Peri Involvement

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Cherie
Posts: 590
Joined: Fri Jul 12, 2013 11:20 am
Facebook Username: cherie
Location: New Zealand

Peri Involvement

Postby Cherie » Mon Sep 07, 2015 3:54 am

I'm leaning away from HIPEC with the advice my cancer would come back. I'm looking for anyone out there who has done some other kind of treatment to help keep their peri cancer at bay.
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

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DK37
Posts: 510
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

Re: Peri Involvement

Postby DK37 » Mon Sep 07, 2015 8:03 pm

Hi Cherie,

Do you happen to know if you are MSI-high vs. MSS? That is always my first question when I don't see it in signature lines since I now know multiple stage IV MSI-CRC patients responding to PD-1/PD-L1 inhibitor immunotherapies - but they are all MSI-high...

Within my knowledge base (basically the science of therapeutic medicines approved & in clinical trials) - sorry I just don't know much about additional possible surgical, radiation etc. non-drug options - I'm not saying they don't exist but that I simply don't know the subject matter.

I see that you are in New Zealand so I'm not sure if clinical trials are an option for you there.

Please find out your MSI status. You may be able to get compassionate use in New Zealand if you are MSI-high!

Take care,
-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: Peri Involvement

Postby NZJay » Mon Sep 07, 2015 8:11 pm

Cherie:
You've said it yourself; your cancer appears to be an extremely slow growing one.

Just because it will come back, does not make ME feel it would be a pointless exercise.

Let's say, hypothetically, HIPEC gets rid of the cancer for one entire year, and at that stage you are just back to the same situation you are in now. Wouldn't that be better than simply letting it grow that entire year and being in a far more advanced situation?

Just because it may not CURE you, does not mean it's pointless.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection


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