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Peri Involvement

Posted: Mon Sep 07, 2015 3:54 am
by Cherie
I'm leaning away from HIPEC with the advice my cancer would come back. I'm looking for anyone out there who has done some other kind of treatment to help keep their peri cancer at bay.

Re: Peri Involvement

Posted: Mon Sep 07, 2015 8:03 pm
by DK37
Hi Cherie,

Do you happen to know if you are MSI-high vs. MSS? That is always my first question when I don't see it in signature lines since I now know multiple stage IV MSI-CRC patients responding to PD-1/PD-L1 inhibitor immunotherapies - but they are all MSI-high...

Within my knowledge base (basically the science of therapeutic medicines approved & in clinical trials) - sorry I just don't know much about additional possible surgical, radiation etc. non-drug options - I'm not saying they don't exist but that I simply don't know the subject matter.

I see that you are in New Zealand so I'm not sure if clinical trials are an option for you there.

Please find out your MSI status. You may be able to get compassionate use in New Zealand if you are MSI-high!

Take care,
-DK

Re: Peri Involvement

Posted: Mon Sep 07, 2015 8:11 pm
by NZJay
Cherie:
You've said it yourself; your cancer appears to be an extremely slow growing one.

Just because it will come back, does not make ME feel it would be a pointless exercise.

Let's say, hypothetically, HIPEC gets rid of the cancer for one entire year, and at that stage you are just back to the same situation you are in now. Wouldn't that be better than simply letting it grow that entire year and being in a far more advanced situation?

Just because it may not CURE you, does not mean it's pointless.