TMI Rant - for sensitive souls

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teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

TMI Rant - for sensitive souls

Postby teachpdx » Mon Aug 03, 2015 6:50 pm

So I'm trying to take this whole post rectal cancer thing in stride, butt :twisted: it keeps rearing it's ugly head into my life. I'm a substitute teacher who just realized this past year that I'm a HSP (Highly Sensitive Person) which means I'm bother by sounds, sights, textures, etc to a much higher level than others (supposedly we're 20% of the pop), and I soon decided that teaching did not seem to fit well into that paradigm.

By the end of last year I was exhausted and just couldn't make myself go out and get a job for the summer. Thought I had a job and at last minute rug pulled out. I was sick of kids and just wanted to be by myself. My 21yo daughter moved in in April. She hadn't lived with me since she was 17 (long story), lots of water under the bridge.

Now to late July. Need to pay rent. Been trying to get back in shape but I keep getting injuries because my 56yo jock body is not the same body as my 53yo jock body. Only my brain doesn't know that and as soon as my feet stop hurting (HFS ended 7/2015) I resume my pre cancer activities - only my BODY has changed drastically and I keep injurying myself because I push myself too far because I don't feel and injury until 1-2days later. A very long learning curve, but I start getting it.

Then I have tissue issues (say that three times fast) that I thing are burns from the radiation. I get a job from a friend shooting a church convention and I use my cool tripod seat to sit on top of pew so I can see. I'm only 5' 5". Next day I go to use my Biffy, it's set kinda hard and my pubs are in agonizing pain. I have somehow (I think from tripod ) irritated that sensitive skin and it was actually BLEEDING (sorry guys) from my minor labia fold. I was HORRIFIED. I'd had pain there before but this was ridiculous. Men:s soft cotton boxers for multiple days.

THEN, I appear to be a little constipated and had a blockage that needed to get through and then - RIP- TEAR - BLOOD. It hurts to sit now and I made an appointment with my surgeon for Thursday.

My thought if you got this far - where does all the pressure that was directed at rectum go when there is not rectum and does anyone know the force on the rectum when squatting?
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

jjlist
Posts: 654
Joined: Fri Jan 21, 2011 11:56 pm

Re: TMI Rant - for sensitive souls

Postby jjlist » Mon Aug 03, 2015 7:33 pm

I am further along than you. I have developed complications I find sitting to be much more uncomfortable than bed rest. I tend to agree, not having a rectum stresses radiated tissue. Good luck moving forward dear.
age 56
11/16/09 DIAG low rectal tumor ST II T3N0M0
12/21/09 chemopump radiation
3/18/10 suregry colo-anal anastomosis, no nodes,.
4/29/10 Abcess infection
6/3/10 started 12 folfox sessions completed 10.
1/11/11 ileostomy takedown

Sams wife
Posts: 749
Joined: Sun Jan 11, 2015 2:49 pm

Re: TMI Rant - for sensitive souls

Postby Sams wife » Mon Aug 03, 2015 8:38 pm

teachpdx wrote:
My thought if you got this far - where does all the pressure that was directed at rectum go when there is not rectum and does anyone know the force on the rectum when squatting?


I have been wondering the same thing. That is how my husband works half of the day (squatting). Not tmi. Maybe someone knows. Hopefully it's just a little tear, looks like more blood than it really is.
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5

teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: TMI Rant - for sensitive souls

Postby teachpdx » Mon Aug 03, 2015 11:06 pm

jjlist wrote:I am further along than you. I have developed complications I find sitting to be much more uncomfortable than bed rest. I tend to agree, not having a rectum stresses radiated tissue. Good luck moving forward dear.


Thanks for the support. If I could only find a job where I could hang on a couch when I'm working 8) .
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

curious56
Posts: 166
Joined: Fri Feb 01, 2013 6:01 pm

Re: TMI Rant - for sensitive souls

Postby curious56 » Tue Aug 04, 2015 8:37 am

Thanks for the support. If I could only find a job where I could hang on a couch when I'm working 8) .


Have you considered tutoring or teaching online?
dx 12/12 with CC Stage IIIB - T3N2aMO
6/18 nodes +
Resection sigmoid 12/12
Xelox 2/13 -- stopped, BAD side effects
Vegan and supplements
Clear scan 11/13
Met to abdomen - surgery 7/14
Philippians 4:6-7

teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: TMI Rant - for sensitive souls

Postby teachpdx » Tue Aug 04, 2015 1:10 pm

I'm doing some tutoring on the side and I have considered on-line teaching, butt I'm an in-person kind of teacher and like to see their eyes - in person. That being said - who knows?
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

curious56
Posts: 166
Joined: Fri Feb 01, 2013 6:01 pm

Re: TMI Rant - for sensitive souls

Postby curious56 » Tue Aug 04, 2015 1:59 pm

Yep, seeing the light go on in their eyes is pretty awesome. Also easier to see when they don't understand something. I tutor my nephew in math, science, and language arts. LOTS of hugs when something "clicks".

Some online teaching is via Skype (or something similar), I think. NOT the same as in person, but better than nothing, I guess. I always thought that teaching kids (online) who live in remote areas, like some parts of Alaska or Australia, would be neat.
dx 12/12 with CC Stage IIIB - T3N2aMO
6/18 nodes +
Resection sigmoid 12/12
Xelox 2/13 -- stopped, BAD side effects
Vegan and supplements
Clear scan 11/13
Met to abdomen - surgery 7/14
Philippians 4:6-7

teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: TMI Rant - for sensitive souls

Postby teachpdx » Wed Aug 05, 2015 2:49 pm

I hadn't thought about the "remote" areas. That puts a whole new spin on things. They don't really have a choice. Something to chew on - thanks :) Kristi
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!


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