UPDATE advice needed - I'm in the hospital with ovarian cyst

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arizona mom
Posts: 127
Joined: Thu May 08, 2014 10:25 am

UPDATE advice needed - I'm in the hospital with ovarian cyst

Postby arizona mom » Sun Sep 06, 2015 9:23 am

Hello friends,

I'm a nervous wreck and I'm hoping to get some support while I wait to talk to a doctor.

I had surgery for stage 4 colon cancer july 14. I completed chemo Dec 14. I have had regular clear scans, last one was June 18th (2 1/2 months ago).

Last Tuesday, I had colonoscopy that was all clear. On Thursday, I started have abdominal pain that was really only present when I was moving (standing up, walking, moving in bed, etc). Last night (Sat), I decided I should probably get it checked out. It was getting worse and I developed a slight fever.

CT scan showed a large (16-9cm!) cyst on on near my ovary. The ER doctor said it was probably not colon cancer mets because it was fluid filled. Any chance he is telling the truth? Does he know what is is talking about? Is it possible for a CC met to grow that big in 2 1/2 months? What does that mean if it is colon cancer?

What questions should I be asking?

Thank you all so much!

Lara
Last edited by arizona mom on Wed Sep 09, 2015 8:11 pm, edited 1 time in total.
47 yrs mom of 4
5-7-14 - dx stage IV-3 liver mets. CEA 76
5-20-14 Folfox w/Avastin
7-24-14 - Colon/liver resection and HAI implant at MSKCC
11-18-2014 - scan- NED!
12-19-14 finished 12 treatments of Folfox (dropped Oxali after 9)
2-19-15, 6-18-15 clean scans - NED
9-11-15 mets in ovaries - hysterectomy - CEA 1.0
Folfiri 10/15 to 3/16
3-24-16 CT scan NED
7-1-16 It's back. 1cm in lung and 3 peri mets. :(

stu
Posts: 1396
Joined: Sat Aug 17, 2013 5:46 pm

Re: advice needed - I'm in the hospital with ovarian cyst

Postby stu » Sun Sep 06, 2015 9:33 am

Hi.
Yes on this occasion I think he does. I have been reading a lot on cystic presentation this week due to a current problem I am experiencing and they appear quite differently to a solid mass. I am no radiologist but from what I have read they are quite different on presentation. Have a quick google search and you will see the difference .
Hang on in there. Its a bump on the road. Hope they get the pain under control.
Kind thoughts
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

AngelaN
Posts: 206
Joined: Tue Jan 28, 2014 9:00 pm
Facebook Username: angelamnicholas

Re: advice needed - I'm in the hospital with ovarian cyst

Postby AngelaN » Sun Sep 06, 2015 10:09 am

Hi Stu
Actually much more likely to be benign in this situation. A cyst is NOT a tumor, it's a fluid filled structure and is very obvious on radiology studies. Multiple physicians have reassured me that TYPICALLY colon cancer does not grow fast. For sure cysts grow that fast.
How old are you? Are you post menopausal (prior to the chemo etc)?
DH diagnosed with Stage 4 CRC Nov 2013
11 tx Folfox/Avastin; LAR/liver resection/introp RF of liver - May 2014
3 treatments FOLFIRI
Lung resection - Sept 2014
FOLFIRI + Avastin x 10 treatments
Avastin+5FU q3 weeks x 4
SBRT x 1 lung met
RFA for remaining 3 in Oct and Nov
SBRT for liver met Jan 16
lung mets growing
Enrolled in NIH TIL trial Oct 16
XRT for lung met 12/16
Cells didnt grow for TIL trial Feb 17
Waiting for NCT03085914 at Penn

arizona mom
Posts: 127
Joined: Thu May 08, 2014 10:25 am

Re: advice needed - I'm in the hospital with ovarian cyst

Postby arizona mom » Sun Sep 06, 2015 12:18 pm

Thank you both for your reassurances. It means so much to me as I'm waiting for the doctors to visit.

The oncologist on call just stopped by. He agrees that it doesn't look like cancer because it is primarily fluid. The report says that it is "septated" with can be an indicator of cancer, but it also says "no overt solid components." The are going to do cea and ca-125 blood tests to be double sure.

After hearing about the HAI pump, the onc is wondering if this cyst might have been caused by a leak in the pump. Last time it got flushed, it was empty, but we filled it anyway. So maybe my abdomen is being filled with that glucose saline solution somehow.

thanks again for being with me through this.

Lara
47 yrs mom of 4
5-7-14 - dx stage IV-3 liver mets. CEA 76
5-20-14 Folfox w/Avastin
7-24-14 - Colon/liver resection and HAI implant at MSKCC
11-18-2014 - scan- NED!
12-19-14 finished 12 treatments of Folfox (dropped Oxali after 9)
2-19-15, 6-18-15 clean scans - NED
9-11-15 mets in ovaries - hysterectomy - CEA 1.0
Folfiri 10/15 to 3/16
3-24-16 CT scan NED
7-1-16 It's back. 1cm in lung and 3 peri mets. :(

arizona mom
Posts: 127
Joined: Thu May 08, 2014 10:25 am

Re: advice needed - I'm in the hospital with ovarian cyst

Postby arizona mom » Sun Sep 06, 2015 12:50 pm

Angela,
I'm 47. I'm still having periods. They took a break during chemo, but they are back now.
47 yrs mom of 4
5-7-14 - dx stage IV-3 liver mets. CEA 76
5-20-14 Folfox w/Avastin
7-24-14 - Colon/liver resection and HAI implant at MSKCC
11-18-2014 - scan- NED!
12-19-14 finished 12 treatments of Folfox (dropped Oxali after 9)
2-19-15, 6-18-15 clean scans - NED
9-11-15 mets in ovaries - hysterectomy - CEA 1.0
Folfiri 10/15 to 3/16
3-24-16 CT scan NED
7-1-16 It's back. 1cm in lung and 3 peri mets. :(

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: advice needed - I'm in the hospital with ovarian cyst

Postby Stanfordmom » Sun Sep 06, 2015 5:18 pm

Hi Lara,

Hugs to you, and pray that your ovary thing is a cyst.

Also did you call up your Sloan oncologist it surgeon about this? they might offer some good advice about pump leaks.

Thinking of you,

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

User avatar
rwightman
Posts: 211
Joined: Sat Jan 17, 2015 6:50 pm
Location: Southwest

Re: advice needed - I'm in the hospital with ovarian cyst

Postby rwightman » Sun Sep 06, 2015 5:41 pm

Lara, they found an ovarian cyst during my HIPEC and removed it. I wouldn't worry prematurely. Women get cysts on a regular basis throughout their cycle and most of them resolve themselves before they are even detected. My cyst was biopsied and it was nothing - just a cyst.
10/9/14 DX Age 50 - MSS
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU

arizona mom
Posts: 127
Joined: Thu May 08, 2014 10:25 am

Re: advice needed - I'm in the hospital with ovarian cyst

Postby arizona mom » Sun Sep 06, 2015 6:52 pm

Good to see you Sha and Romy!

I'm still at the hospital...waiting. I feel much better that the CEA test came back as 1.0. We are still waiting on the results on the ovarian cancer marker and a gyno onc is supposed to stop by give me the results of my ultrasound.

I was starting to get anxiety about my next CEA and CT scan coming up in the next month or so...I got those over with like pulling off a band aide. I didn't drink the nasty prep for the CT scan, but I'm hoping that with the clear colonoscopy last week as the alternative to the drink, I can let the ER CT scan stand for 3-4 months.

Thanks for checking in,
Lara
47 yrs mom of 4
5-7-14 - dx stage IV-3 liver mets. CEA 76
5-20-14 Folfox w/Avastin
7-24-14 - Colon/liver resection and HAI implant at MSKCC
11-18-2014 - scan- NED!
12-19-14 finished 12 treatments of Folfox (dropped Oxali after 9)
2-19-15, 6-18-15 clean scans - NED
9-11-15 mets in ovaries - hysterectomy - CEA 1.0
Folfiri 10/15 to 3/16
3-24-16 CT scan NED
7-1-16 It's back. 1cm in lung and 3 peri mets. :(

CM35
Posts: 265
Joined: Tue Dec 03, 2013 1:16 pm

Re: advice needed - I'm in the hospital with ovarian cyst

Postby CM35 » Sun Sep 06, 2015 9:11 pm

(((Lara,)))

I am sorry you are going through this! Ugh!

I had an ovarian met at diagnosis... And I assure you, not one medical person who saw my scan or ultrasound suggested it was a cyst! They know what they are looking at when they see it. I am 100% sure this will end up being a boring old, ordinary ovarian cyst... Hang in there, girl!

Hugs,
Colleen
stg IV 4/2013 @34 - liver, ovary/peritoneum
Lots of chemo, surgery and good luck - still doing well 03/2016...

arizona mom
Posts: 127
Joined: Thu May 08, 2014 10:25 am

Re: advice needed - I'm in the hospital with ovarian cyst

Postby arizona mom » Sun Sep 06, 2015 10:10 pm

Thank you, Colleen

(((hugs)))
47 yrs mom of 4
5-7-14 - dx stage IV-3 liver mets. CEA 76
5-20-14 Folfox w/Avastin
7-24-14 - Colon/liver resection and HAI implant at MSKCC
11-18-2014 - scan- NED!
12-19-14 finished 12 treatments of Folfox (dropped Oxali after 9)
2-19-15, 6-18-15 clean scans - NED
9-11-15 mets in ovaries - hysterectomy - CEA 1.0
Folfiri 10/15 to 3/16
3-24-16 CT scan NED
7-1-16 It's back. 1cm in lung and 3 peri mets. :(

Nik Colon

Re: advice needed - I'm in the hospital with ovarian cyst

Postby Nik Colon » Mon Sep 07, 2015 12:20 am

I have had cysts a few times, usually they go away on their own but one I had surgically removed.

orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: advice needed - I'm in the hospital with ovarian cyst

Postby orcasres » Mon Sep 07, 2015 1:03 am

As the old lady of this group responding to your post, try to be reassured that ovarian cysts are VERY common and docs know them when they see them. Your anxiety is quite understandable, but hopefully you will get all of your answers soon and everything will turn out to be benign. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

Nik Colon

Re: advice needed - I'm in the hospital with ovarian cyst

Postby Nik Colon » Mon Sep 07, 2015 1:04 am

I think I may have one now, I'm having pain in lower right, its been on both sides for me i believe. can't be from ovulation as I just got over my period, will see in a few days how it goes. Usually mine go away in a few days, if not then I'll go in or if pain gets too bad. I have had quite a few so it's not unusual for me.

debb
Posts: 186
Joined: Sun Dec 21, 2008 9:03 pm
Location: NJ

Re: advice needed - I'm in the hospital with ovarian cyst

Postby debb » Mon Sep 07, 2015 9:35 am

I'm sorry you're going through this right now. I'm sorry also that I'm about to give you a different opinion, based on my own experience.

Get that cyst removed. It's causing you pain & fever...and mental anguish and uncertainty. The procedure will be laparoscopic and you'll be out that day.

I had a cyst that was bothering me..not pain but I could feel it. My doc had me on watchful waiting for a few menstual cycles and said it didn't present as cancer (fluid filled) and a few vag US. I just wanted it out. I was feeling it more and had some pain while running.

So I had surgery. I was told presurgery that if it was "just a cyst" that I'd have just that ovary removed. If the cyst was a CRC met, he'd take both ovaries. And if it were ovarian cancer, I'd wake with a hysterectomy.

It was a CRC met. I had both ovaries removed. And in the time between the surgical appt and the actual surgery, the cyst had burst. The docs tested the fluid and results said no cancer cells. But I was too afraid off that fluid being in my abdomen and also of the local recurrence of CRC in my ovaries. So 6 weeks later, I had HIPEC.

So consider asking for that sucker to be removed. At the very least, it'll relieve your symptoms and you'll be home very quickly.

(Also, if I'm not mistaken, CA 125 blood tests for ovarian cancer, and we're concerned with a CRC met...so are those results helpful in our situation?)
Good luck!!!
Stage 3C, Dx at 42, mom of 4
Colon resection 7/08
Folfox 9/08-2/09
Met to right ovary, both ovaries removed 7/10
HIPEC 8/10
VATS 7/12, 2 nodes, right lung
10/14 3 lung nodes, Stivarga clinical trial
3/15-7/15 Folfiri & avastin for lung things
Break! One+ year of freedom
8/16 Folfiri & avastin..lung things again
Break! 10 months of freedom
1/18 rib mets, radiation, folfiri & avastin
1/19 rib mets again, radiation, folfiri & avastin

arizona mom
Posts: 127
Joined: Thu May 08, 2014 10:25 am

Re: advice needed - I'm in the hospital with ovarian cyst

Postby arizona mom » Mon Sep 07, 2015 12:55 pm

Thank you all for your encouragement!

Deb,
I'm pretty sure I'm going to have surgery. The cyst is 4 X 7 inches and the pain has gotten bad enough that I don't think I can manage it at home. I can't imagine a 4 X 7 inch thing dissolving on its own anyway. I'm ready to get it over with. Maybe the 3 day weekend has delayed things. It is very frustrating.

I saw the on-call oncologist right away. Maybe because of my history. He ordered the CEA and CA-125 tests. The CEA came back normal, 1.0, which is a HUGE relief. My CEA seems to be a marker for me (I maxed out at 76 at some point when I was first diagnosed with CC.) There is a slight possibility that the "cyst" is a new primary of ovarian cancer, so it will be nice to be double sure that the blood marker rules that out (at least as much as it can).

I think we are waiting for the ultrasound report to tell us what the cyst is attached to and how they are going to get it out and what needs to come out with it. I'm going to request that they treat it as if it were cancer surgically until they prove 110% otherwise. Your story backs that plan up. Thank you for sharing that and I hope you are doing well.

Lara
47 yrs mom of 4
5-7-14 - dx stage IV-3 liver mets. CEA 76
5-20-14 Folfox w/Avastin
7-24-14 - Colon/liver resection and HAI implant at MSKCC
11-18-2014 - scan- NED!
12-19-14 finished 12 treatments of Folfox (dropped Oxali after 9)
2-19-15, 6-18-15 clean scans - NED
9-11-15 mets in ovaries - hysterectomy - CEA 1.0
Folfiri 10/15 to 3/16
3-24-16 CT scan NED
7-1-16 It's back. 1cm in lung and 3 peri mets. :(


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