Stage IV, 6 years in the clear

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mom_2_3
Posts: 361
Joined: Sat Nov 29, 2008 8:09 pm

Stage IV, 6 years in the clear

Postby mom_2_3 » Wed Jul 01, 2015 1:17 pm

Last week I met with Dr. K after she returned from her vacation. I had a scan at the end of May prior to leaving on our own annual trip to Myrtle Beach. I was able to retrieve the results from the online portal during our vacation and read "No evidence of metastatic disease." Yahoo! This scan was 6 years and 3 months post my colon/liver resection and HAI pump implantation.

In the the beginning of February of this year, however, immediately prior to having my pump removed I had a flare up from my cervical compression. My right hand went numb and lost all its strength. I had an MRI in March and then had three vertebrae fused together and secured with a set of titanium plates. Spent the last couple of months in a neck brace and physical therapy but am so happy to return to yoga this past week. The MRI of my neck back in March reported a thyroid nodule and Dr. K recommended we also include an ultrasound after my last CT. The results from the MSK ultrasound at the end of May reported nodules on both sides of the thyroid as well as some inflamed lymph nodes. Dr K seems unconcerned about them and remarked the nodes are likely from my recent neck surgery. Praying that is the case but she recommended a follow-up ultrasound in September to see how the thyroid looks. So on the whole, good news. I remain NED from the Stage IV colon cancer more than 6 years from my resections and 5 1/2 years from my last chemotherapy treatment and pray the thyroid discovery is benign.

Summer is here and at our household we have summer baseball, swim team, camp, riding lessons, Tae Kwon Do, giant ice pops and lazy days at the pool ahead of us. We recently adopted 3 shelter kittens (as one apparently wasn't enough for the kids) and they keep us busy. In August we head to Grand Teton National Park and Yellowstone. I will be able to cross one of the remaining states off my list when we go to Montana. After that I will have only one more state to see (Idaho) so I will have almost completed my bucket list item to see every state in this beautiful country I call home.

My Sweet Katie is 6 years and 8 months old. While a spitfire and a challenge at times, she will always be my Angel on Earth.

Image

Image

Everyday is a day to be thankful for.

In hope,
Amy
CC discovered during c-section (11/4/08)
Diagnosed Stage IV 11/10/08 -- Happy 39th Birthday! 5 bilobar liver mets
02/09: Colectomy, liver resection, HAI pump implanted, 7 of 42 nodes
7 months of FUDR and 5FU ended 11/2/09
10 years NED.

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Stage IV, 6 years in the clear

Postby juliej » Wed Jul 01, 2015 2:30 pm

What a beautiful family, Amy! It brings tears to my eyes to see Katie since I know what she means to you.

Congrats on the 6 year mark and keep living your life to the fullest, as you are doing so wonderfully! Here we are, both cancer free against all odds (thanks to Dr. K!) and with this incredible take on the world. I'm praying the thyroid nodules and inflamed lymph nodes are due to your recent neck surgery. As long as Dr. K is unconcerned, I wouldn't be either. Wishing you a long and healthy life!

xoxoxo,
juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

radnyc
Posts: 446
Joined: Tue Apr 06, 2010 6:32 pm

Re: Stage IV, 6 years in the clear

Postby radnyc » Wed Jul 01, 2015 2:32 pm

Awesome Amy!! Beautiful family! I'm certain the neck nodes are benign. I'm almost 5 years NED, your story has always been inspirational for my cancer journey. Have a fun summer!

Al
DX Jan 2010, at age 47
Feb - colon resection - 2/17 nodes positive
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April 2011
HAI Pump removed Dec 2015

CM35
Posts: 265
Joined: Tue Dec 03, 2013 1:16 pm

Re: Stage IV, 6 years in the clear

Postby CM35 » Wed Jul 01, 2015 2:48 pm

Amy, your story is such a beacon of hope, and I am so happy to see this update... I hope you continue posting this same update for many years to come, and that we are all around to read it... Thank you for sharing, and you have a very beautiful family!

Colleen
stg IV 4/2013 @34 - liver, ovary/peritoneum
Lots of chemo, surgery and good luck - still doing well 03/2016...

Nik Colon

Re: Stage IV, 6 years in the clear

Postby Nik Colon » Wed Jul 01, 2015 4:10 pm

Awesome to hear the long NED, wishing the best on current, beautiful family :)

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: Stage IV, 6 years in the clear

Postby jillbugs4110 » Wed Jul 01, 2015 5:43 pm

That is awesome I could only wish I will be here for my kids. It is all I hope and pray for
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.

CLD
Posts: 206
Joined: Fri Mar 27, 2015 7:16 pm

Re: Stage IV, 6 years in the clear

Postby CLD » Wed Jul 01, 2015 9:19 pm

I was having a bad day today worrying about my husband's future. He only has 3 treatments left but my mind is driving me crazy with the what ifs. Our 6th child is due in 8 weeks. I found myself reading your post several times today. Thank you for sharing your story and for the hope you offer. Praying those nodes are from your recent surgery!
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Stage IV, 6 years in the clear

Postby Bev G » Wed Jul 01, 2015 9:59 pm

It's so great to hear about your continuing NED status. What a beautiful family, and truly wonderful story. Thank you so much for posting!

All the best to you!
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

lhawk0730
Posts: 171
Joined: Mon Oct 27, 2014 10:49 pm

Re: Stage IV, 6 years in the clear

Postby lhawk0730 » Wed Jul 01, 2015 10:38 pm

Amy, thank you for sharing. Congrats on your results. Thank you for posting pics of your beautiful kiddos and shining hope on this site. Enjoy those ice pops, sticky hugs, heat enduced tantrums, pool days and all the blessings motherhood brings!
Daughter to Mom, age 71
Dx 10/14 RC - T3bN1bM0
Chemoradiation til 1/15
Surgery 2/15
Temp ileostomy
Failed Xelox round 4/15
1 round straight Xeloda 5/15 - discontinued
Ileo reversal 5/15
8/15 more Xeloda

jens22
Posts: 1013
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Stage IV, 6 years in the clear

Postby jens22 » Wed Jul 01, 2015 10:42 pm

That is so wonderful to Hear and see the pictures of your beautiful family.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Stage IV, 6 years in the clear

Postby cathy123 » Thu Jul 02, 2015 6:20 am

Wonderful story.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

Maddielolo
Posts: 140
Joined: Tue Apr 08, 2014 4:57 pm

Re: Stage IV, 6 years in the clear

Postby Maddielolo » Thu Jul 02, 2015 8:27 am

Beyond inspirational Amy ---- what a beautiful family. To think of all you've been through, and all the little things you've be able to enjoy because of that work. So happy for all of you!

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Stage IV, 6 years in the clear

Postby Badass » Thu Jul 02, 2015 11:54 am

Hi Amy,
A giant CONGRATULATIONS to you!! Thank you for sharing your wonderful and hope-inspiring news and the beautiful picture of you and your family.
Wishing you NED forever!

Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

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ziggymonster
Posts: 538
Joined: Tue Feb 05, 2013 3:23 pm
Location: California

Re: Stage IV, 6 years in the clear

Postby ziggymonster » Thu Jul 02, 2015 12:15 pm

What a great story...beautiful family...thanks for posting.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Stage IV, 6 years in the clear

Postby DarknessEmbraced » Thu Jul 02, 2015 12:26 pm

Congratulations! i hope the thyroid nodules are benign too! Such a beautiful family! I'm glad to see you enjoying yourself! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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