Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

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wwroam
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Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
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Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby wwroam » Fri Jul 24, 2015 12:26 am

Happy birthday mac.
The story improves with the retelling.
I've always had trouble seeking out help from others, even though I know the benefit is mutual.
Looking forward to hearing from you next year.
Wayne
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

Nik Colon

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Nik Colon » Fri Jul 24, 2015 1:26 am

Thank you for sharing your amazing story. So happy for you! I started chemo and had surgery at U if M. Switched to Mercy now which is down the road from me.

Love and hugs from Coon Rapids, MN
Nik

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waw4
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Joined: Sun Sep 12, 2010 8:44 am
Location: Durham, NC

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby waw4 » Fri Jul 24, 2015 4:51 am

So cool! Big hug & ultimate congrats to you with many happy returns!
-Bill
Bill's Colonoscopy 6/29/10; Dx Stage I or II
Surgery 7/15/10; Dx Stage III,15/32 lymph nodes
FOLFOX4 start 9/14/10; end 1/20/11 (9 tx)
2021 dx MSH6 Lynch Syndrome positive
(as are my brother, sister & son, but not daughter)
Grateful for 2nd Chance NED time!

Ron50
Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Ron50 » Fri Jul 24, 2015 8:36 am

Hugs Mac,congrats. Ron ( who has hung around for a while to).
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Lydia666
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Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Lydia666 » Fri Jul 24, 2015 9:16 am

Wow!!!

What a creepy doctor that first ine! Ugh!

Way to go!!!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

plastikos
Posts: 351
Joined: Wed Jan 14, 2015 6:09 am

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby plastikos » Fri Jul 24, 2015 11:37 am

Wow! Awesome story. Congratulations. Stories like yours give everyone so much hope. Thank you for taking the time to share it.
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED
2019 NED

Elvie
Posts: 32
Joined: Mon Jun 16, 2014 7:43 am

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Elvie » Fri Jul 24, 2015 7:15 pm

Thank you for sharing your story. Happy belated birthday and many more returns.
live-in caregiver/daughter to 83 yr old mom DX 4/14
Stage IV colorectal cancer
mets to liver
palliative chemo/radiation
In-patient Hospice Care 8/20/14
Departed to greener pastures 8/28/14
At peace in heaven with my dad.

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DBF
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Location: New York

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby DBF » Fri Jul 24, 2015 9:07 pm

Yay! :D :D

Congratulations, and happy birthday!

I'm almost two years NED- my liver resection was 9/13. I read your story shortly after I was diagnosed. It gave me so much hope. Thank you for sticking around and sharing your experience as a long-term stage 4 survivor.
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Spread to liver
9/13 Liver resection
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
2019: NED :)
2021: NED :D
2022: NED :)
Mom to 3 boys: 24, 13 & 9

anitaw
Posts: 35
Joined: Wed Jan 16, 2013 9:06 pm

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby anitaw » Fri Jul 24, 2015 11:32 pm

Congrats! Thank you for posting. I needed to hear an encouraging story today. I wish you only the best!
DX 2/12 Stage IV CC, mets to liver
3/12 - 12/12 Folfox + Avastin
2/13 - 5/13 Folfuri + Vectibix
HAI Pump - 6/13
2 stg liver res - 11/13 & 4/14
Clear scans: 5/14, 8/14, 9/14
1/15 new met in liver, ablated 6/15
11/15 - new met in liver, surgery 1/16, start Folfuri again
2/16 Scan: NED! Every day is a gift. 6/16 new mets, 2 lymph nodes
3/18 Lymph nodes resection, NED, Folfox again

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rwightman
Posts: 211
Joined: Sat Jan 17, 2015 6:50 pm
Location: Southwest

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby rwightman » Sat Jul 25, 2015 11:31 am

Best story I have read in a long time - so inspiring. I'll look forward to reading it again next year.
10/9/14 DX Age 50 - MSS
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU

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Crystald
Posts: 142
Joined: Thu Feb 26, 2015 1:50 pm

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Crystald » Sat Jul 25, 2015 11:44 am

Congrats and thanks for sharing your story, it means alot to folks still fighting.
Age 58
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
KRASwt
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice

tif2112
Posts: 114
Joined: Wed Jul 04, 2012 4:23 pm
Facebook Username: tif2112
Location: Henderson, NV

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby tif2112 » Sat Jul 25, 2015 11:53 pm

Congrats!
51 year old female
Henderson, Nv

T3N0M0
2012 DX - Rectosigmoid Mass, Colon Resection, rx - radiation and chemo
07-24-2014 NED
2014 englarge lymph nodes, biopsy of 1 negative
07-07-2015 even bigger enlarged lymph nodes, shown on MRI & CT
2015 biopsy of bone marrow, lymph nodes-negative
3-6-2018 still enlarged lymph nodes, no diagnosis

jens22
Posts: 1013
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby jens22 » Sun Jul 26, 2015 12:02 am

That is absolutely wonderful!! Thank you for the 'Good Read". You just gave so many a lot of hope.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Delinda2 » Mon Jul 27, 2015 10:54 am

Thank you for sharing your success story. Congrats and happy belated birthday. I look forward to seeing your updated birthday posts for many years to come. Hugs, XXOXO Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

Momto5boyz
Posts: 33
Joined: Wed Jul 08, 2015 12:54 am

Re: Happy 11 year Cancerversay to me!!! A Stage IV colon cancer survivor!!!

Postby Momto5boyz » Wed Jul 29, 2015 4:09 am

Awesome story! Congrats :)
12/14/13. Went to ER for stomach cramps :stage 4A colon cancer.
12/15/13 Had large tumor removed from colon and colostomy.
1/14 port put in
2/14 FOLFOX with Avastin 12 cycles.
8/25/14 liver res.
10/14 liver radiation/ Xeloda.
11/14 liver ablation
12/14 CEA rising to 7.2 from 2.4. ctscan shows positive cancer cells near ablation site and margin.
2/15 12 cycles of FOLFIRI with erbitux
7/15 CEA 1.4 ctscan shows stable with no progression.
8/15 CEA 1.4. Reversal scheduled for 9/10/15


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