Scan results ... With Rob on mixed feelings

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Kiwi Debz
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Scan results ... With Rob on mixed feelings

Postby Kiwi Debz » Thu Aug 20, 2015 3:44 pm

Hi all, with the sad news this week I am a bit reticent to post but I know all of us need some good to offset the bad.

I went to oncologist today for scan results. I am completely NED .. No signs of any disease. The innumerable lung nodules have gone, the node in chest is normal size. I don't know why as I did no treatment ... Onc said sometimes we can inhale something that causes this? I said are you sure and he said there is nothing showing any signs of disease! After a year of all this at stage IV and remission. Wow!

I have had a sore back and thought I had pulled a muscle ... Turns out I have fractured it. Onc thinks steroids from chemo weakened my bones!

Only other thing is I am doing a precautionary brain scan due to pains in my head. I think he cannot believe I am where I am and with no other metastisis just wants to make sure that there is no brain met causing it.

Today ... I am just happy ... I feel today I have turned a corner and for the next three months I can just enjoy every moment. Whatever happens after that happens!

Carpe diem!

6/14 DX mCrc stage 4
7/14 R. hemicolectomy; 4/17 LN; liver res. peri met; repair to illiac artery
10/14 PET recurrence LN; liver ? Peri met Continue FOLFOX
12/14 PET: stable .Liver only! FOLFOX
02/15 Liver resection. NED
03/15 foundation One testing - BRAF mutant
05/15 progression; Hilum node; both lungs?
08/15 NED !!!!
Age 51 Mum to Tom (RIP) and Jose 18
KIA KAHA - Be strong!

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Joined: Sun Aug 17, 2014 11:19 am

Re: Scan results ... With Rob on mixed feelings

Postby canadiandaughter » Thu Aug 20, 2015 3:55 pm

That is awesome!! I don' t think that it is bad to post the good things. We all need some positives, even those that are hurting! There is hope!! May there be a cure found soon so that NO one has to suffer from this dreaded disease ever again! Celebrate!!!!!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

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Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scan results ... With Rob on mixed feelings

Postby DarknessEmbraced » Thu Aug 20, 2015 4:15 pm

Wonderful news! Thanks foe sharing! So happy for you!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Joined: Sun Aug 10, 2014 10:32 pm

Re: Scan results ... With Rob on mixed feelings

Postby Danieljt » Thu Aug 20, 2015 4:34 pm

So happy for you!

70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.

Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Scan results ... With Rob on mixed feelings

Postby Stanfordmom » Thu Aug 20, 2015 4:54 pm

Thank you for posting!

I am so happy for you!
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

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Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: Scan results ... With Rob on mixed feelings

Postby ziggymonster » Thu Aug 20, 2015 5:50 pm

I have been so down lately, it is really uplifting to hear this kind of news. Thank you
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

Posts: 1216
Joined: Sun Apr 22, 2012 3:52 pm
Location: Ontario, Canada

Re: Scan results ... With Rob on mixed feelings

Postby Cb75 » Thu Aug 20, 2015 6:09 pm

You are amazing!! Thanks for sharing

39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...

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Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Scan results ... With Rob on mixed feelings

Postby chrissyrice » Thu Aug 20, 2015 6:32 pm

Deb, you know Rob would be just as excited and happy for you.

Together we are all here for each other.

I had several fractures too after chemo... doesn't take much. So stay well and rest up that back... maybe some PT when healed.

DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

Posts: 115
Joined: Tue Feb 17, 2015 8:00 pm

Re: Scan results ... With Rob on mixed feelings

Postby JENNJ » Thu Aug 20, 2015 7:01 pm

Thank you for posting and CONGRATS!!!! Your story gives us hope. I wish you nothing but a lifetime of NED!!!
Katy :D :D

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Joined: Sun Feb 10, 2008 6:00 pm

Re: Scan results ... With Rob on mixed feelings

Postby CRguy » Thu Aug 20, 2015 7:09 pm

Keep NEDDIN' Deb !

Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Iitg ritesh
Posts: 173
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: Scan results ... With Rob on mixed feelings

Postby Iitg ritesh » Thu Aug 20, 2015 7:52 pm

happy tears in my eye for you and Rob, thanks for sharing it.
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14

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Joined: Tue May 26, 2015 9:07 pm
Location: Sunnyvale CA

Re: Scan results ... With Rob on mixed feelings

Postby daniel.qin » Thu Aug 20, 2015 8:42 pm

It is great news! KEEP NED!

39 years old Male
4/12 - colon surgery stage III
12/12 - 12 round FOLFOX
5/14 - met to spleen, colon surgery, spleen remove, radiation, XELOX
KRAS-mutated, BRAF wild type, MSI-stable.
11/14 - Abdomen wall met, surgery, FOLFIRI+Avastin
3/15 - CT, NED
Chinese herbs medicine
5/15 - CT, progressing-FOLFIRI+Avastin
6/15 - cannabis oil supplements
8/15 - Xilonix fail
10/15 - RRX 001

Nik Colon

Re: Scan results ... With Rob on mixed feelings

Postby Nik Colon » Fri Aug 21, 2015 5:54 am

Great news!

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Location: Central NYS

Re: Scan results ... With Rob on mixed feelings

Postby BrownBagger » Fri Aug 21, 2015 7:04 am

Awesome news, Deb. More inspiration!
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: Scan results ... With Rob on mixed feelings

Postby jalusa » Fri Aug 21, 2015 7:38 am

Great news!
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

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