mixed feelings about this update...

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Rob in PA
Posts: 2005
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

mixed feelings about this update...

Postby Rob in PA » Mon Aug 17, 2015 9:54 pm

So sorry to hear about pukalania dear husband passing, and didn't know whether to post this or not ....butt I had perfectly clear scan today. Doc is amazed. Port is coming out. I share this good newswith my fellowfighters and caregivers not to gloat but to keep that seed of hope alive. It is the first time in seven years I've gone twelve months without that damn cancer coming back.
best to all. Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: mixed feelings about this update...

Postby lpas » Mon Aug 17, 2015 10:09 pm

Wow, that's fantastic news! Congrats!!!
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: mixed feelings about this update...

Postby Ajane » Mon Aug 17, 2015 10:20 pm

That's great news! Happy for you.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: mixed feelings about this update...

Postby midlifemom » Mon Aug 17, 2015 10:22 pm

Thanks for sharing, we need to hear this good news.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

lhawk0730
Posts: 171
Joined: Mon Oct 27, 2014 10:49 pm

Re: mixed feelings about this update...

Postby lhawk0730 » Mon Aug 17, 2015 10:34 pm

That is great news! Thank you for sharing. We all need hopeful news. And we need to share in each others triumphs as well as the difficult and many times tragic times.
Daughter to Mom, age 71
Dx 10/14 RC - T3bN1bM0
Chemoradiation til 1/15
Surgery 2/15
Temp ileostomy
Failed Xelox round 4/15
1 round straight Xeloda 5/15 - discontinued
Ileo reversal 5/15
8/15 more Xeloda

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ziggymonster
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: mixed feelings about this update...

Postby ziggymonster » Mon Aug 17, 2015 11:00 pm

Thanks good news is always welcome!! I have been feeling down today I needed this!
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

Teddi
Posts: 241
Joined: Thu Jul 31, 2014 1:44 pm
Facebook Username: teddimcfarland

Re: mixed feelings about this update...

Postby Teddi » Mon Aug 17, 2015 11:03 pm

What a milestone! Congratulations!

Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15

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CRguy
Posts: 10285
Joined: Sun Feb 10, 2008 6:00 pm

Re: mixed feelings about this update...

Postby CRguy » Mon Aug 17, 2015 11:34 pm

Rob in PA wrote:So sorry to hear about pukalania dear husband passing, and didn't know whether to post this or not ....butt I had perfectly clear scan today.

When one of us has tough news … we all despair
When one of us has good news … we all rejoice

Whatever the news …. WE are all together
and together we stand strong my friend,
In joy and sorrow.

Great news on your scan
MANY more to come !

Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: mixed feelings about this update...

Postby JudeD59 » Tue Aug 18, 2015 12:24 am

I'm so happy for you, Rob. It's always great to hear encouraging news.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

CM35
Posts: 265
Joined: Tue Dec 03, 2013 1:16 pm

Re: mixed feelings about this update...

Postby CM35 » Tue Aug 18, 2015 12:42 am

I'm glad you posted this, it's good to see that things can go well. I am happy for you... A little jealous, yes, but to see someone succeed at "whack a mole" is encouraging, indeed. Enjoy your good health and good fortune!
stg IV 4/2013 @34 - liver, ovary/peritoneum
Lots of chemo, surgery and good luck - still doing well 03/2016...

kiwiinoz
Posts: 1156
Joined: Thu Jan 03, 2013 11:44 pm

Re: mixed feelings about this update...

Postby kiwiinoz » Tue Aug 18, 2015 12:43 am

Hi Rob
Now that is an update to be rejoiced. I'm absolutely over the moon for you, for your wife, and for your kids.
Now get out there and enjoy the summer
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

Nik Colon

Re: mixed feelings about this update...

Postby Nik Colon » Tue Aug 18, 2015 2:14 am

Awesome! Congrats!

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Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: mixed feelings about this update...

Postby Annemiek » Tue Aug 18, 2015 5:37 am

Always post good news. Grat to hear you're doing good! Keep it up!

Annemiek

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

ieowi
Posts: 202
Joined: Mon Jul 27, 2015 1:27 am

Re: mixed feelings about this update...

Postby ieowi » Tue Aug 18, 2015 6:48 am

very happy for you :D Congratulations.
Father 58 yo , Colon cancer IV + 4 Lymph. 7/2015
K-ras Mutant,GNAS,FBXW7,PIK3CA, MSI-low
4 cycles irinotecan+FU5
developed abdominal met + lung met...Failed
4 cycle Oxaliplatin+folfox. peri met growing...Failed
unofficial trial !!!

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: mixed feelings about this update...

Postby cathy123 » Tue Aug 18, 2015 6:52 am

Wow that is great rob!
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds


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