I don't know if it's just me or what

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Nik Colon

I don't know if it's just me or what

Postby Nik Colon » Wed Sep 02, 2015 5:14 pm

I need to stop posting things, seems I keep saying the wrong thing. Sorry, I need to leave for a bit, those who know me can write me on fb if you want, hahaha, yep fb since I seem to be turning this into it anyway. Sorry for ruining the FUN here!

WARNING...DO NOT CHAT OR JOKE HERE OR PEOPLE WILL THINK YOU ARE TURNING IT INTO FB!

Wish you all well

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: I don't know if it's just me or what

Postby NZJay » Wed Sep 02, 2015 6:08 pm

Without meaning any disrespect, I think you just need to chill and stop overthinking shit. You haven't done anything wrong!! And If anyone thinks you have, they're just uptight and not worth worrying about. Noone wants you to leave :)
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: I don't know if it's just me or what

Postby justin case » Wed Sep 02, 2015 6:37 pm

NZJay wrote:Without meaning any disrespect, I think you just need to chill and stop overthinking shit. You haven't done anything wrong!! And If anyone thinks you have, they're just uptight and not worth worrying about. Noone wants you to leave :)

Who's Noone, I'll kick his butt!
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: I don't know if it's just me or what

Postby canadiandaughter » Wed Sep 02, 2015 6:56 pm

I agree, you are over reacting! The facebook comment was not at all mean. I think, if I got it right, she just meant that fb is more a chatty social place where as this is a information place. I dont think it was meant to be taken personally, so no worries, stick around and keep posting! You are worrying too much lately, hell I even saw you apologize for someone else!! I have never found your posts mean or nasty and if they are taken the wrong way, you shouldnt worry about it. THat sadly is the problem with not being able to hear sarcasm or tone when writing. Its similar to texting, sometimes things get taken the wrong way and the shit hits the fan!! Besides, you can't leave!! Frenchie needs your comments on his posts now that skypup has been gone for awhile. :?
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: I don't know if it's just me or what

Postby weisssoccermom » Wed Sep 02, 2015 7:34 pm

Who is upset? As a mod, I don't think you've posted anything that's offensive, rude or anything else like that. Granted, I don't read every post but still......what's happening that you think made someone upset?
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: I don't know if it's just me or what

Postby justin case » Wed Sep 02, 2015 8:03 pm

justin case wrote:
NZJay wrote:Without meaning any disrespect, I think you just need to chill and stop overthinking shit. You haven't done anything wrong!! And If anyone thinks you have, they're just uptight and not worth worrying about. Noone wants you to leave :)

Who's Noone, I'll kick his butt!

Let me make this more clear, No one wants you to leave.
Bro Nut
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: I don't know if it's just me or what

Postby MamaN » Wed Sep 02, 2015 9:53 pm

Nik ,
no one wants you to leave , if it wasn't for this place we would have never met ! Plus I would not have met all the other wonderful people here that make this group special !
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: I don't know if it's just me or what

Postby JudeD59 » Thu Sep 03, 2015 12:33 am

I read through all the controversial threads and I wasn't offended by anything you said nor did I think you said anything out of line. You just seem more stressed or agitated than usual this week. I'm sorry for whatever is making you feel that way. I hope tomorrow is a better day for you and I really hope you stick around because I would miss talking to you. You have a lot to offer this board and this community.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

Nik Colon

Re: I don't know if it's just me or what

Postby Nik Colon » Sun Sep 06, 2015 12:43 am

Thanks guys, maybe I am just more emotional, but I still do feel others comments were unneeded and it hurts. I don't want to feel like I have to walk on eggshells. Lets see, making it sound like I'm trying to turn this into fb by being friendly and personal or ask a question, implying that by thanking people trying to acknowledge them and be respectful that I'm being rude by bumping up my posts, asking a q and giving my opinion im taking it personal, Etc. Yeah, it hurts. That is me, I like to be friendly, sorry if it pisses some people off. I loved this forum and now I dont know. If I can't be me, I just maybe shouldt be here anymore. It hurts as I have felt very close to many of you.
Last edited by Nik Colon on Sun Sep 06, 2015 1:34 am, edited 2 times in total.

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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: I don't know if it's just me or what

Postby CRguy » Sun Sep 06, 2015 1:26 am

I'll be coming here with "tough LOVE"
Less on the tough...... HEAVY on the LOVE

Take a break ma' homie

you are getting way over the top here

time to step back and get some REAL time support

I cannot be here for you, you need real life... real time folks

You do NOT need to keep apologizing for anything HERE !
You NEED to get some positive vibes happening in your own life.

WE WILL try to help, but if it is beyond US .... you NEED to get hands on personal support ....

Harmony sista'

CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Nik Colon

Re: I don't know if it's just me or what

Postby Nik Colon » Sun Sep 06, 2015 1:37 am

Thanks CR, I honestly don't know what I need or how I feel right now. For some reason I just feel so angry and down lately and don't know what to do or where to turn. I just can't deal with the hurt right now.

I do have real life support from family and friends but of course none are in my shoes. Also, I don't want to burden them anymore then they are. They have to deal with it in their own way already.

Nik Colon

Re: I don't know if it's just me or what

Postby Nik Colon » Sun Sep 06, 2015 1:41 am

I'm not normally like this and I don't know how to turn it off right now.

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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: I don't know if it's just me or what

Postby CRguy » Sun Sep 06, 2015 1:49 am

THEN step outside the box and get professional help. I would not be able to confide inside MY family either.
I have consulted counsellors, many times.

DO IT ...... if that is what you need DO IT !

If this Journey was easy ... ANYONE could do it

IT AIN'T ...... so only the strong CAN do it ...
YOU are here because you ARE strong

Get what you NEED to move on and survive

THAT is the WORD

Harmony
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: I don't know if it's just me or what

Postby Lee » Sun Sep 06, 2015 1:56 am

My input, PLEASE DON'T LEAVE!! You are an asset here. You have always been respective of other people"s opinions and are always the 1st person to welcome a newbie. Please do not think of leaving any time soon.

Hang around a bit longer please.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: I don't know if it's just me or what

Postby bitchslapped » Sun Sep 06, 2015 2:40 am

Ritz, many of us take periodic breaks from here due to the fluidity of life. No one suggested to you that your responses were an attempt to bump up your posts. One person did say that she felt it might come across that way if she did it & was wondering if she was perceived as rude by not doing so. I thought that was a thoughtful perspective & appreciated the point of view. If we can't speak our opinion, then we are the ones walking on eggshells here, not you.
I don't recall anyone directly accusing you of trying to turn CT into FB. There have been general references in your post & others, I'm sure.

Probably most of us have made an unwarranted comment. It's a public forum & people come here for support & get some things off their chest. And, yes, people get offended
I agree w/CR & think I suggested previously on one of your threads, that family & friends are not enough direct support & you've admitted to holding back so as not to burden them. It's apparent that you are escalating as of late & out of concern, these suggestions are made.
We have a Sticky Thread of support groups across the country. Won't you reach out? Right now we are not helping you; don't seem to be what you need. We are apparently aggravating your situation & that doesn't make us feel good either.
Please reach out locally for a cancer support group to augment this one & get or give some real hugs.


Think on it...

Best Wishes + Cyber Hugs
bitchslapped
Last edited by bitchslapped on Sun Sep 06, 2015 2:54 am, edited 1 time in total.
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia


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