand seems to have its unique hair style. I have to keep it super short or I start looking like a mad scientist !! I will be 6 years stage 4 on the 18th.
Great to hear from you Frenchie! Keep on truckin!
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Who is online
Users browsing this forum: Google [Bot], roadrunner and 137 guests