Sleep and hair deprived

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Nik Colon

Sleep and hair deprived

Postby Nik Colon » Tue Jul 14, 2015 4:40 am

I am thinking about looking at wigs and other stuff tomorrow since Wednesday is chemo but I can't friggin sleep! It is what it is :( If I do go, I just really hope I don't crap myself when I'm out :shock: :roll: :mrgreen:

Have a good nite/morning everyone 8)

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Sleep and hair deprived

Postby midlifemom » Tue Jul 14, 2015 1:01 pm

Hope you made it out shopping.
I gained 20 pounds, and still gaining(?), from this last round of chemo.
Going shopping for new clothes is my consolation prize.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

JDinNC
Posts: 771
Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

Re: Sleep and hair deprived

Postby JDinNC » Tue Jul 14, 2015 3:40 pm

Ritz,

I ended up buying two wigs. The cancer society has a website for wigs. They are very reasonably priced, nice quality and has a good selection of styles and color to choose from.
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED

Nik Colon

Re: Sleep and hair deprived

Postby Nik Colon » Tue Jul 14, 2015 3:57 pm

I bought 2 today one dark brown with dark red highlights more like my hair but only wavy and a blonde one. Expensive! Insurance will reimburse up to 350, parents paid the rest.
Last edited by Nik Colon on Thu Jul 23, 2015 11:24 pm, edited 1 time in total.

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Sleep and hair deprived

Postby midlifemom » Thu Jul 23, 2015 6:42 am

Nik,
Just curious as to how you are doing with the wigs.

Being proactive while on Folfox, I got a wig, paid for by insurance, but never had to wear it since my hair thinned a bunch but I finished the 12 rounds before it got too bad. I didn't like it because of the color, but it was the best I could find.

I'm now on about infusion #12 of Folfiri and my hair has been thinning again. I think i'm on folfiri until it stops working, so I think it's going to thin itself out of existence. I'm thinking of trying to find another wig that I like better, butt I'm concerned it will be a wasted expense since I've heard they can be hot and itchy.

Thus, back to my question, how do you like your wigs?
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

Nik Colon

Re: Sleep and hair deprived

Postby Nik Colon » Thu Jul 23, 2015 11:23 pm

midlifemom wrote:Nik,
Just curious as to how you are doing with the wigs.

Being proactive while on Folfox, I got a wig, paid for by insurance, but never had to wear it since my hair thinned a bunch but I finished the 12 rounds before it got too bad. I didn't like it because of the color, but it was the best I could find.

I'm now on about infusion #12 of Folfiri and my hair has been thinning again. I think i'm on folfiri until it stops working, so I think it's going to thin itself out of existence. I'm thinking of trying to find another wig that I like better, butt I'm concerned it will be a wasted expense since I've heard they can be hot and itchy.

Thus, back to my question, how do you like your wigs?

I'm happy with mine, I only wear them when going out so not much of a problem for me. Yeah, I was expecting hair loss but not to the extreme where half fell out in one day!

User avatar
Sleen
Posts: 319
Joined: Tue Jan 14, 2014 7:41 am
Location: Detroit
Contact:

Re: Sleep and hair deprived

Postby Sleen » Sat Jul 25, 2015 8:04 pm

I'm doing the Chemo Beanie (TM) thing. They are a bit hot, but mostly comfortable and no worries about them slipping off. They have a flappy thing at the nape of the neck that makes it seem like you have hair still--keeps the draft off!

Having some fun w/scarves now, too. These are cooler than the Chemo Beanie, but sometimes hard to tie. Still working on regaining my strength, and holding my arms up for very long is exhausting. (sooo pathetic, I am)

Glad you found some wigs! Whatever works!

Celine
my blog: Cancer Riot

NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]

Married 34 yrs. kids: 28, 25, 21, 16, 14
SE Michigan home schooler, unemployed mechanical engineer, and programmer.

Nik Colon

Re: Sleep and hair deprived

Postby Nik Colon » Sun Jul 26, 2015 7:13 am

Sleen wrote:I'm doing the Chemo Beanie (TM) thing. They are a bit hot, but mostly comfortable and no worries about them slipping off. They have a flappy thing at the nape of the neck that makes it seem like you have hair still--keeps the draft off!

Having some fun w/scarves now, too. These are cooler than the Chemo Beanie, but sometimes hard to tie. Still working on regaining my strength, and holding my arms up for very long is exhausting. (sooo pathetic, I am)

Glad you found some wigs! Whatever works!

Celine

Chemo Beanie, I will have to look that up. Thanks Celine, best wishes to you (((hugs)))

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Sleep and hair deprived

Postby midlifemom » Sun Jul 26, 2015 9:16 am

Celine,
Have you tried the pre-tied scarves? I know TLC carries them. Save that arm energy for something good like HUGS :D
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?


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