PEEJAY - My DH passed away two weeks ago. He had extensive mets to his liver and peritoneum, and also had lymph node and lung mets. He opted to stop treatment the end of March and "work the bucket list" as folfox, folfiri, xeloda, erbitux, etc. had failed. As soon as he stopped treatment, he began feeling strong again (very strong heart and body, even at age 66). Anyway, we had 4 wonderful months, traveling to see our kids and grandkids (in Italy and another state across country). We spent time with friends, family and enjoying all the things he loved the most. Until about 4 weeks before he passed away, he used ibuprofen in the morning and oxycontin 10 mg at night for pain control. He appetite had been good, and he maintained his weight until the end of July. At that time, he began feeling weaker and would nap during the day. Appetite declined. He began taking pain medication on a regular basis although he never required high doses of anything. Lost interest in food, and realized it was time to call in hospice. 10 days prior to his death, he was still climbing the stairs to get to our bedroom, and trying to "tie up loose ends" to make life easier for me. He called an electrician and plumber to walk through the house and make sure everything was in good shape. 5 days before he died, he was very weak but still ambulatory and became a little confused. We called our family members to come. Monday evening he reluctantly laid down in a hospital bed. On Tuesday, he stopped eating or drinking and was barely responsive. His breathing was even, non-labored and loud. We had oxygen available, but he never needed it. I administered liquid morphine with an eyedropper to prevent pain. On Thursday evening, his breathing slowed down, his heart-rate slowed down, and he passed away that evening. It was hard on everyone who loved him to see him go. When I think of the suffering that he endured during his cancer journey, I think of the side effects of chemo....not the last 5 months.
This is just our experience. My husband knew he wanted to die at home....no needles, no hospitals. I'm grateful he made these choices and shared them with me as soon as we knew his condition was terminal. Please God, let there soon be a cure for his horrible disease!
Last edited by mackswife
on Tue Sep 08, 2015 9:56 pm, edited 1 time in total.
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list