Gloom and doom

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Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Gloom and doom

Postby Lydia666 » Wed Jul 08, 2015 2:01 pm

How do you all stay positive in this whole mess?

Still waiting on the ct scan result and tomorrow i have the MRI. I have some tenderness in my lower abdomen... What does that mean?

Seems like cancer has infested everything in my life!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Gloom and doom

Postby alphagam » Wed Jul 08, 2015 2:17 pm

It's not easy. Remember though your cancer is "in situ".... Mine was, had a Transanal Microscopic Excision, cancer free. With the occasional diarreah episode. You have hope. Not a lot do.
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

Tanya
Posts: 116
Joined: Fri Jul 03, 2015 10:34 am
Location: Kings park NY

Re: Gloom and doom

Postby Tanya » Wed Jul 08, 2015 3:12 pm

Good luck with MRI and CT.I cross my finger for you.
Dx-32y.o. Anal cancer-stage 3.
Aug-Sep xeloda & radiation-30
November 12-MRI-bones clear
November 30-NED
Moms of two (3 & 12 y.o.)
Recurrence -01.19.2016
Colostomy and APR surgery - 01.27.2016
Possibly chemo - June

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Gloom and doom

Postby Lydia666 » Wed Jul 08, 2015 4:44 pm

Hi alpha, it would be great if in situ but i dont think we can conclude that yet...that was on the biopsy but somehow i dont fully trust it. I think only after surgery we'll know if nodes are involved.

What scans have they used for your diagnosis prior to surgery? Which test determines the nodes??

Thanks.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Gloom and doom

Postby Lydia666 » Wed Jul 08, 2015 5:00 pm

Alpha, mine is described as invasive cancer. :(
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Gloom and doom

Postby jhocno197 » Wed Jul 08, 2015 9:18 pm

Unfortunately, I don't stay positive. But, I'm the caregiver. My poor hubs is pretty freaking positive, and I have no idea how. Usually, he's the pessimist & I'm the optimist.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

LB10
Posts: 107
Joined: Tue Mar 17, 2015 5:25 pm

Re: Gloom and doom

Postby LB10 » Thu Jul 09, 2015 7:59 am

Lydia, you are going through the worst of it now. I was out of my mind, didn't want to leave my house, couldn't sleep, eat etc. if it wasn't for the fact that my kids needed me, I don't know what I would have done. I was really only able to function at all for them. That all changed once I had all of the information and a treatment plan in place. Once I started treatment it was like "what cancer?" It's amazing how the mind works and how strong you can be when you need to. It is a bit of a roller coaster, and the fear and anxiety do rear their ugly head at certain key points, but I promise you will be better able to cope once you have a plan. Two things that really helped me were a prescription for Xanax ( I only took them at night ) and speaking with the social worker at my cancer center. I put it off a long time, thinking I didn't need to or that it wouldn't help me. A friend who is also a cancer survivor pushed me to go and I was very glad I did. Only sorry I waited so long. Hang in there. Things will feel better soon. You will have peace and happiness again even while on this journey that has been foisted on us all.
Stage III Rectal cancer
Dx 3/14
4/14-7/14 8 rounds Folfox
8/14-9/14 Radiation/Xeloda
1/15 APR colostomy
46 yo wife & mom


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