Biopsy - Metastatic Colon Cancer back after 5 year Clean

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Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby chrissyrice » Thu Jul 02, 2015 6:32 pm

Hope I don't spoil your holiday weekend... but I got the results today from my biopsy. I have moved from Stage 3b to Stage 4 with a single lymph node that is positive for metastatic colon cancer. My doctor was shocked as this is not usual... I told him that I was special and very unusual as my blood work is always good and after 5 year of clear scans... almost to the day of my last chemo treatment I am back in the game. I will be seeing the surgeon on Monday July 6th to plan the lymph node removal as well as the removal of as many as can be taken in the area to be tested.
After surgery we will decide about mop up chemo. The one thing I forgot to ask is for my medical marijuana card. So instead my dear hubby and I when out and had a few drinks. I know this is so fucking unfair and but am relieved to know what is going on and I can deal with it.
How is another story altogether. But, each of you are in the same situation as me ...however I was not blessed with children and my family pretty much sucks until they need something from me. My friends don't deal with sick or cancer no matter how long I have been there for them. Guess I am saying I don't have much to stick around for.
So I have nothing to lose and I would give my life to see anyone of you here be cured and to be there for your children and to continue your lives free of cancer. I maybe around a long time or maybe not so long .... it really doesn't matter... I just am sad that I never got to live on the ocean or visit the beach more.
LOL but with my luck a freaking shark probably would have decided to attack me. :mrgreen:
I wish I could get drunk tonight ... but I have to go to work tomorrow and figure out how to get my disability insurance and tell the boss he has to replace me asap. I am done with this shit!
Last edited by chrissyrice on Thu Jul 02, 2015 6:34 pm, edited 2 times in total.
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

Nik Colon

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby Nik Colon » Thu Jul 02, 2015 6:33 pm

Again, so sorry :(

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Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby cathy123 » Thu Jul 02, 2015 7:05 pm

So very sorry - after 5 years that doesn't seem right. I hope it is just the one node and can be dealt with.

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

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Location: Ashland City, Tn.

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby MSJC » Thu Jul 02, 2015 7:15 pm

It's really amazing how this crap stops your "normal" life in it's tracks. I for one appreciate your offer, but will not be taking you up on swapping lives. I believe you have many more friends here than you could possible imagine :D... now go kick some cancer's ass young lady!
Mike, 49 y/o at Dx 1/14 stage 3c
low rectal cancer 7 nodes positive
2/14 5 weeks chemo/rad. 5-fu
4/14 Lar gallbladder removed,
temp ileostomy
5/14 8 rds Folfox
10/14 reversal surgery
5/15 clean colonoscopy
6/15 clean ct scan

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Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby midlifemom » Thu Jul 02, 2015 7:37 pm

Sorry to hear your news.
No fair!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

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Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby Jack&KatiesMommy » Thu Jul 02, 2015 8:00 pm

I am so very sorry! You don't deserve this! And you have your dear hubby....that sounds like a great reason to put up a good fight. It is great that the lymph node is resectable! Get it out of there...and start the NED clock ticking again....this time for more than 5 years!

Thinking oaf you and praying for you!
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

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Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby edinaman » Thu Jul 02, 2015 8:02 pm

I am so sorry that the cancer returned after 5 years. Have that drink (or two or more), and realize you could still have many years. You have many friends here who are pulling for you.
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

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Joined: Sun Aug 10, 2014 10:32 pm

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby Danieljt » Thu Jul 02, 2015 8:12 pm

Chrissy, please don't despair! I no it's a kick in the ass but you have got to carry on. My heart breaks for you and you sure don't deserve this. Every life is important and you life is important to us here on this forums, after things settle down you can dig in snd move forward. Hugs
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.

justin case
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Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby justin case » Thu Jul 02, 2015 8:27 pm

It's very hard to see people in turmoil, that I have grown to appreciate so much. I'll be thinking of you, as you make the most of what is important to you.
Your light on this forum is undeniable, so get better soon.
Warm regards,
7/11 diagnosed Stage 2 colon and rectal cancer
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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Location: New Brunswick, Canada

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby DarknessEmbraced » Thu Jul 02, 2015 8:29 pm

I'm so very sorry.*hugs* So very unfair. :cry: :(
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Location: Dayton, Ohio

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby Rasputin » Thu Jul 02, 2015 8:51 pm

After 7 years, I "forgot" cancer. Never really thought about it. I hope treatment does you well!
Dec 07 50 y/o 'scope dx CRC
Jan 08 surgery took 7" colon 7" in. T1N0M0 NED
09-13 'scopes NED
Nov 14 CT thumb sized mass near surgery outside colon
Dec 14 PET, biopsy dx malignant, no mets
Jan/Feb 15 25X Xeloda, radiation
4/9 LAR, perm. ostomy, cancer remaining?
5/22 start 8X XELOX

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Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby canadiandaughter » Thu Jul 02, 2015 8:59 pm

Dear sweet Chrissy, you have more friends then you know and lots of "family" right here that really care about you! Go out and get plastered tomorrow night, whatever you need to do to vent, then come back and get ready to fight this bastard head on. You have your wonderful hubby who I am sure needs you so don't forget that! Plus you have one more person to fight for and that is you!!! You have so much to offer to this world. Sending you a big hug! Good luck with all the arrangements you need to make to get ready. I will keep you in my thoughts and prayers that Monday you get a good plan with the surgeon and go kick cancer in the ass one more time!!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

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Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby ktwmn » Thu Jul 02, 2015 9:11 pm

Dear Chrissy,
You have much to live for, a dear hubby who loves you, and I would suspect many more friends than you feel you have right now. I can tell from your postings that you are a kind, patient and helpful person; I am sure there are many people in your world who look to you for encouragement and positive vibes. You are in the middle of the darkest period of uncertainty, having battled this disease before and shocked and stunned that the beast has reared its ugly head after so long. But look at the positives: it is one lymph node that is likely resectable. Sure, there may be some adjuvant chemo but it is doable. I am dealing with a recurrence after 4 years and have had 6 tx of neoadjuvant folfiri + avastin in the hopes that someday I can be a candidate for surgery. I still work full-time. So, please don't jump to conclusions about having to quit your job and throw in the towel. In all likelihood your time spent in cancerland will be similar to your original resection and treatment, less than a year. Yes, you will think about it every day and yes, we are forever changed from the experience. But essentially you are Chrissy and not cancer and your powerful spirit will prevail. Hang in there and stay strong!
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin

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Joined: Wed Nov 19, 2014 11:11 pm

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby lpas » Thu Jul 02, 2015 9:14 pm

Oh Chrissy, I'm sorry. I was so hoping to hear better news from you about this. I say get that node out of there and we'll see what happens. It's way too early to be giving up. Your life is just as important as anyone elses's and you have lots of living left to do!! Remember, we're all here to support you!
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

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Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby ziggymonster » Thu Jul 02, 2015 9:18 pm

I'm so sorry to hear this...not fair but then cancer doesn't play fair. This weekend have a bunch of drinks,then next week get your plan ready. Hopefully just a single node....whack a mole!! You can do this.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

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