Feeling overwhelmed tonight (Pity Party)UPDATE

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JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Feeling overwhelmed tonight (Pity Party)UPDATE

Postby JudeD59 » Sat Jul 25, 2015 1:23 am

My LAR is scheduled for August 12th. I went to my regular doctor for my pre-surgery physical on Wednesday. Everything looked excellent until he did a quick EKG. He saw some T wave inversions. He said it could be nothing, but to be safe, he wanted me to see a cardiologist. I went to the cardiologist today and they ran another EKG and he saw the same thing. My blood pressure is always low-90-110 over 50-60. I've never had chest pains, shortness of breath, or any other symptoms, BUTT my dad had a heart attack when he was 40. The cardiologist said it could just be normal for my heart or it could be a problem.

They are going to do a drug-induced stress test the week after next to see how my heart responds. It takes 4-5 hours. The doc said it will make me feel weird for awhile, but not the whole time. If everything looks okay, they will clear me for the LAR. If not, they'll have to put a stent in one of my arteries and I'll be on blood thinners for a month, then I'll have to wait another month after that before they will do the LAR. That will mean it will be four months between the end of radiation and tumor removal. Not optimal. Plus, that will delay chemo and give other cancer cells time to spread and grow.

I know there are so many of you who are dealing with much more and much worse, so please forgive me for whining. I'm just feeling really beaten down and overwhelmed right now. I was enjoying a little honeymoon period between radiation/chemo and surgery and feeling pretty good, then a couple of days ago, my herniated disc starting acting up and I can barely walk. I know that if I survive the cancer, I have a surgery on my back, one to replace my knee (osteoarthritis from a bad fall), and one for bladder prolapse from my hysterectomy waiting for me. And now, maybe something with my heart.

I know that if there is a problem with my heart, it's important to get it taken care of before surgery and also before chemo since that is hard on the heart, too. I'm just depressed to add another health worry to an already long list. And I had just managed to wrap my mind around the surgery and ileostomy.

Feeling down and can't seem to find my happy place tonight. :(

The nurse at the cardiologist's office was sweet to me. If they are professional or even cold, I can deal with it when I'm feeling this way, but she was so sweet and I couldn't stop crying. The down days have been fewer and fewer, but when they hit, I'm just weepy all day long and someone telling me how sorry they are that I have to go through this just makes it impossible to keep a stiff upper lip. I even warned my husband on the ride to the doctor's that I might cry. He asked, "When they give you the diagnosis?" and I said, "No, just throughout the whole thing." I was right.

Tomorrow, I'll be strong again, but just for tonight, I'm overwhelmed and exhausted and I feel like whining.

Judy
Last edited by JudeD59 on Thu Aug 06, 2015 4:03 pm, edited 2 times in total.
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

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cmewrrie
Posts: 168
Joined: Fri Mar 13, 2015 9:03 pm

Re: Feeling overwhelmed tonight (Pity Party)

Postby cmewrrie » Sat Jul 25, 2015 4:12 am

That just really stinks :(. Sending cyber hugs your way. Hope tomorrow is better. I will pray all goes well with your test and surgery can go on as planned!
wife of DH (04/24/15 dx: age 43) Low RC T3N0M0 stage 2
4/27/15 clear CT
5/18 - 6/25 chemo/rad (ended xeloda on 6/19 due to side effects)
8/12/15 - ULAR scheduled - APR performed due to location - path showed T1N0M0
9/25 begin 5 rounds of xelox
10/30/15 - switch to xeloda only due to allergic reaction
1/22/16- last xeloda!
3/27/16 - post treatment CT - clear except soft tissue presacral area (possibly scar tissue) CEA .5
4/20/16 - post treatment colonoscopy

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Feeling overwhelmed tonight (Pity Party)

Postby cathy123 » Sat Jul 25, 2015 6:15 am

So so sorry Judy, I hope the stress test is fine snd you can move forward with your surgery. I am sure a delay wouldnt make a huge difference, and like you said you wouldn't really have a choice, but mentally I know how important it is to be able to get thru this.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Feeling overwhelmed tonight (Pity Party)

Postby DarknessEmbraced » Sat Jul 25, 2015 8:01 am

*hugs* I hope that the stress test turns out fine and that you are cleared for surgery!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Vol
Posts: 26
Joined: Thu Jul 23, 2015 3:57 am

Re: Feeling overwhelmed tonight (Pity Party)

Postby Vol » Sat Jul 25, 2015 9:38 am

Hey, with all that is going on, glad you spoke up. I'm sending a lot of good thoughts and support your way. Really hope it is good news!

Vol
Dad - 51
Father of 3 girls (27, 26, 20)
08/15 - Resection 08/15
08/15 - Dx - Stage 2A - High Risk (perf colon), 0 of 27 nodes
08/15 - Start - 8 cycles Xeloda, first 4 with Oxaliplatin (done in February)

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rwightman
Posts: 211
Joined: Sat Jan 17, 2015 6:50 pm
Location: Southwest

Re: Feeling overwhelmed tonight (Pity Party)

Postby rwightman » Sat Jul 25, 2015 11:28 am

We all deserve to have a pity party here and there. Hoping for good results on the heart test and surgery goes as scheduled.
10/9/14 DX Age 50 - MSS
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU

User avatar
Crystald
Posts: 142
Joined: Thu Feb 26, 2015 1:50 pm

Re: Feeling overwhelmed tonight (Pity Party)

Postby Crystald » Sat Jul 25, 2015 11:53 am

Just wow. Indulge yourself, pamper you. You have a very full plate atm, alot of unknowns. (((((((((hug))))))))
Age 58
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
KRASwt
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice

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ANDRETEXAS
Posts: 662
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Feeling overwhelmed tonight (Pity Party)

Postby ANDRETEXAS » Sat Jul 25, 2015 12:21 pm

Judy

Wishing you the best. I know you will be back on track soon. I do know how you feel. I've had surgery for a herniated disc, have a stent, had prostate cancer, and a few more maladies too numerous to discuss :D . Fortunately for me, there were no long waits between diagnosis, surgery and chemo for my colon cancer. Now, I am in a holding pattern circling the airport waiting for a permanent landing. I asked my doctor why was all this happening to me and all my other family members hardly ever had difficulties. He told me I was the only one in my family who could handle it. You sound like someone who could do just that. Yes, there are and will be down days, but stay positive and convince yourself that everything will work its way out. There is no alternative philosophy that will help you get to where you want to go. I am praying for you, me and everyone going thorough this by himself, family member or friend. You are strong !!

Andre
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT

3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT

3/23/16 - clean CT

2/22/17- clean CT

3/21/18 - clean CT
4/1 - clean colonoscopy

3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !

4/13/23 - clean colonoscopy

ONE DAY AT A TIME !

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Feeling overwhelmed tonight (Pity Party)

Postby Val*pal » Sat Jul 25, 2015 1:13 pm

You're not whining! Man, if I had all that hit me at once I'd be curled up in the closet wrapped in a quilt.

I hope you feel better emotionally soon. Sometimes it takes a good downer to clear one's head.

(((Hugs)))
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Feeling overwhelmed tonight (Pity Party)

Postby weisssoccermom » Sat Jul 25, 2015 2:07 pm

I really wouldn't worry too much about the delay....seriously, what options do you have? Let me share with you how my experience didn't fit into the mold of what I thought would happen. My chemoradiation ended the first week of September 2006. I was supposed to have a good 8-10 'rest' period prior to surgery. Fast forward to the first week in November....the then general surgeon wasn't sure about the surgery....blah blah and it didn't happen. I opted to do more chemo FIRST, prior to any surgery. Started chemo 11/17/2006 (one day after my 50th birthday) and had to take a break the end of January because I was hospitalized for numerous blood clots. Started chemo again - third week in February and had my surgery on 4/20/2007. Actually, I almost didn't have my surgery because as I was in the outpatient admit area, the nurse and anethesiologist freaked about my EKG...they didn't like whatever they saw and told me that they thought I had had a heart attack. WHAT???? I have an irregular heart beat and do see a cardiologist every few years but they couldn't get a hold of him for his consult on my test results. Had I had the presence of mind to demand that they bring down a cardiologist (I was at a large hospital in Seattle) I believe it would have all been cleared up but was too upset at the time to think about that solution. They went ahead with the surgery but I had to have propofol and a spinal (as opposed, I guess to total general anesthesia??). Anyway, my point is....the time between the end of radiation and my surgery was about 7.5 months. Granted, for most of that timeframe, I was taking Xeloda so I did feel that I was somehow 'protected'.

Hopefully your stress test will show that you are A-OK for surgery and you can get it scheduled and move on to the next phase of your journey. Try to relax about it all....there really is nothing you can do about it right this minute.
Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Feeling overwhelmed tonight (Pity Party)UPDATE

Postby JudeD59 » Thu Aug 06, 2015 4:11 pm

Doing my happy dance!!!!

Did the pharmacological stress test yesterday. Wasn't fun, but wasn't horrible. EKG looked fine, nothing concerning. I asked about the t wave inversion and she said she only saw it on one lead and it's probably just the way my heart works naturally. Even at the peak point in the test, my blood pressure was 130 over 80 and quickly dropped back to it's normal 110/70. They injected a radioisotope into my IV line to light up my heart then took pics while I was at rest and then again after the stress had been introduced. That way they can check to see how saturated the heart tissue is at rest and after stress to see if there are any blockages. I just got the call--all looks fine and I"m cleared for surgery next Wednesday!!

Getting things ready this weekend, seeing the stoma nurse Monday, and then prep on Tuesday. Yikes.

Thanks for your support!

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Feeling overwhelmed tonight (Pity Party)UPDATE

Postby DarknessEmbraced » Thu Aug 06, 2015 4:41 pm

I'm glad your heart is ok. Good luck with your surgery!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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