Anterior Resection without ostomy?

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jaycey60
Posts: 38
Joined: Thu Mar 05, 2015 11:27 pm

Anterior Resection without ostomy?

Postby jaycey60 » Sun Jul 05, 2015 7:09 pm

Hi All,

I've searched through the old posts to try to find out more about (a) the timeline, and (b) quality of life (AKA bowel movement issues) with an anterior resection without temporary ostomy, but I can't seem to find that - most people seem to have had a temp ostomy of some kind. O Stoma Mia gave a stellar timeline in a 2014 post about how many weeks between chemo & surgery and recovery - but it includes the temp ostomy.

L has 8 cm from the tumor to the sphincter (the tumor is at the rectal fold) and the surgeon just told us he doesn't think a temporary ostomy will be necessary - he intends to just sew the rectum back together (made easier by the fact that L had chemo beforehand, but they are choosing to hold off on radiation, and will use it only if the pathology reports show poor margins after surgery, so her tissue isn't radiation-burned).

Can anybody point me to some posts that talk about experience post-surgery when they just put the rectum back immediately? Particularly time to recovery (various points in recovery), and bowel issues? Is the Anterior Resection Syndrome that I see so many people writing about a concern in a case like this?

Thanks for your wisdom - and apologies if I missed a post that was relevant.
Last edited by jaycey60 on Thu Jul 09, 2015 4:53 pm, edited 1 time in total.
Partner of L
2/2015: Dx @ 41 yrs rectal cancer T3,N2,M1a (Stage IVa, mets in pelvic and abdominal lymph nodes)
KRAS mutant
3/16/15: Start first treatment: FOLFOX
3/19/15: Heart failure
4/6/15: Switch to FLOX
5/15/15: PET/CT: reduction of main tumor & 4 of 8 malig lymph nodes.
Rx: 2 more chemo
7/20/15 L starts treatment arm of immune-stimulant trial: interferon, Celebrex & rintatolimod for 5 days, then resection of rectal tumor & all lymph nodes in pelvis, peri-rectal & abdomen.

lori314
Posts: 76
Joined: Sun Oct 20, 2013 10:58 am
Facebook Username: Lori Biddinger

Re: Anterior Resection without colostomy?

Postby lori314 » Mon Jul 06, 2015 4:47 pm

I'm not sure what you are asking about. I had surgery first, ULAR with no colostomy. Then radiation and chemo. Do I fit the criteria you are asking about?
7/13 Dx Stage IIIc rectal cancer
8/13 LAR, no ileo
9/13 4 wks of radiation with folfox pump
11/13 12 rounds Folfox, last 2 oxi taken out
6/14 CT Scan-NED
9/14 Colonoscopy-normal
6/15 CT Scan-15+ lung mets, makes me Stage IV
8/15 Irinotecan,Avastin,5FU pump
12/15 chemo break

tif2112
Posts: 114
Joined: Wed Jul 04, 2012 4:23 pm
Facebook Username: tif2112
Location: Henderson, NV

Re: Anterior Resection without colostomy?

Postby tif2112 » Mon Jul 06, 2015 6:22 pm

I had rectal cancer, and the part removed was very close to the end. The Dr. was able to leave enough that I did not have to have a bag (even temp). I do have days where it seems like I never stop running to the bathroom and there are still days where I have an accident cuz I don't make it fast enough. Before I started having the rectal cancer symptoms I was able to hold off going poop until I was home (hated going out in public), that is way in the past, now if I feel the urge I better head to the bathroom ASAP. It does get frustrating but I happy without the bag.
51 year old female
Henderson, Nv

T3N0M0
2012 DX - Rectosigmoid Mass, Colon Resection, rx - radiation and chemo
07-24-2014 NED
2014 englarge lymph nodes, biopsy of 1 negative
07-07-2015 even bigger enlarged lymph nodes, shown on MRI & CT
2015 biopsy of bone marrow, lymph nodes-negative
3-6-2018 still enlarged lymph nodes, no diagnosis

jaycey60
Posts: 38
Joined: Thu Mar 05, 2015 11:27 pm

Re: Anterior Resection without ostomy?

Postby jaycey60 » Mon Jul 06, 2015 10:17 pm

Hi Lori,

Yes, you fit the criteria: resection without temporary ostomy. So how long between surgery and radiation / chemo? And what was it like to try to use a newly sewn rectum after surgery - were you initially constipated? Lots of diarrhea? how long before things were normal (if ever)? What was your quality of life like - what bowel issues did you have during recovery? And how long did it take?

Thank you tif2112 as well. So, how long has it been since your surgery? Do you still need to run to the bathroom?

thanks so much both of you for responding. The docs don't seem forthcoming about this kind of information!
Last edited by jaycey60 on Thu Jul 09, 2015 4:55 pm, edited 2 times in total.
Partner of L
2/2015: Dx @ 41 yrs rectal cancer T3,N2,M1a (Stage IVa, mets in pelvic and abdominal lymph nodes)
KRAS mutant
3/16/15: Start first treatment: FOLFOX
3/19/15: Heart failure
4/6/15: Switch to FLOX
5/15/15: PET/CT: reduction of main tumor & 4 of 8 malig lymph nodes.
Rx: 2 more chemo
7/20/15 L starts treatment arm of immune-stimulant trial: interferon, Celebrex & rintatolimod for 5 days, then resection of rectal tumor & all lymph nodes in pelvis, peri-rectal & abdomen.

User avatar
BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Anterior Resection without colostomy?

Postby BrownBagger » Tue Jul 07, 2015 10:53 am

Aren't we talking about an ileostomy? That's what I had. Seems to me than any healing from the rectum on up is best aided by an ileostomy.

But I could be wrong.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

jaycey60
Posts: 38
Joined: Thu Mar 05, 2015 11:27 pm

Re: Anterior Resection without colostomy?

Postby jaycey60 » Tue Jul 07, 2015 4:19 pm

I'm glad you posted, BrownBagger. What the surgeon told L is that she won't have any kind of ostomy - not even temporary - that he'll remove the tumor from her rectum, and then just sew the rectum back together and she'll have to use it right away. That seems uncommon on this forum - and I'd love to hear people's experience.
Last edited by jaycey60 on Thu Jul 09, 2015 4:55 pm, edited 1 time in total.
Partner of L
2/2015: Dx @ 41 yrs rectal cancer T3,N2,M1a (Stage IVa, mets in pelvic and abdominal lymph nodes)
KRAS mutant
3/16/15: Start first treatment: FOLFOX
3/19/15: Heart failure
4/6/15: Switch to FLOX
5/15/15: PET/CT: reduction of main tumor & 4 of 8 malig lymph nodes.
Rx: 2 more chemo
7/20/15 L starts treatment arm of immune-stimulant trial: interferon, Celebrex & rintatolimod for 5 days, then resection of rectal tumor & all lymph nodes in pelvis, peri-rectal & abdomen.

tif2112
Posts: 114
Joined: Wed Jul 04, 2012 4:23 pm
Facebook Username: tif2112
Location: Henderson, NV

Re: Anterior Resection without colostomy?

Postby tif2112 » Wed Jul 08, 2015 12:09 pm

My surgery was July 18th, 2012. Yes there are times I have to run to the bathroom and there are times I do not make it. For the most part seems to happen about once a week. I use to be able to hold off going poop until I was somewhere I felt comfortable but now...if I feel the urge (which is usually several times a day, unless it is a day of constipation) I have to head to the restroom, there is no holding it anymore.
51 year old female
Henderson, Nv

T3N0M0
2012 DX - Rectosigmoid Mass, Colon Resection, rx - radiation and chemo
07-24-2014 NED
2014 englarge lymph nodes, biopsy of 1 negative
07-07-2015 even bigger enlarged lymph nodes, shown on MRI & CT
2015 biopsy of bone marrow, lymph nodes-negative
3-6-2018 still enlarged lymph nodes, no diagnosis

jaycey60
Posts: 38
Joined: Thu Mar 05, 2015 11:27 pm

Re: Anterior Resection without ostomy?

Postby jaycey60 » Thu Jul 09, 2015 4:55 pm

Dear tif2112,

Thank you for sharing your experience. I hadn't realized that it's harder to hold it in. Is that because the sphincter can get damaged during the operation, or is there another reason?

Jaycey
Partner of L
2/2015: Dx @ 41 yrs rectal cancer T3,N2,M1a (Stage IVa, mets in pelvic and abdominal lymph nodes)
KRAS mutant
3/16/15: Start first treatment: FOLFOX
3/19/15: Heart failure
4/6/15: Switch to FLOX
5/15/15: PET/CT: reduction of main tumor & 4 of 8 malig lymph nodes.
Rx: 2 more chemo
7/20/15 L starts treatment arm of immune-stimulant trial: interferon, Celebrex & rintatolimod for 5 days, then resection of rectal tumor & all lymph nodes in pelvis, peri-rectal & abdomen.


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