I have a number of updates but will break them down into separate topics as I am too lazy to type it all out at once ha.
Anyway - had a paracentesis yesterday. 5.5L of fluid drained. Can now eat, drink, and breath normally though I think they didn't actually get all the fluid out. The actual procedure hurt much more than I expected. I also had an albumin infusion that took almost 45 minutes to get an IV started so I have holes and bruises all over my arms. (They finally got one through the back of the hand. Ouch. I hate that spot) Today I am sore as hell, dehydrated, low on blood pressure, and having some nasty Charlie horse sort of cramps. But I can eat, drink, and breathe! I'll take it.
paracentesis
paracentesis
DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
5fu
10/14 mets lung and peri
1/15 Folfiri
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
5fu
10/14 mets lung and peri
1/15 Folfiri
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jillbugs4110
- Posts: 266
- Joined: Thu Jul 31, 2014 3:36 pm
Re: paracentesis
I'm glad that fluid is gone and you can resume some normal living thinking about you.
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.
Re: paracentesis
Glad things eased up a bit for you buddy. The ascites is a real pain in the ass and painful !
The hand IVs are the worst and once even had a newbie nurse throw one into my wrist just above the joint so any time I moved the hand it felt like a spear going into the effin' joint.... lasted about 4 hours then I had the head nurse, who used to teach IVs put one into the outer middle forearm which was great and lasted 6 days without problems !
Just FYI once treated a very large Basset Hound which we saw every 2-3 months for over 2 years. His abdomen would fill up, wouldn't eat and struggled to breathe. After we drained him he was 100% good to go until the next time. You're right though there will be some pockets of fluid which you just don't get.
Stay safe and heal gently !
Cheers
CR
The hand IVs are the worst and once even had a newbie nurse throw one into my wrist just above the joint so any time I moved the hand it felt like a spear going into the effin' joint.... lasted about 4 hours then I had the head nurse, who used to teach IVs put one into the outer middle forearm which was great and lasted 6 days without problems !
Just FYI once treated a very large Basset Hound which we saw every 2-3 months for over 2 years. His abdomen would fill up, wouldn't eat and struggled to breathe. After we drained him he was 100% good to go until the next time. You're right though there will be some pockets of fluid which you just don't get.
Stay safe and heal gently !
Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Re: paracentesis
Sorry for all the pain, but glad to hear you are feeling better.
Lee
Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
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Val*pal
- Posts: 860
- Joined: Sun Feb 10, 2013 1:24 pm
- Facebook Username: Valerie Barkus Kantner
- Location: Metro Detroit, Michigan
Re: paracentesis
I'm so glad you had the procedure, Voxx, and that it has helped. 
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest
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midlifemom
- Posts: 1358
- Joined: Wed Jan 15, 2014 10:58 am
- Location: NJ
Re: paracentesis
Hooray for eating, drinking and breathing! Enjoy!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
Re: paracentesis
Voxx, I don't know if its part of the procedure that makes you cramp, but maybe it's just potassium & you could try a banana?
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
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pfCml73183
- Posts: 653
- Joined: Sat Jun 22, 2013 7:49 pm
- Facebook Username: Celeste Marie Comeau
- Location: FL
Re: paracentesis
I am thinking of you, Voxx. I pray you are feeling less pain today and you are hydrated now. I hope you are more comfortable.
Celeste
Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15
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bitchslapped
- Posts: 1538
- Joined: Tue Sep 09, 2014 3:23 pm
- Location: PNW/USA
Re: paracentesis
The good: you did what you needed to do to get relief. The bad: Doesn't sound like their numbing potion was that potent. Sounds like they were a little rougher on you than my DSS's experience. The procedure didn't seem to bother him as he said they numbed the area first. He was under 5L drained, so did not need the albumin infusion.
Best Wishes
BS
Best Wishes
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia
Re: paracentesis
My dad had paracentesis several times during his journey. One of the times, they removed 20lbs of fluid. Afterwards, he his blood pressure was unstable and they decided that too much fluid had been removed. He ended up requiring IV fluids.
Hope your are feeling better.
Hope your are feeling better.
Dad has Stage IV CC w/mets to liver, lungs & peritoneal
Type 2 Diabetic, Gilbert's
1/12 DX & Resection (liver mets)
1/13 Allergic reaction to Erbitux
8/13 Vectibix & low dose Irinotecan
12/13 Pleurx Catheter
At Peace March 2014
Type 2 Diabetic, Gilbert's
1/12 DX & Resection (liver mets)
1/13 Allergic reaction to Erbitux
8/13 Vectibix & low dose Irinotecan
12/13 Pleurx Catheter
At Peace March 2014
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