Had my 1st colonoscopy today - found a 5 cm mass & I'm terrified

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cecioboe
Posts: 597
Joined: Mon Oct 17, 2011 9:08 pm
Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: Had my 1st colonoscopy today - found a 5 cm mass & I'm terrified

Postby cecioboe » Mon Mar 21, 2016 10:08 pm

Jim had stage 4 rectal cancer (that was very low) and with radiation to shrink it, chemo kill it, and a highly skilled surgeon, is cancer free for 4 years. Try not to freak out as there is always hope.

Best wishes, Ceci
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
NED since 10/22/12
De-ported 6/24/16

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mmblz
Posts: 54
Joined: Sat Oct 10, 2015 3:03 pm

Re: Had my 1st colonoscopy today - found a 5 cm mass & I'm terrified

Postby mmblz » Fri Mar 25, 2016 9:27 am

Soccermom2boys wrote:Just giving you a heads up you may be sore after that port insertion. I totally was blindsided by that, was thinking because it was a fairly small outpatient procedure it wouldn't be so bad, but I was crazy sore for days, like someone used my left shoulder area as a punching bag. After getting through the APR surgery with only needing Tylenol extra strength a few times, I was shocked how sore I was from that port.


Yup, I got really discouraged after surgery because I wasn't expecting it either. But after a couple of days it was fine and once healed I hardly notice it and was so happy to have it for infusions.
40yo married 16 years. 4 kids 12, 10, 7, 5
2015-09-21 colonoscopy finds tumor in sigmoid, partial obstruction
2015-09-22 CT no mets, path G2 adenocarcinoma, CEA 1.2
2015-09-29 lap hemicolectomy at MSKCC
2015-10-06 pT3 N1a M0 stage IIIB
2015-10-22 folfox started - 12 rounds, last 4 no oxaliplatin
2016-10-27 clear CT !

AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: Had my 1st colonoscopy today - found a 5 cm mass & I'm terrified

Postby AnnClare » Sat Mar 26, 2016 11:13 am

Y'all were so right about the post-op port surgery soreness. I was not expecting that! Thankfully I made it through without needing pain meds, not even OTC stuff. One thing I do notice, and I'm hoping this goes away, is that when I take a deep breath, I feel some tightness in my upper right pec region (port is on the left). The sensation sometimes radiates up into my neck (most noticeable there when I'm lying in bed at night and also if I bend over at the waist. When I kissed my pup last night at bedtime, it was like, "Geeze - THAT'S an uncomfortable sensation." I'm guessing this is all related to the manipulation that went on during surgery, since I wasn't having it before that time. It's just odd because it's on the opposite side of where the port is.
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

Soccermom2boys
Posts: 218
Joined: Tue Nov 10, 2015 10:29 pm

Re: Had my 1st colonoscopy today - found a 5 cm mass & I'm terrified

Postby Soccermom2boys » Sat Mar 26, 2016 8:47 pm

Hey! Glad to hear you didn't need much in the way of meds after your port insertion. Yeah, I would say give it a good two to three weeks before you do truly forget that the port is there. I definitely felt odd twinges throughout the upper chest/neck area those first few weeks afterward and attributed it to the neck manipulation and sure enough now I feel "normal"--ha ha, as normal as one in our position can feel, right?! Because your chemo will attach to the port you will obviously feel the pull on it a bit, but not painful, just that you feel it more is all. While disconnect day for me can be the start of a tiring period, I just love the freedom from the pump (and I am fortunate my insurance pays for the small tennis ball sized one). One more thing to get used to, but we colorectal cancer people are just so adaptive! :)
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

MHL888
Posts: 13
Joined: Wed Feb 25, 2015 11:53 am
Location: Twickenham (Greater London), UK

Re: Had my 1st colonoscopy today - found a 5 cm mass & I'm terrified

Postby MHL888 » Sun Mar 27, 2016 6:18 am

Hi AnnClare,

I also had my port put in on the left so the seatbelt wouldn't cross it when I drive (I'm in the UK).

I had the exact same pain you describe on the opposite side of the port; wierd huh?

No-one really paid me any notice when I described it, but good news is it went away on it's own over a few weeks. Hope it goes the same for you.

Only impact I had for the remaining year of port life was a limit to strength exercises with arms raises. Maybe I could have, but it felt needlessly risky.

FWIW, I was perfectly comfy doing press-ups (gently), and riding a road bike.

Cheers,

Micah
11/2014 diagnosed sigmoid adenocarcinoma (rT3N1Mx) @ 47 after 2 years of missed opportunity for earlier diagnosis :-(
Randomised to treatment branch of FOXTROT trial (split chemo regime, both pre & post op)
LAR 10/02/2015 - staging pT2N2Mx, 6/29 LN with LVI confirmed
CT scan 17/03/2015, looking good so far (everything crossed) Mx now M0 (for now). 13/04/2015 Chemo restarted, 9 rounds more . Bleachh.
03/09/2015 Last of 12 rounds of Folfox.

AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: Had my 1st colonoscopy today - found a 5 cm mass & I'm terrified

Postby AnnClare » Tue Mar 29, 2016 9:59 am

Soccermom & Micah ~ so glad to know I'm not alone in that odd, opposite side discomfort! When the nurse was about to begin my infusion yesterday, she asked if I was experiencing any pain, so I mentioned that. She looked at me as if I had two heads. "It's on the OPPOSITE side of your port? Hmm. That's strange. I don't know about that - we should call your surgeon and mention that first." So much for putting me at ease! Turns out they had to order an x-ray anyway because she couldn't get blood to draw from the port. X-ray showed placement was fine and after a 3 hour delay, we began.

I'm happy to say that the sensation is greatly diminished - guess it was like y'all said, all that manipulation they did during surgery. Who knows what the heck goes on while we're knocked out, right? :? Part of me would love to see video of it, but part of me would rather not know. I don't think I could handle it.
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

Soccermom2boys
Posts: 218
Joined: Tue Nov 10, 2015 10:29 pm

Re: Had my 1st colonoscopy today - found a 5 cm mass & I'm terrified

Postby Soccermom2boys » Tue Mar 29, 2016 10:36 pm

At the end of the day, it's those little things that no one but those of us going through it can answer. They just can't know and then they can get you worked up that something is wrong because they just don't have first hand knowledge to say it's a normal feeling.

I agree, in some ways would be interesting to "see" what they do to us when we are out for these procedures, but then again, somethings are also best left a mystery I guess.

Glad to hear it is becoming less noticeable. I truly can forget I have the port unless I see myself in the mirror. Sounds like the week or so of discomfort is worth it as I have read other people's painful experiences with trying to do infusions in their arms. Still surreal all that has happened to us physically since we were diagnosed, huh? And yet we are still hanging in there. :)
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox


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