Coming Up On 100 Rounds

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helen098
Posts: 2009
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

Re: Coming Up On 100 Rounds

Postby helen098 » Tue Jul 14, 2015 7:54 pm

Wow 100 and still kicking buts
Keep on fighting
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Coming Up On 100 Rounds

Postby cathy123 » Tue Jul 14, 2015 8:36 pm

Amazing - so glad you are able to continue enjoying a full life while going through this. Keep it up!
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Coming Up On 100 Rounds

Postby teachpdx » Tue Jul 14, 2015 8:56 pm

justin case wrote:I know I've been a pain in your side for quite some time :mrgreen: Butt, if I didn't see some idiot who called himself Brown Bagger, with a picture of Einstein, riding a bike, I would have never kept reading the forum. Your tenacity and tenure on this forum, not to mention your profound advice, is without precedence, during my tenure around here.
Warm regards,
Michael


Ditto Michael. You eloquently summed up how I feel. You're a warrior and I'm in awe. My will may be that strong but I don't believe my body could ever be. Do you have cancer teflon in your blood??? They should study you :twisted:
Peace,
Kristi
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Coming Up On 100 Rounds

Postby ams5796 » Tue Jul 14, 2015 9:17 pm

I'm truly glad that you're doing so well and that you make it look easy. Keep enjoying life!



Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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ktwmn
Posts: 350
Joined: Tue Aug 02, 2011 9:41 am

Re: Coming Up On 100 Rounds

Postby ktwmn » Tue Jul 14, 2015 9:29 pm

You go, bro!!!!!!!
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin

Mattie
Posts: 76
Joined: Fri Mar 07, 2014 1:06 am

Re: Coming Up On 100 Rounds

Postby Mattie » Tue Jul 14, 2015 10:07 pm

You are amazing and an inspiration. You have inspired me to start bike riding. I've done 650 miles so far this year.

I got tired of sitting around waiting for something bad to happen. I loved seeing your "10,000+ miles and counting" at the end of your posts.....

Keep on truckin!
4/10 debulk surgery, DX stage IVb, 49yo
5/10-11/11 Folfox, then Xeloda/Avastin
4/13 Resect liver met + pelvic node, 20+ Rad treatments
7/14 SBRT 15 mm Liver & node
12/14 SBRT 8 mm Liver met
3/16 4-5 pelvic nodes, Xeloda/Avastin again
12/16 NED, maintaining Xeloda/Avastin
8/17 NED Dropping Xeloda. Avastin only.
3/21 NED Avastin only
10/21 Pausing Avastin Proteinuria/BP complications
12/21 Resect 4.4 x 3.6 cm lower abdominal met

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Coming Up On 100 Rounds

Postby BrownBagger » Wed Jul 15, 2015 8:29 am

Mattie wrote: I've done 650 miles so far this year.

I got tired of sitting around waiting for something bad to happen.


That's great. It's a lot more than I've done so far, but I hope to start rackin' 'em back up again before long.

Hard to describe how good it feels to fly through the countryside on your own power. Makes it easy to forget cancer for awhile. Cuts your stress levels and that's a good thing.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Coming Up On 100 Rounds

Postby Bev G » Wed Jul 15, 2015 9:07 am

Geez, that's a LOT of chemo, friend. You've shown us all how to do it, butt few can do it as well.

Love to you,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

SaveMyArchie
Posts: 306
Joined: Tue Jan 19, 2010 10:14 pm

Re: Coming Up On 100 Rounds

Postby SaveMyArchie » Wed Jul 15, 2015 9:39 am

Wonderful track record, Eric. Good deal.
51 @ dx (I'm her son - call me Steve)

8/12: referred for hospice
7/12: significant progression
4/12: Vectibix
11/10: recurrence; XELIRI+Avastin 'forever'
7/10: NED; lingering CIPN
1/10: FOLFOX
12/09 - removed 19cm sigmoid colon/prox rectum; 5/13 nodes

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Coming Up On 100 Rounds

Postby BrownBagger » Wed Jul 15, 2015 12:31 pm

Recent bike ride with a friend here in central New York State. I can't seem to lose that gut, no matter what I try. Sucks getting old (but I'll take it!)

Image
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

User avatar
GrouseMan
Posts: 888
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: Coming Up On 100 Rounds

Postby GrouseMan » Wed Jul 15, 2015 2:59 pm

Well - I wouldn't say this is cool only that its amazing..... I think exercise is underrated as a supplement for treatment. Seems the more physically fit one is the easier on you treatment can be I guess. I really wish all these rounds came with a cure! Sadly not. :( :cry: But lets all hope that something better comes along before BB reaches his next infusion milestone (like 200 or even better 125!!! wouldn't that be something!)

GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Coming Up On 100 Rounds

Postby BrownBagger » Wed Jul 15, 2015 3:20 pm

GrouseMan wrote:I think exercise is underrated as a supplement for treatment. Seems the more physically fit one is the easier on you treatment can be I guess.


I think, and I think most other heavy exercisers around here would agree, that endorphins are pretty effective at killing nausea and fostering a general sense of well-being and stress relief. I'm really starting to think that stress is a big contributor to health problems--perhaps at lower levels than we generally acknowledge.

The fresh air and increased metabolic rate certainly keep the chemo from stagnating in your system. I believe the better you mix it--especially when fluid intake is involved--the easier it is.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

Nik Colon

Re: Coming Up On 100 Rounds

Postby Nik Colon » Wed Jul 15, 2015 4:55 pm

Wow! That's crazy! So glad you are taking it so well, I honestly don't know if I could. Stay strong my friend :)

behconsult
Posts: 264
Joined: Fri Jul 04, 2014 4:53 pm

Re: Coming Up On 100 Rounds

Postby behconsult » Wed Jul 15, 2015 5:14 pm

Keep ridin brownbagger. You probably glow after 100 rounds and can be seen from the air. Amen to you and may the next 100 be even more gentle. :D
Stage 4 Age 56 BrafV660E 5/14
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT

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elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: Coming Up On 100 Rounds

Postby elise » Wed Jul 15, 2015 8:02 pm

Mother F***** you're my hero!

Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED


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