Update on Me

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trbiggins
Posts: 163
Joined: Mon Dec 09, 2013 7:20 pm
Facebook Username: Richard Biggins
Location: North Carolina

Update on Me

Postby trbiggins » Thu Jul 23, 2015 12:18 am

Scans completed Tuesday. Today got the results. Mets still growing. I figured as much seeing my CEA lately. I am now officially off of chemo. It's not working anymore. Met with a radiologist and scheduled SIRT for August 10. He said best possible scenario would be for it to prolong survival 5-7 months. Wow. I kinda knew I would get here eventually, but being here sucks. I hate it for my family and my mom. My sister died at 17 in a car accident. She shouldn't have to bury another child, but it's looking more and more like she will. Grim, I know, but my feelings are raw right now. Doctor said SIRT helps about 10% of patients reach resection, but in my case it was very unlikely. If there is any good in all of this, I am looking forward to life without chemo. The last two years have been chemo heavy. Dr. K did order mutation testing for my liver tumor. Maybe it will show what mutations I have and maybe lead to more effective chemo down the road. But I'm not getting my hopes up. Maybe one day someone will find a cure for this crap. I will probably take some time away from the forum. I want to try to get cancer off my mind for a while. Thanks to everyone who has supported and wished me well in the past. I hope all of you can beat this disease. There are lots of people on here who have done exactly that. I was hoping I would be one of them, but realistically that doesn't seem to be in the cards anymore. My goal from here on out is to live the best I can and love my family. That is all.

Richard
42 male at DX
Husband, father (girls 13 and 16)
Stage IV mets to liver Oct 2013
Xelox Dec 13-Apr 14
Avastin, Xeloda Apr-July 2014
Vectibix July
Vectibix/Irinotecan Dec 2014
Colon resect/ HAI pump Jan 2015
Folfiri/Vectibix/FUDR ongoing

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Update on Me

Postby midlifemom » Thu Jul 23, 2015 6:14 am

So sorry you are at this point.
Enjoy your chemo-free time and spend lots of time with your family.
You are always in my thoughts.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Update on Me

Postby DarknessEmbraced » Thu Jul 23, 2015 7:27 am

I'm so sorry you're at this point.*hugs* Yes focus on enjoying life chemo free.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

aja1121
Posts: 214
Joined: Sat Jun 28, 2014 5:12 pm

Re: Update on Me

Postby aja1121 » Thu Jul 23, 2015 8:21 am

I am so very sorry. You are in my thoughts, and I'm wishing you peace.
05/23/14 DH dx Stage 3B rectal ca (age 41)
6/2014 chemorad | 10/2014 LAR, all nodes clean
FOLFOX x 10 | VATS/lung met | ileo reversal
09/15 local recurrence
10/15 colostomy
11/15 FOLFIRI x 4, major growth
02/16 tumor debulked
Stable ten months on Xeloda/Avastin
Growth on clinical trials NCT02024607 (BBI608 + FOLFIRI), NCT02817633 (anti-PD-1 + anti-TIM-3), NCT03175224 (c-Met inhibitor)
09/27/2018 started hospice
02/07/19 died

jalusa
Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: Update on Me

Postby jalusa » Thu Jul 23, 2015 8:30 am

Sorry for you and your family. You are in our prayers.
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

Valorie
Posts: 365
Joined: Mon May 05, 2014 6:33 am

Re: Update on Me

Postby Valorie » Thu Jul 23, 2015 8:35 am

Richard- I hope the SIRT will give you maximum results possible. I am truly sorry you have to deal with this at all. Keeping you in my thoughts and prayers.

Valorie
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Update on Me

Postby pfCml73183 » Thu Jul 23, 2015 11:34 am

Richard, I will keep you in my thoughts and prayers.
I understand where you are coming from. I hope you get in some really good time with your loved ones.
Peace, Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

User avatar
ziggymonster
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: Update on Me

Postby ziggymonster » Thu Jul 23, 2015 12:29 pm

Richard, sorry to hear this news...I hope that you are one of the 10%....you deserve a break. I hate this damn disease.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Update on Me

Postby Val*pal » Thu Jul 23, 2015 12:40 pm

My thoughts are with you, Richard.

(((Hugs)))
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Update on Me

Postby cathy123 » Thu Jul 23, 2015 1:25 pm

So very sorry. Hope the SIRT works better than expected.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Update on Me

Postby ams5796 » Thu Jul 23, 2015 2:23 pm

I am so sorry to read this. I hope some opportunities present themselves.

My best wishes to you.



Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Update on Me

Postby juliej » Thu Jul 23, 2015 5:04 pm

Richard, first of all, I hope the SIRT goes better than expected. Second, I pray the mutation testing will lead to targeted treatment that goes after the tumors in a big way. Third, please know how many people are standing with you, though I think I can speak for all in wishing we knew how to do more.

trbiggins wrote:My goal from here on out is to live the best I can and love my family. That is all.

Amen.
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Update on Me

Postby jhocno197 » Thu Jul 23, 2015 5:41 pm

I'm so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Danieljt
Posts: 309
Joined: Sun Aug 10, 2014 10:32 pm

Re: Update on Me

Postby Danieljt » Thu Jul 23, 2015 7:09 pm

Richard, dan n I are wishing you and your family nothing but the best. I'm sorry things have gotten this far. Let's hope something good will come your way.
Jackie
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Update on Me

Postby Stanfordmom » Thu Jul 23, 2015 7:20 pm

Richard,

I am speechless and in tears. But like julie said, there might still be hope coming from a few things, please don't give up!

Sending prayers to you and your family.

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!


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