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Joined: Thu Jul 23, 2015 3:57 am


Postby Vol » Thu Aug 06, 2015 12:45 pm

Removed 7.2cm tumor and 12" of colon, had perforated the back of the colon. Doctor said it had abscessed and created a bag that kept things in. His estimate was stage 3. He said there was some adhesion to my appendix, so he took out the appendix too.

Path report came today, surgeron was surprised. 0 of 27 nodes have cancer. Diagnosis is pT3 pN0. Margins all good (3cm). MMR were all good. Surgeon said "I am certain I got it all".

Oncologist came by shortly after I got results and strongly recommended chemo... We discussed my neuropath. He suggested, instead of using platinium based, that I use Capecitabine.
I was surprised that the said he didn't think I have much to gain from the onctypedx.

Feeling like a just got a miracle. Trying to keep a realistic view. I would be grateful for the input of this forum. I am planning on getting two other professional opinions. One he recommended, one from an independent doctor.

One last thought. Over the last three days in the hospital, I was more prepared and capable of underrstanding and dealing with what I was facing. I know that was from the information I've recieved and read here. you guys were on my mind... Best to the rest of you as we all fight on - hope you get stupid lucky too.

Dad - 51
Father of 3 girls (27, 26, 20)
08/15 - Resection 08/15
08/15 - Dx - Stage 2A - High Risk (perf colon), 0 of 27 nodes
08/15 - Start - 8 cycles Xeloda, first 4 with Oxaliplatin (done in February)

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Joined: Fri Feb 01, 2013 6:01 pm

Re: Home

Postby curious56 » Thu Aug 06, 2015 1:51 pm

AWESOME!! Amazing that you are already home.

Hope they gave you a script for stool softeners (colace). As your system "reboots", prepare for possible multiple small BMs per day. From what I've read, this is normal -- mine lasted for a couple of weeks, I think. Some people have trouble eating certain foods -- I ate anything, EVERYTHING without problem.

Yep, Xeloda (capecitabine) is pretty much standard, now. Good thing, NO PORT required!

Now that you have your info (T3N0M0), don't forget to plug it into the MSKCC nomogram.

Oh, be sure and stay HYDRATED!!
dx 12/12 with CC Stage IIIB - T3N2aMO
6/18 nodes +
Resection sigmoid 12/12
Xelox 2/13 -- stopped, BAD side effects
Vegan and supplements
Clear scan 11/13
Met to abdomen - surgery 7/14
Philippians 4:6-7

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Joined: Wed Nov 19, 2014 11:11 pm

Re: Home

Postby lpas » Thu Aug 06, 2015 7:45 pm

Fantastic news!! So happy for you.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

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Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Home

Postby pfCml73183 » Thu Aug 06, 2015 9:10 pm

Great news, Vol. Happy to hear this.
Wife and BF to Peter, 54
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

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Joined: Mon Jun 13, 2011 1:13 am

Re: Home

Postby rp1954 » Fri Aug 07, 2015 12:58 am

It's a good start. One wants to nail this thing and be done as much as possible.

What about CA199? That could help you modify your xeloda treatment based on known risks. Depending on the particular levels, especially presurgery level or tumor expression, I'd look at adding PSK and cimetidine or celebrex, too.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C

Posts: 84
Joined: Mon Aug 04, 2014 2:09 am

Re: Home

Postby smalltownmess » Fri Aug 07, 2015 2:23 am

So happy to hear! Enjoy being home!!
Mom diagnosed Stage 4 with Liver mets 7/2011
July 11: Xeloda and Avastin
August 13: Irinotecan
June 14: Disease Progression
August 14: SBRT
October 14 - December 14: RRX-001
January - May 15: Irinotecan
May 15: One week Stivarga -- stopped b/c DRESS Syndrome
July 15: Disease progression
July 15: Start Xelox

Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Home

Postby cathy123 » Fri Aug 07, 2015 3:36 am

Sounds like everything is as good as can be expected! If the second opinions agree the Oxi won't help you, then capecitibane (xeloda) only really is not bad at all. Congrats!

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: Home

Postby Deb m » Fri Aug 07, 2015 12:08 pm

Thats great news. Removing 27 nodes for sampling was excellent. The more you remove the better. Your surgeon did a great job with that. Hope all continues to go well,

deb m

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Posts: 142
Joined: Thu Feb 26, 2015 1:50 pm

Re: Home

Postby Crystald » Fri Aug 07, 2015 12:34 pm


Thanks for the update. Keep us posted. Stay positive.
Age 58
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice

Iitg ritesh
Posts: 173
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: Home

Postby Iitg ritesh » Fri Aug 07, 2015 4:15 pm

Great news :)
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14

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