Alternating periods of diarrhea and constipation

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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Alternating periods of diarrhea and constipation

Postby DarknessEmbraced » Mon Jul 27, 2015 6:49 pm

For the past few weeks I've had alternating episodes of constipation and diarrhea. When I was constipated I used to try lax-a-day but one dose gave me diarrhea so I stopped. The only medication I take for digestion is dicetel to prevent bowel spasms. I'll have no bowel movements for a few days then have diarrhea with lots of cramping pain in my abdomen. I have been eating foods with fiber but not in excessive amounts. Friday night I had diarrhea and I had diarrhea Monday night. I can't figure out if it's food causing it or what's going on. I have been on prednisone since May 21st for a bard asthma flare up and have been tapering down. I don't want to take immodium unless absolutely necessary. Metamucil gives me too much bloating and gas. Any advice would be appreciated. I don't know what's causing this. I had diarrhea and accidents before getting on dicetel but that stopped for the most part after being on Dicetel for a while. I emailed my GI surgeon about this. I'm not sure what's going on.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Alternating periods of diarrhea and constipation

Postby DarknessEmbraced » Tue Jul 28, 2015 10:48 am

No response from my GI surgeon. I had diarrhea and another accident this morning. I'm still having abdominal pain and an upset stomach.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Alternating periods of diarrhea and constipation

Postby cathy123 » Tue Jul 28, 2015 10:52 am

Sorry to hear you are still struggling. I still have my bag but will probably be in your shoes in a few months. Hang in there!
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

Nik Colon

Re: Alternating periods of diarrhea and constipation

Postby Nik Colon » Tue Jul 28, 2015 10:55 am

Sounds somewhat like me, but I do take miralax daily which doesn't always seem to work :( and sometimes mag citrate or enemas when needed. I'm hoping I will get more regular when chemo is done as it did seem to start getting better after surgery shortly b4 starting chemo again, altho it was horrible right after surgery. Diarrhea seems to be a norm after a boutique of constipation. Best wishes

Teddi
Posts: 241
Joined: Thu Jul 31, 2014 1:44 pm
Facebook Username: teddimcfarland

Re: Alternating periods of diarrhea and constipation

Postby Teddi » Tue Jul 28, 2015 1:30 pm

Do you consume any caffeine? I mean any? Coffee, tea, Excedrin, midol, chocolate, etc. I find that even a minute amount causes explosive accidents. Since figuring it out, I have gone 12 days accident free. I have no rectum, so that is an accomplishment. Dairy is bad, but not like that. Maybe if you figure out the diarrhea part, you can start out with a teaspoon of psyllium at night.

Good luck!
Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Alternating periods of diarrhea and constipation

Postby DarknessEmbraced » Tue Jul 28, 2015 4:39 pm

I drink diet coke sometimes and eat chocolate but not excessive amounts. They never bothered me before. It doesn't seem like it's food related except maybe the three pieces of broccoli I had on Friday.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Teddi
Posts: 241
Joined: Thu Jul 31, 2014 1:44 pm
Facebook Username: teddimcfarland

Re: Alternating periods of diarrhea and constipation

Postby Teddi » Tue Jul 28, 2015 11:24 pm

Caffeine never bothered me before either. Maybe for you it's not caffeine, but something else. I think a food diary might help you figure it out. fWIW, greens don't bother me in the least, but a square of chocolate guarantees an accident. We're all different, but I do think that diet is a huge part of regularity.

Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Alternating periods of diarrhea and constipation

Postby DarknessEmbraced » Wed Jul 29, 2015 6:25 am

I could try doing that. The right upper abdominal pain keeps coming back every morning and it's worse after I eat. Still having loose stools and feel slightly nauseous sometimes. There's some pain under my ribs on the left but not as bad as that on the right.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: Alternating periods of diarrhea and constipation

Postby Deb m » Wed Jul 29, 2015 10:08 am

I agree with Teddi, my husband had many problems with diarrhea after his surgery. Thru trials in diet, adding this, taking away that ect. we discovered that caffeine was the number one culprit. He is now on a caffeine free diet and his problem is 95% better. We discovered he is very sensitive to it now and just a little bit in his diet sets him off. Before his cancer DX and surgery, he never had any problems with caffeine at all. He was a very big coffee drinker. Thru investigating this matter further, I discovered that this is common in many colon cancer patients. Perhaps its the stimulate in the caffeine? Who knows!

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Alternating periods of diarrhea and constipation

Postby Lee » Wed Jul 29, 2015 12:08 pm

So sorry you are going through this. Hop it gets better.

(((HUGS)))

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Alternating periods of diarrhea and constipation

Postby Steph20021 » Thu Jul 30, 2015 2:50 pm

Just wanting to give you a big squeeze. Your bowels have been relentless and i know how much that can bring me down, so i sympathize. Wish i had more to help than just words. Hang in there.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab


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