Pushing for Lung RFA & the Power of Hope

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DK37
Posts: 510
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

Pushing for Lung RFA & the Power of Hope

Postby DK37 » Tue Aug 18, 2015 2:54 pm

I don’t normally post my "personal blog" links here but I thought this one could be helpful so I decided to. It has to do with the path I took getting my new lung RFA approved - taking out the specifics, the gist being: Be your own strong health advocate, be pushy if need be (I needed to be!) and always keep an eye out for positive role models from our community to give you Hope…

http://adventuresinlivingterminallyopti ... le-models/

Cheers,
-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
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smalltownmess
Posts: 84
Joined: Mon Aug 04, 2014 2:09 am

Re: Pushing for Lung RFA & the Power of Hope

Postby smalltownmess » Tue Aug 18, 2015 4:43 pm

So happy you're getting your RFA this month, DK! And awesome blog, hope definitely is powerful!!
Mom diagnosed Stage 4 with Liver mets 7/2011
July 11: Xeloda and Avastin
August 13: Irinotecan
June 14: Disease Progression
August 14: SBRT
October 14 - December 14: RRX-001
January - May 15: Irinotecan
May 15: One week Stivarga -- stopped b/c DRESS Syndrome
July 15: Disease progression
July 15: Start Xelox


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