Unlikely Stage I distant recurrence?
Re: Unlikely Stage I distant recurrence?
Wonderful news! So happy for you.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed
2 Corinthians 12:9
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed
2 Corinthians 12:9
Re: Unlikely Stage I distant recurrence?
Congratulations on the good news!
I think most of us can relate to how stressful the waiting can be.
But if we take things one moment at a time we can almost always find something to feel good about.
May all you future test results be stress free
I think most of us can relate to how stressful the waiting can be.
But if we take things one moment at a time we can almost always find something to feel good about.
May all you future test results be stress free
5/13 RCa Stage I, Age 51
7/15 CR to IMRT + Xeloda
9/16 Lung Mets
4/19 Capecitabine
8/19 PR to SBRT
11/20 New Lung Mets
7/15 CR to IMRT + Xeloda
9/16 Lung Mets
4/19 Capecitabine
8/19 PR to SBRT
11/20 New Lung Mets
Re: Unlikely Stage I distant recurrence?
Great news!! So happy for you!
female, Dx @ 34 yo，mom to 3 yo daughter
stage 1 colon cancer
surgery on 07/30/2014
CEA <0.5 (after surger), no cea checked pre-op
no chemo needed
pray to god every day!
CT scan :08/2014 clean, 12/2014 clean，11/2015 clean, 11/2016 clean
NED forever!!!!
stage 1 colon cancer
surgery on 07/30/2014
CEA <0.5 (after surger), no cea checked pre-op
no chemo needed
pray to god every day!
CT scan :08/2014 clean, 12/2014 clean，11/2015 clean, 11/2016 clean
NED forever!!!!
Re: Unlikely Stage I distant recurrence? - UPDATE
MrsNotes wrote:Pathology from EBUS came back and is good news. No cancer in either of the lymph nodes biopsied, and one had a positive stain for histoplasmosis. I have no idea when I was exposed to histo, but it's apparently quite common in Middle TN. Perhaps my low white blood counts (side effect of my MS medicine) made me more vulnerable.
I cannot thank you all enough for the advice and support. I caught a glimpse of the fear that comes with a stage IV diagnosis. It reminded me to live each day to the fullest. You all have my deep thanks and admiration.
Gratefully,
Mrs. Notes
Fabulous news! So happy for you
wife of DH (04/24/15 dx: age 43) Low RC T3N0M0 stage 2
4/27/15 clear CT
5/18 - 6/25 chemo/rad (ended xeloda on 6/19 due to side effects)
8/12/15 - ULAR scheduled - APR performed due to location - path showed T1N0M0
9/25 begin 5 rounds of xelox
10/30/15 - switch to xeloda only due to allergic reaction
1/22/16- last xeloda!
3/27/16 - post treatment CT - clear except soft tissue presacral area (possibly scar tissue) CEA .5
4/20/16 - post treatment colonoscopy
4/27/15 clear CT
5/18 - 6/25 chemo/rad (ended xeloda on 6/19 due to side effects)
8/12/15 - ULAR scheduled - APR performed due to location - path showed T1N0M0
9/25 begin 5 rounds of xelox
10/30/15 - switch to xeloda only due to allergic reaction
1/22/16- last xeloda!
3/27/16 - post treatment CT - clear except soft tissue presacral area (possibly scar tissue) CEA .5
4/20/16 - post treatment colonoscopy
Re: Unlikely Stage I distant recurrence? - UPDATE
MrsNotes wrote:Pathology from EBUS came back and is good news. No cancer in either of the lymph nodes biopsied, and one had a positive stain for histoplasmosis. I have no idea when I was exposed to histo, but it's apparently quite common in Middle TN. Perhaps my low white blood counts (side effect of my MS medicine) made me more vulnerable.
I cannot thank you all enough for the advice and support. I caught a glimpse of the fear that comes with a stage IV diagnosis. It reminded me to live each day to the fullest. You all have my deep thanks and admiration.
Gratefully,
Mrs. Notes
How about the lung nodules?
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.
Re: Unlikely Stage I distant recurrence?
My 86 year old mother has histoplasmosis which always alarms the docs and for which she is clueless about the source. They are thinking pigeons in some previous house in which she grew up? Who knows, but she is still quite healthy for her age. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far
Re: Unlikely Stage I distant recurrence?
Lydia666,
The assumption at this point is that the lung nodules are also histoplasmosis. Seems to make sense from what I've read. I'll be on pins and needles for the re-scan in 3 months, but I feel good about the process and the information we have.
Mrs Notes
The assumption at this point is that the lung nodules are also histoplasmosis. Seems to make sense from what I've read. I'll be on pins and needles for the re-scan in 3 months, but I feel good about the process and the information we have.
Mrs Notes
DX during colonoscopy, 7/20/12 age 39
Laparoscopic resection, 8/03/12
12 in. Sigmoid colon and 1/3 rectum removed
0 of 29 nodes malignant
Stage 1, no chemo, no raditation
8/15 being tested for suspicious lung nodule and enlarged hilar lymph nodes
Laparoscopic resection, 8/03/12
12 in. Sigmoid colon and 1/3 rectum removed
0 of 29 nodes malignant
Stage 1, no chemo, no raditation
8/15 being tested for suspicious lung nodule and enlarged hilar lymph nodes
-
DarknessEmbraced
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- Joined: Sat Nov 01, 2014 4:54 pm
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- Location: New Brunswick, Canada
Re: Unlikely Stage I distant recurrence?
That's wonderful news! So happy for you! 
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
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