NED's are you following a diet & exercising or living your life as before?

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Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: NED's are you following a diet & exercising or living your life as before?

Postby Lydia666 » Wed Aug 12, 2015 1:04 pm

https://www.youtube.com/watch?v=XaDt3AJQ98c

Very good info from a doc who had cancer himself.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: NED's are you following a diet & exercising or living your life as before?

Postby weisssoccermom » Wed Aug 12, 2015 1:24 pm

Not sure you can say his pathway was 100% effective as he passed away in 2011....about a year after this video. Honestly, I didn't watch it so can't speak to what he was talking about but, I still don't believe that following a specific diet plan or implementing exercise will stop cancer from recurring if the cancer is going to. Again, not saying we all shouldn't follow a better diet (I know that I should) or exercise more frequently (again, I am guilty of not following this recommendation either)....but I just don't believe that a lifestyle that focuses just on diet/exercise will either keep cancer from inhabiting our bodies (initially) or keep it from recurring. Take a look at all the people in the world who do the 'right' things...exercise, don't drink, don't smoke, etc and who are dxd with cancer. Then there are those out there who are grossly overweight, don't exercise and they are walking around presumably cancer free. Just my opinion.
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: NED's are you following a diet & exercising or living your life as before?

Postby Lydia666 » Wed Aug 12, 2015 1:48 pm

True, but I imagine it can only help. He isn't the only one talking about similar things.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

kiwiinoz
Posts: 1170
Joined: Thu Jan 03, 2013 11:44 pm

Re: NED's are you following a diet & exercising or living your life as before?

Postby kiwiinoz » Wed Aug 12, 2015 6:14 pm

I agree with Lee, in that if diet and exercise were a 100% proven solution there would be no need for any conventional treatment. However for me personally my philosophy is:

A healthy diet provides my body with all the macro nutrients it needs to function properly
A healthy diet makes me feel feel better about life
Exercise makes me feel better
Exercise makes reduces my risk for other chronic diseases

Since I changed my diet to become a little more extreme after dx the issues I had with psoriasis have pretty much disappeared, which considering I had that for 25 years prior to dx is a major achievement for me. I enjoy life a lot more when I eat right, and I exercise and whilst there is no proven link between recurrence and exercise the body of evidence does tend to support that the odds increase if you follow this lifestyle.

For me, I wanted something to hang my hat on and to try for during treatment and this became diet and exercise. Once treatment finished I wanted a something to focus on for my fear of recurrence and could not just sit there and do nothing. I was fortunate in that during and post treatment I was well enough to be able to carry this lifestyle on.

I totally agree that it is an individual choice and you need to do what you can to get through. For some this is living a "healthy" lifestyle, and for others, it is just doing what you need to do in order to cope with whatever you are facing. Each of us makes their own choices and I don't think we should be blaming anyone else for those individual choices.

Kiwi
1/2 Marathon # 5, 6 & 7 on the horizon and then 2016 a full marathon.....
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - August 2020
Port Out 26 March 2015

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: NED's are you following a diet & exercising or living your life as before?

Postby cathy123 » Thu Aug 13, 2015 8:01 pm

Just had my first post chemo appt with my onc and I asked him what he recommends to reduce chance of recurrence. He said the number one evidence based action is exercise - at least 20 minutes 3x a week. He also recommends vitamin d and a baby aspirin each day. I asked about curcumin and he said it won't hurt but he hasn't seen convincing evidence. He did not recommend cimetidine. As far as food, he said that red meat and in particular ground meat or charred meat are shown to have possible links to polyps. But he said he just recommends moderation.

I know there are a lot if opinions, but I trust and respect my onc so thought I would share.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

Chiller74
Posts: 6
Joined: Thu Aug 13, 2015 11:14 pm
Location: Maryland, USA

Re: NED's are you following a diet & exercising or living your life as before?

Postby Chiller74 » Fri Aug 14, 2015 12:46 am

although I'm not NED ... I'm starting to try and cut more added sugar from my diet as everything you read seems to suggest cancer feeds off sugar. Not cutting out fruit and fruit juice by doing best to cut out junk food

so many studies about harmful of processed sugar and what it does to your body... fatigue, craving it, feeding candida, etc ....from numerous health writers J.J. Virgin, Tasco Reno, etc.

Good a time as any to make small modifications towards healthier life :)
mCRC stage IV with 5 metastatic in liver (age 38)
dx Nov 2012 / CEA =250
Jan 2013 - laparoscopic sigmoid colonectmy
Mar 2013 - first infusion FOLFOX with trial drug Tizonanib ....lasted 10 sessions with oxoliplatin before dropped from side effects
Oct 2013 drop Tivozanib for Avastin
March-July 2015 chemo break ... CEA from 3.2 to 13.6
July 2015 - FOLFIRI with Cyramza started

Nik Colon

Re: NED's are you following a diet & exercising or living your life as before?

Postby Nik Colon » Fri Aug 14, 2015 1:26 am

Sadly, I admit I am still eating the same, my body craves sugar in the morning, it has for a long time, but I also have lived with fatigue for a long time on top of apnea, going again to see a sleep specialist next month, my last was in 2000 I believe, gave me a nose cpap, didn't know of full masks at that time or if they had them, I now know and think I need one. I would also like a tonsillectomy also removing my adenoids to hopefully help but cant right now, who knows, all I know is it's getting worse. Sorry for switching subjects. Best wishes. Also again, I know so many here that lived extremely healthy and got crc, so, jmo, it's sporadic, yes, everyone should strive to be healthy but imo, crc is indescriminate

Jachut
Posts: 1137
Joined: Mon Sep 26, 2011 11:16 pm
Facebook Username: hutchinson@aanet.com.au

Re: NED's are you following a diet & exercising or living your life as before?

Postby Jachut » Fri Aug 14, 2015 9:17 pm

Its a constant source of anxiety for me but I live WAY worse eating wise than before cancer.

I don't know whether it was chemo, radiation, surgery, or now sporting a colostomy, and in actual fact probably the toughest thing was the radiation induced sudden and complete menopause, but I have NO appetite anymore. I am just so disinterested in food, everything sounds revolting, I cant stand the smell of meat cooking, cant bear salad or fruit, just never get hungry and basically the only things I willingly ingest are caffeine and sugar in the form of baked goods or chocolate. I feel like sh*t, I look like sh*t and I know I'm setting myself up for major health problems but I just honestly cant stand cooking or eating. Treatment for me finished mid 2011 and I was a star patient throughout - no chemo problems, no radiation problems, quick surgical recovery - made my docs happy but I don't feel I have ever regained even a fraction of my former health.

I see a fantastic integrative practitioner who solved the awful fatigue problems I was having but he's scratching his head over this one.

All the things we should eat - fruit, vegies, beans, fish - cant stand any of them. And the things we shouldn't overdo - white carbs, sugar and such, that's all I want. I'm going out for dinner tonight, and that to me is just an exercise in hiding the fact that I'm not eating much of anything.


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