Biopsy - Metastatic Colon Cancer back after 5 year Clean

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
Posts: 183
Joined: Sun Aug 14, 2011 10:34 am

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby teacher49 » Thu Jul 02, 2015 9:32 pm

Chrissy, I am so sorry to hear this....but I'm hoping for a good outcome again for you.
F, 62,CRC, Adenoca, mod diff
cT3N0M0 Stage IIA May 2011
APR on 9/27/11 Margins & Nodes Neg
comp.after surg/2 pelvic abscesses/Sepsis/Hosp 40 days
10th FOLFOX 6/6/2012 feet went numb
5FU to finish
NED 12/21/2020

Posts: 316
Joined: Tue Aug 19, 2014 9:41 am

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby testing765 » Thu Jul 02, 2015 9:52 pm

Chrissy, you helped me to get through my resection and chemotherapy. If there is something I can do to help you, please let me know. You will get through this.
male-age 44 at diagnosis
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

User avatar
Posts: 269
Joined: Thu Oct 24, 2013 1:40 pm

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby TheLadySkye » Thu Jul 02, 2015 10:09 pm

I hate this so hard :( Sending lots of good thoughts your way. Kick it in the teeth and make it regret the day it decided to reside in you. Then NED another 5 and forever!
Stage 2b (T4N0M0) small intestine (jejunum) 8/13
Small bowel resection 9/13
CT 10/13 - NED
FOLFOX chemotherapy 11/13 - 4/14
CT 6/14 - NED and my nemesis (the power port) out!
Clean colonoscopy and endoscopy 9/14
CT 12/14, 6/15 - NED!!!

Posts: 1012
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby jens22 » Thu Jul 02, 2015 10:46 pm

That totally Sucks....What the Heck? My Oncologist told me something once that made some sense to me. If your Lymph node Catch the Cancer cells. Then they are working. Hopefully the doctor got it and it was slow growning and storing. This is scary and crazy. Prayers that the treatment is easy.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

Posts: 1534
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby bitchslapped » Thu Jul 02, 2015 11:29 pm

That's quite a punch in the gut after 5 years NED. May take a few days, few weeks to get your mojo back, but you will...because you have to. I don't know what is the bigger slap in the face or if there is any comparison; to have been NED for 5 years to find out you are no longer & have that taken away, or to have never been NED & hoped for it so long. No point in pondering that one. Hoping it's just the one lymph node.

Best Wishes

DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

Deborah Ann
Posts: 30
Joined: Mon Dec 01, 2014 2:13 pm

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby Deborah Ann » Thu Jul 02, 2015 11:56 pm

I am so sad to hear this....give yourself some time, then get set for round 2. Hopefully you can be ned again soon. I can relate to the beach thing....I have lived in Arizona since I was 14 and I really don't get to the beach as much as I would like....something soothing about just sitting on the shore and listening to the waves...I would get out a calendar and plan a future beach date...
Hang in there....

User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby Bev G » Fri Jul 03, 2015 6:40 am

Oh, Chrissy. This news is astonishing. After 5 years!! Take some time to fit this is to your world, then go after it again. I know many stage IVs who have had a recurrence then gone on to being NED for many years. Sending you much love and all the support and encouragement I can give you. You are an awesome woman, get drunk then kick your awesomeness into overdrive.


58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby Val*pal » Fri Jul 03, 2015 1:38 pm

I'm so sorry, Chrissy. I know you must feel so defeated.

However, keep in mind that the node has been identified, and you can now move forward with aggressive treatment.

DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby Ron50 » Fri Jul 03, 2015 6:08 pm

G'day Chrissy,
First of all sending a giant hug . Those of us who have had long term survival cringe when we see a post like this. I have had it explained to me by my oncologist years ago. I had asked if colon cancer can regenerate from one bad cell. He said that in his opinion it can't , from research that he had seen several cancer cells have to meet to form a met and start up again. That was the prime reason for chemo. Not to clean up micromets rather to kill individual cells so they cannot form micromets. My surgeon was a quaint almost eccentric old school doc. Right up to year six of survival he kept telling me that I was not out of the woods. After six years he was willing to call me clear and cured of that cancer. THAT cancer! He then went on to tell me that a lot of things have to go wrong in the human body for cancer to form, we do have natural defences. He went on to say that once we have fulfilled the criteria to get cancer once we are forever in the zone and have to stay vigilant for further cancers. I have tried to maintain that vigilance . The closest I have come is 2mm polyps with displaysia. My Gi was stunned that such small polyps would have pre cancerous changes. I have been clear of cancer for nearly seventeen years. I still don't take survival for granted and I still battle serious long term side effects of chemo that may yet kill me. I truly understand how you feel at the moment. I have battled the same fears for a long time. I wish you well for your upcoming treatment and hope that it will result in long term survival. Hugs again to you and your hubby. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby orcasres » Fri Jul 03, 2015 9:28 pm


I am so sorry to hear this; I so hoped it would be a false alarm. I am coming up on five years, and if I got (get?) news like that I would not be nearly as gracious as you are. It sounds like you are getting ready to take it on and I hope that the treatment is successful. It is not the same as beaches in CA, but we live on a beautiful island in WA (we're biased of course) with a 1700 foot view of the Salish Sea and a guest house and you and your husband are welcome any time once you get this next round behind you.

63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

Posts: 174
Joined: Mon Apr 21, 2014 8:39 pm

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby cmrl » Fri Jul 03, 2015 9:52 pm

So sorry to hear this news. There's not much left to say, that hasn't already been said here. It is obvious how much you mean to this forum, and I hope that you can feel that. Hang in there!
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal

Posts: 197
Joined: Sat Nov 26, 2011 10:27 pm

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby kpjpmom » Sat Jul 04, 2015 12:54 pm

I am so sorry that you are here. Cancer sucks! Hope you get a plan that you are happy with. Will be thinking of you in the days ahead!
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.

Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby Stanfordmom » Sat Jul 04, 2015 4:14 pm


Sorry to hear this news. You will come out NED again, and stay there forever.

Sending you positive energy and prayers!
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

Posts: 6202
Joined: Sun Apr 16, 2006 4:09 pm

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby Lee » Sat Jul 04, 2015 4:53 pm


I am so very sorry to read this. I was hoping and praying it was a swollen node not due to cancer but other reasons. After all this time, hopefully that is the only issue and you will soon be back in NEDville. Thinking of you,


rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Biopsy - Metastatic Colon Cancer back after 5 year Clean

Postby chrissyrice » Sat Jul 04, 2015 6:53 pm

Thanks so much everyone.

You all have helped me so much with your replies and ideas.

So I am getting my mojo back and ready to ask the surgeon some good questions on Monday. Not sure if I will get a second opinion or not it depends on what happens when we talk. He didn't do my resection and is at another hospital.

Like I forgot that I don't have to rush into surgery... I can wait a couple of weeks and get things settled at work and perhaps the hubby and I can get to the ocean for a few days.

Remember we are working under the assumption that this is a slower grower and I am not in danger of poop backing up to my ears! :mrgreen: :mrgreen:

I still am pissed about not getting my 5 year NED trophy on August 1st this year! I was so close, that it's like one of those awful nightmares.

I am so glad I have this place to come to and share my thoughts without judgements or stupid questions from people who don't get it.

I also started to believe in the future again... but I am 63 and the body is getting out of shape for long walks on the beach... guess I be spending more time at the tiki bar and if I can make it to the restroom in time that is exercise enough! :mrgreen: :twisted: :mrgreen: :roll:
Last edited by chrissyrice on Sun Jul 05, 2015 12:02 pm, edited 1 time in total.
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: No registered users and 3 guests