some general whining

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megan120
Posts: 127
Joined: Mon Jun 16, 2014 10:54 pm

Re: some general whining

Postby megan120 » Thu Jul 02, 2015 5:16 pm

We are here for you just like you have been here for so many of us. I am sorry that this has been such a hard time for you right now. I don't think that anyone could cope with all you are going through, especially not when going through their own health issues.
36 year old mama to 3 (8,5,3)
Dx May 2014
Stage IV cc with met to cervix
2/134 pos LN
partial colectomy with temp ileostomy
folfox with avastin 6/14
Oct 14, hyst-mets to uterus, rt ovary implants
1/6/15 6 rounds of folfox
5/4/15 done with 28 tx chemo-rad
7/24/15 completion colectomy, NED!

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: some general whining

Postby justin case » Thu Jul 02, 2015 6:08 pm

The degeneration of good friends, is hard to deal with. I have been there, and sometimes, you are the only one who knew that person (totally). As for your mother, there are only so many hours in a day. This is probably not a good solution for you, but when I was raising 5 children, and my mother ( who was wheelchair bound) just needed to wait her turn, to be accommodated !
That was well before I had cancer issues. I know it is not easy to lose control of situations , and be Superman,
but yes Michael, it can happen. I hope things smooth out.
Warm regards,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: some general whining

Postby bitchslapped » Fri Jul 03, 2015 12:12 am

Had my DM on both Aricept & Namenda together. Anything to help slow down the progression of dementia was worthwhile IMO. It took some doing as Namenda had only been approved for use in the U.S. a couple of years @ that time, though had been used in Germany for 20 years. Hope you consider hiring in some help a few hours a week or so to lighten your load somewhat. You've got a full plate there. As far as the low dose spironolactone, I would only expect that it might take the edge off of the breathing issues. Imagine you will be contacting the doc re: a higher dose. Sure does seem when it rains, it pours sometimes, doesn't it?

Best Wishes
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: some general whining

Postby Bev G » Fri Jul 03, 2015 6:33 am

Holy sh*t what a horrible week. Whine away any time you feel like it Voxx. You've got tons of friends here who care.

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Voxx66
Posts: 1844
Joined: Wed Jul 24, 2013 10:22 pm
Facebook Username: Michael Void Ward

Re: some general whining

Postby Voxx66 » Fri Jul 03, 2015 6:12 pm

Thanks for the various kind words and good advice. (I also would have accepted - STOP WHINING!)

I'm feeling a bit better physically today. Unfortunately one of my friends either died or is about to die. He has been declared essentially brain dead and the respirator is coming off today. I guess you could say he died last Saturday as he never woke up. Ah well - I had a bunch of stuff I wanted to write here but will have to save it for later. Not feeling it atm.

V
DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
5fu
10/14 mets lung and peri
1/15 Folfiri

Nik Colon

Re: some general whining

Postby Nik Colon » Fri Jul 03, 2015 6:26 pm

So sorry Voxx :( love and hugs

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: some general whining

Postby justin case » Fri Jul 03, 2015 6:59 pm

I dunno dude :roll: It looks like you had 600 thoughts coming your way, to hope you were doing alright. As I have been reminded since the 70's, I'm just trying to make it real, compared to what :roll:
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: some general whining

Postby CRguy » Fri Jul 03, 2015 11:20 pm

Voxx66 wrote: (I also would have accepted - STOP WHINING!)

trust me I would have said it if you "needed" it .....
You don't, and it just goes to show the quality of your character by even thinking that ...
i.e. .... don't want to bother or sound like that with my homies ... we've been through so much ....

which is WHY HERE .. of all places you NEED to vent and share and rant
shitty days and weeks NEED to be shared out and diluted amongst friends.

You've been thru a bit of turbulence Voxx
It sucks hugely about your friend
It is OK to settle the turmoil by letting it out
WE know
WE understand
WE Get IT !

You are WE and
We are here for You

I am he as you are he as you are me
And we are all together
Beatles - I Am The Walrus


WORD !
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: some general whining

Postby pfCml73183 » Sat Jul 04, 2015 12:34 am

Hugs for your strength and comfort right now Voxx.
Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: some general whining

Postby weisssoccermom » Sat Jul 04, 2015 12:51 am

Voxx...I am very sorry for your friend. It must be difficult for you not only to have to deal with it but not to have been able to have been there to say your goodbyes. Sometimes, life just sure doesn't seem fair.
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: some general whining

Postby Stanfordmom » Sat Jul 04, 2015 4:19 pm

So sorry about your friend, Voxx.

(((((((((Voxx))))))))
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: some general whining

Postby Lee » Sat Jul 04, 2015 5:03 pm

Voxx,

So sorry to hear about your friend and the very rough road you have been traveling on. I hope it gets better for you.

((((HUGS)))

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!


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