HIPEC

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Cherie
Posts: 590
Joined: Fri Jul 12, 2013 11:20 am
Facebook Username: cherie
Location: New Zealand

HIPEC

Postby Cherie » Fri Sep 04, 2015 8:42 am

My HIPEC surgeon stood right on the fence and would not recumbent HIPEC for me saying my cancer would likely come back. But he also would not say I wasn't worth trying. FUCK!! i can't find any over doctor in little NZ to give me a second opinion now I looking at the USA. Please let me know your story if you have had Hipec. How much cancer and where did you have it? What has been your outcome? And do you have a surgeon I could get a second opinion from?

Cherie
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

bitchslapped
Posts: 1527
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: HIPEC

Postby bitchslapped » Fri Sep 04, 2015 9:53 am

viewtopic.php?f=1&t=52326

There are more to be found if you do a HIPEC search in the search box tool that I have noticed in the past, some w/recommendations. The above link is a recent thread that was started.

Best Wishes

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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meatie
Posts: 412
Joined: Wed Aug 20, 2014 8:13 am
Location: San Jose, CA

Re: HIPEC

Postby meatie » Fri Sep 04, 2015 1:39 pm

Definitely come to USA! There more HIPEC doctors to choose from in america. Also, your hubby would have a chance to find a new job, as he (according to your previous posts) hates his current job in new zealand.

Good luck!
Mother DX @59 8/14
cln+lvr res 9/14, stage 4
FOLOX+Avs 12-rd 10/14 to 4/15
Reoccurrence, KRAS mutant 11/15
Folfiri 18-rds 11/15-8/16
FOLFIRI with Ramicirumab 28-rds 8/17-9/18
Regorafenib 10/18-10/19
Lonsurf 10/19 onward

CM35
Posts: 265
Joined: Tue Dec 03, 2013 1:16 pm

Re: HIPEC

Postby CM35 » Fri Sep 04, 2015 3:48 pm

I had HIPEC in May. It was not the silver bullet for me, but likely has little to do with the competence and skill of my surgeon, but rather the fact that my cancer SUCKS. I have had a recurrence, but not in the peritoneum as far as we know. I posted in more detail in the thread bitchslapped referenced above. I would be happy to share anything about my experience, if you have any questions. Feel free to pm if you'd like more info...

Colleen
stg IV 4/2013 @34 - liver, ovary/peritoneum
Lots of chemo, surgery and good luck - still doing well 03/2016...

Robinf
Posts: 31
Joined: Sun Jan 25, 2015 2:36 am
Location: WA

Re: HIPEC

Postby Robinf » Fri Sep 04, 2015 5:56 pm

I also had HIPEC in May and have had a recurrence, 2 spots in my liver and 1 in the peritoneum.

I would (and at some point probably will) do it again in a heartbeat!

My surgeon was great, Dr Gary Mann. He was at Univ of Washington when I had my surgery but has since left UW and is at MD Anderson.

I'm happy to share any other info/details, feel free to reach out... Here or private msg.

Robin
Dx stage 4 Sept 2014 (MSS, KRAS Mutant)
Resection with peri mets identified visually during surgery
Nothing visible on CT
12 rounds FOLFOX w/ Avastin Nov - Apr 2015
Still nothing visible on CTs
HIPEC May 2015
7/2015 - 5 new spots on CT, PET confirmed 3 mets
8/12/15-Begin 12 rounds FOLFIRI
10/21/15 Scan - peri mets stable, 1 liver stable and 1 growing
12/4/15 - RFA of liver met
2/24/16 - scan was stable/shrinking moving to Xeloda/Avastin


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