A friend pushing 'Snake oil cures"

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MSJC
Posts: 158
Joined: Sun Jan 26, 2014 10:31 am
Location: Ashland City, Tn.

A friend pushing 'Snake oil cures"

Postby MSJC » Tue Jul 14, 2015 5:04 pm

A soon to be "ex-friend", keeps posting (not on this forum) and singing the praises of baking soda, changing your body ph, etc. as cancer cures. I know this topic has been talked about over and over and over again. I've asked for actual names and phone numbers for some of these folks that have been miraculously cured... I'm still waiting on an answer!!
Mike, 49 y/o at Dx 1/14 stage 3c
low rectal cancer 7 nodes positive
2/14 5 weeks chemo/rad. 5-fu
4/14 Lar gallbladder removed,
temp ileostomy
5/14 8 rds Folfox
10/14 reversal surgery
5/15 clean colonoscopy
6/15 clean ct scan

Ontario Guy
Posts: 278
Joined: Fri Aug 03, 2012 7:55 am

Re: A friend pushing 'Snake oil cures"

Postby Ontario Guy » Tue Jul 14, 2015 6:36 pm

Let us know if you get one.

OG

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: A friend pushing 'Snake oil cures"

Postby jhocno197 » Tue Jul 14, 2015 11:13 pm

It really ticks me off when people do that!!!!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: A friend pushing 'Snake oil cures"

Postby Val*pal » Wed Jul 15, 2015 12:02 pm

I think that the people who post or suggest these snake oil "cures" have ego problems. How else do you explain that they think they know more than science and medicine? I have one in my extended family, and I find it very difficult to be around her because she is always spouting this sh*%! :evil:
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

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exaussie
Posts: 618
Joined: Sun Jan 19, 2014 1:19 am
Location: Silverton OR
Contact:

Re: A friend pushing 'Snake oil cures"

Postby exaussie » Wed Jul 15, 2015 12:09 pm

Curious...does this person have cancer? If not, they have no business posting something they don't try themselves.
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: A friend pushing 'Snake oil cures"

Postby canadiandaughter » Wed Jul 15, 2015 2:49 pm

I would be very scared to ever try any of these random cures and stop with the ones that are working. I do though think that if you consult with your oncologist and some of these things will not screw with your chemo or whatever you are taking and you want to try them, go for it! Of course you will never know if it was the chemo or the snake oil that helps, but maybe trying it helped your mental ability to fight the disease and I think that is important to. Power of positive thinking cant hurt! I saw a post this AM about essential oils, my daughter is thinking about selling them so will be curious to see what that malarkey is all about! I know my girls use some of them for other things and they work, might be worth investigating or maybe someone on here has already found where its a dud!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

Ron50
Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: A friend pushing 'Snake oil cures"

Postby Ron50 » Wed Jul 15, 2015 3:54 pm

I was sitting in the skin cancer clinic during the week for my annual check. (One more large piece of my leg went missing this time) There were pamphlets there begging people not to use a product called black salve on their skin cancers and possible melanomas. They advised that it is such a powerful alkaloid that it is leaving people permanently scarred and disfigured and quite often the remaining cancer under the scar is very hard to detect. Most people get it from adds in the paper. Even the naturopaths won't go near it. BEWARE of the snake oil and whats in it. Ron
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Nik Colon

Re: A friend pushing 'Snake oil cures"

Postby Nik Colon » Wed Jul 15, 2015 5:12 pm

Ron50 wrote:I was sitting in the skin cancer clinic during the week for my annual check. (One more large piece of my leg went missing this time) There were pamphlets there begging people not to use a product called black salve on their skin cancers and possible melanomas. They advised that it is such a powerful alkaloid that it is leaving people permanently scarred and disfigured and quite often the remaining cancer under the scar is very hard to detect. Most people get it from adds in the paper. Even the naturopaths won't go near it. BEWARE of the snake oil and whats in it. Ron

Yep, I have heard of the black salve and seen the pics, why would anyone do that!

wandalein
Posts: 93
Joined: Thu Nov 07, 2013 6:24 pm
Facebook Username: Wanda Leinweber

Re: A friend pushing 'Snake oil cures"

Postby wandalein » Wed Jul 15, 2015 5:21 pm

My husband chose to go the non-conventional route but we would never give that advice to anyone we know with cancer. We only tell them what he is doing. When my cousin's husband was dx he took the traditional route and when he passed away my husband said we should have got him on the Oncolyn sooner. I said "no" they had to do what felt right to them, and it was only when he had exhausted those options that we could offer up any advice. It is one thing to take your own chances but you would not want to give recommendations to another person.
Wife of Chris
March 2012 Stage 3 rectal cancer
May 2014 spread to liver
JUNE 2014 Liver resection 80% including gallbladder
June 2014 PET, CT, MRI
Oct. 2014 NED
Apr. 2015 NED
Jan. 2017 - still NED

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: A friend pushing 'Snake oil cures"

Postby NZJay » Wed Jul 15, 2015 5:33 pm

Ron, I was strongly recommended Black Salve as a cure-all for ANY kind of cancer haha. Thankfully I'm neither lunatic nor moron.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

MSJC
Posts: 158
Joined: Sun Jan 26, 2014 10:31 am
Location: Ashland City, Tn.

Re: A friend pushing 'Snake oil cures"

Postby MSJC » Wed Jul 15, 2015 7:21 pm

Thanks for the replies! I have taken the approach of...convince me, I want to believe also, but she has offered no basis for her beliefs, no names, no phone numbers, nothing! My "friend" is educated and normally a very reasonable person, she does not have cancer, for the life of me, I can't figure out why she continues to promote products without personal knowledge or experience... the gloves are about to come off and it's probably going to get a little fuggly! :evil:
Mike, 49 y/o at Dx 1/14 stage 3c
low rectal cancer 7 nodes positive
2/14 5 weeks chemo/rad. 5-fu
4/14 Lar gallbladder removed,
temp ileostomy
5/14 8 rds Folfox
10/14 reversal surgery
5/15 clean colonoscopy
6/15 clean ct scan

MSJC
Posts: 158
Joined: Sun Jan 26, 2014 10:31 am
Location: Ashland City, Tn.

Re: A friend pushing 'Snake oil cures"

Postby MSJC » Wed Jul 15, 2015 7:31 pm

wandalein wrote:My husband chose to go the non-conventional route but we would never give that advice to anyone we know with cancer. We only tell them what he is doing. When my cousin's husband was dx he took the traditional route and when he passed away my husband said we should have got him on the Oncolyn sooner. I said "no" they had to do what felt right to them, and it was only when he had exhausted those options that we could offer up any advice. It is one thing to take your own chances but you would not want to give recommendations to another person.

I respect your husbands choice for his own treatment and would love to hear details of what worked for him. I have no problem with anyone relating their own personal story, as I can only tell others what I have personally experienced, it's when people promote "cures" just by "hear-say" that bugs the hell out of me!
Mike, 49 y/o at Dx 1/14 stage 3c
low rectal cancer 7 nodes positive
2/14 5 weeks chemo/rad. 5-fu
4/14 Lar gallbladder removed,
temp ileostomy
5/14 8 rds Folfox
10/14 reversal surgery
5/15 clean colonoscopy
6/15 clean ct scan

wandalein
Posts: 93
Joined: Thu Nov 07, 2013 6:24 pm
Facebook Username: Wanda Leinweber

Re: A friend pushing 'Snake oil cures"

Postby wandalein » Wed Jul 15, 2015 9:41 pm

I hear you. If it is a personal experience, if asked it is okay to relay. I also noticed that there is a blame thing people do. My husband doesn't drink or smoke (I do) and people would say, did he eat too much read meat, blah blah blah, looking for a reason. Maybe it is genetics or just bad luck. People look for a reason as well as a cure.
Wife of Chris
March 2012 Stage 3 rectal cancer
May 2014 spread to liver
JUNE 2014 Liver resection 80% including gallbladder
June 2014 PET, CT, MRI
Oct. 2014 NED
Apr. 2015 NED
Jan. 2017 - still NED

Nik Colon

Re: A friend pushing 'Snake oil cures"

Postby Nik Colon » Wed Jul 15, 2015 9:45 pm

wandalein wrote:I hear you. If it is a personal experience, if asked it is okay to relay. I also noticed that there is a blame thing people do. My husband doesn't drink or smoke (I do) and people would say, did he eat too much read meat, blah blah blah, looking for a reason. Maybe it is genetics or just bad luck. People look for a reason as well as a cure.

I hate the blame game! Too many I see who live healthy getting cancer! Cancer doesn't discriminate imo

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: A friend pushing 'Snake oil cures"

Postby JudeD59 » Wed Jul 15, 2015 9:50 pm

wandalein wrote:I hear you. If it is a personal experience, if asked it is okay to relay. I also noticed that there is a blame thing people do. My husband doesn't drink or smoke (I do) and people would say, did he eat too much read meat, blah blah blah, looking for a reason. Maybe it is genetics or just bad luck. People look for a reason as well as a cure.



My in-laws have done this for years around the dinner table and it drives me nuts. "Did you hear so and so has cancer? Well, you know she always (drank too much, smoked, ate too much, ate too little, jaywalked, crossed her legs, whatever) so it's no surprise to me." They always blame the person who is ill, as though anyone deserves to have cancer. I think it makes them feel bulletproof as though they could never possibly get it since they don't do whatever the person with cancer did. I've had to get up and leave the table because it makes me sick to my stomach. I'm sure they have all kinds of theories as to why I got rectal cancer. Maybe I got it because they have been a pain in my ass for 32 years.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4


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