License to poop

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helen098
Posts: 2009
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

License to poop

Postby helen098 » Tue Sep 08, 2015 2:20 pm

Saw my colon doc recently and he says while my muscle tone is good when I engage the muscles
When not in use there is some loss of muscle tone. This is due to the 5 surgeries I had to fix the anal
fistula not the colon cancer, which did shorten my colon and the part they took out is a connector which slows thing down. It’s weird but I can feel and hear water rushing through my colon sometimes.
With the loss of muscle some gas (it I am lucky) can escape.

This summer I have had many pooping incidents… don’t know what caused it
I pooped in the supermarket, the shower (that was a definite sneak attack), in staples (this was fun I went next store to Trader Joes bathroom and was standing there trying to decide if it was better to so commando or keep the underwear on in case it happened again :roll: ….i decided to go commando and used many paper towels as I kind of diaper, got home without incident but boy did I have a rash from the paper towels :twisted: , just this weekend I was using a baby wipe to make sure everything was nice and clean and my insides decided I will poop right now well I had the box of baby wipes open and it was almost empty so I pooped in the baby wipe box…..don’t think that was what huggies though they would be used for. I also had a major farting incident on the E train, I have to apologize to the nice family from the Midwest I guess, they were too pale and too polite to be New Yorkers, they were kind of in the wrong place at the wrong time but to their credit that acted like nothing happened and I was very grateful.

I would like to say things will get better but I know for a fact short of a miracle I will continue farting and pooping for many years to come…

Extra underwear and baby wipes make life a lot easier :shock: :D
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

Nik Colon

Re: License to poop

Postby Nik Colon » Tue Sep 08, 2015 3:05 pm

Oh no, so sorry, have you tried depends, they have newer thinner ones more like underwear.

helen098
Posts: 2009
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

Re: License to poop

Postby helen098 » Tue Sep 08, 2015 3:09 pm

the new depends are better than the old ones but still not like underwear and kind of expensive
plus in the summer that are so hot to wear
the problem is that it does not happen all the time i can go months without an accident and i don't like to wear the depends all the time
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

Nik Colon

Re: License to poop

Postby Nik Colon » Tue Sep 08, 2015 3:13 pm

Yeah, I get it. I haven't worn underwear for many years now due to a surgery yrs ago and got used to it. I may have to now tho when I go out just in case. Although underwear wouldn't have helped my last incident.

PainInTheAss
Posts: 678
Joined: Tue Jul 02, 2013 3:08 am

Re: License to poop

Postby PainInTheAss » Wed Sep 09, 2015 12:30 am

This reminds me of the last few months before surgery. I had to run into a Subway pooping in my underwear while I was walking to the bathroom. Except I was wearing a skirt! I was so afraid some was going to fall on the floor. What a mess. I feel you.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

helen098
Posts: 2009
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

Re: License to poop

Postby helen098 » Wed Sep 09, 2015 3:25 pm

that must have been horrible lucky i have been wearing pants or shorts for all of my incidents
though many times i am worried about something falling out :shock:

can't imagine how bad it would be in a skirt

i now have an emergency kit with me even if i am just going to the supermarket
should probably bring it when i do the laundry as i have pooped there and there wasn't enough time to go home and clean up so i stood outside and prayed no one came over to talk to me
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

Nik Colon

Re: License to poop

Postby Nik Colon » Thu Sep 10, 2015 2:12 am

I just bought the depends silhouette low rise, not too bad, still would need to get used to, prob only wear on long trips or to the beach, etc. Places with alot if walking and bathrooms far away too, not sure yet. I should start using them around the house to try to get used to them, altho I don't think I could every day unless absolutely needed.

Carolinabluetec
Posts: 415
Joined: Wed May 28, 2014 11:52 am
Location: Greenville, SC

Re: License to poop

Postby Carolinabluetec » Thu Sep 10, 2015 8:06 am

You need a license to poop now? :shock: Big government is out of control!! I demand license free and unrestricted pooping rights. Power to the poople!! :mrgreen:
03/14 DX Adenocarcinoma Sigmoid Polyp
05/14 Da Vinci Sigmoid Colectomy
06/14 T3N0Mx, staged IIa
07/14 Xeloda 3000 mg/day 14 on/7 off 8 rounds
12/14 Finished Chemo
01/15 CT NED :D
07/15 Colonoscopy NED :D
08/15 CT NED :D
03/16 CT NED 8)

Nik Colon

Re: License to poop

Postby Nik Colon » Fri Sep 11, 2015 1:33 am

Carolinabluetec wrote:You need a license to poop now? :shock: Big government is out of control!! I demand license free and unrestricted pooping rights. Power to the poople!! :mrgreen:

Lol! :lol:

Jachut
Posts: 1137
Joined: Mon Sep 26, 2011 11:16 pm
Facebook Username: hutchinson@aanet.com.au

Re: License to poop

Postby Jachut » Fri Sep 11, 2015 3:28 am

I admire your humour. I don't know how you tolerate it. I had nothing like that kind of problem and I am MUCH happier with a colostomy. For me, its absolutely normal or nothing.

helen098
Posts: 2009
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

Re: License to poop

Postby helen098 » Fri Sep 11, 2015 8:14 am

If you can't laugh about pooping in your
Pants at 50 well then it would be real bad

When it happens I get angry/mad then in a little while I can joke about it
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

PainInTheAss
Posts: 678
Joined: Tue Jul 02, 2013 3:08 am

Re: License to poop

Postby PainInTheAss » Fri Sep 11, 2015 5:57 pm

I have a colostomy but I have to worry about pee now. If I ignore the pressure for too long, a little will leak out. Sometimes my bladder releases as I'm sitting on the toilet. It's gotten better now that my would is almost healed, but I still have to be careful. At least it doesn't hurt to pee anymore.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation


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