Who had stage 1 and 2 rectal, and how did it go?

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Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Who had stage 1 and 2 rectal, and how did it go?

Postby Lydia666 » Mon Jun 29, 2015 5:18 pm

I am having my first scans next week and hoping for some good news. I would love to hear some positive stories of stage 1 or 2 ... I need to keep my calm until i know the extent of my problem. Thank you.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby justin case » Mon Jun 29, 2015 7:11 pm

I went through the procedures, and get to work 50 hrs. a week now :roll:
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

ozziej
Posts: 239
Joined: Thu May 21, 2015 8:35 pm

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby ozziej » Tue Jun 30, 2015 2:42 am

Hi Lydia,
Sorry you are having such a hard time of this. As someone who developed panic attacks after dx I would concur with others' suggestions to ask your GP about medication and/or counseling. These definitely helped me through the last 6 months. I had a ULAR ( ultra low anterior resection) with a temporary loop ileostomy for stage 1 RC. Five weeks ago I had the ileostomy reversed. My surgeon says that my treatment has been curative but I will need to have a check up every 4 months for the next 2 years just to be sure. It's still early days for me but my life is pretty much back to normal, with the exception of a few extra toilet stops each day and a fairly bland diet. But hey I can still hug my babies (24 and 25 but I still love to hug them 8) ) so life is good. Try not to get too far ahead of yourself. Hard I know but important for your sanity. Will be swinging chickens for you.
Jan
F 56 dx 11/14 Stage 1 RC (post EMR)
No neo-adjuvant or adjuvant chemo/RD
3/15 ULAR (open) temp loop ileo
5/15 ileo reversal
NED and hoping to stay that way!! : )

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Fanatik
Posts: 113
Joined: Sat Feb 06, 2010 4:07 pm
Facebook Username: Scott Stephens
Contact:

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby Fanatik » Tue Jun 30, 2015 3:07 am

Greetings Lydia.... boy did you get lucky finding this site........ you won't find a better place or better people.... If you're gonna have rectal cancer, this is the place to come for the facts... I was diagnosed in January of 2010... a routine colonoscopy revealed a "lesion"... that was as much information I had in the beginning... I didn't have any idea what to expect, and needless to say my anxiety level was pretty high. But, here is the good news.... as bad as I played it up in my mind, I was lucky that I wasn't too far advanced, I had a great medical team, and I had this place to help me put it all together. It's been 5 and half years now and I am NED.... I had my last colonoscopy a few months back and the doc said I shouldn't have to be looked at for a couple of years now. There are a lot of really harsh stories here, but know there are some pretty great ones too... you can check out my signature for my hx... being I was stage 1 I usually don't have a lot to contribute around here, but for early stage people sometimes I can chip in a word or two of encouragement. Please feel free to PM me if you have any questions or just feel like talking.... wishing you the best...

Scott
DX Rectal Cancer T1N0M0 1-22-2010
TEM (transanal endoscopic microsurgery) 2-19-2010
Pathology shows clear margins, no vascular involvment 2-24-2010
No immediate need for Chemo/Radiation
Close watch for now
http://www.carepages.com/carepages/Geekfireman

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby Lydia666 » Tue Jun 30, 2015 6:39 am

Thank you all. I do have panic attacks! It's awful.

How do they determine vascular invasion? Will the scans say that or a blood test?
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Nik Colon

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby Nik Colon » Tue Jun 30, 2015 6:41 am

Can't remember but it should say on report

Nik Colon

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby Nik Colon » Tue Jun 30, 2015 6:42 am

Have you asked about anti anxiety meds yet? If not, do it now!

ozziej
Posts: 239
Joined: Thu May 21, 2015 8:35 pm

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby ozziej » Tue Jun 30, 2015 7:05 am

Hi Lydia.
I think that the pathology report from the biopsy should identify any vascular invasion. It should also report the depth of invasion into or through the rectal wall. This is the first part of staging. Mine was halfway through the wall with no vascular invasion. Then ultrasound, CT and MRI can be used to determine whether the lymph nodes or other organs are involved. Mine showed negative but the tests are not 100% accurate so I chose to have the ULAR so the lymph nodes could be checked. I had 0 positive out of the 25 they harvested. So I was staged as T2N0M0 (stage 1). No chemo or radiation.
Try to take it one step at a time. I'm sure that others would agree that it's a marathon not a sprint.
Best wishes 8)
Jan 8)
F 56 dx 11/14 Stage 1 RC (post EMR)
No neo-adjuvant or adjuvant chemo/RD
3/15 ULAR (open) temp loop ileo
5/15 ileo reversal
NED and hoping to stay that way!! : )

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby Lydia666 » Tue Jun 30, 2015 7:48 am

Hi ritz, i have the meds but i am breastfeeding . I dont necessarily want to continue, i give her formula anyway, but she loves to nurse when going to sleep etc, so i dont want to take that away from her as i might be forced to do it soon anyway because of treatments. So thats why i hesitate starting the meds. If next week i find horrible stuff, i ll most likely take some.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby Lydia666 » Tue Jun 30, 2015 7:49 am

Hi Jan, how big was the mass they found?
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby Lydia666 » Tue Jun 30, 2015 7:53 am

Last year this time i was pregnant and had anemia, most likely from cancer. Is it possible my baby got something if this stuff was goong thru my blood????
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby NZJay » Tue Jun 30, 2015 12:38 pm

Lydia666 wrote:Last year this time i was pregnant and had anemia, most likely from cancer. Is it possible my baby got something if this stuff was goong thru my blood????


Absolutely 100% not. Cancer doesn't work like that. Your baby is fine :-). But you're anxious and understandably so. The GP can advise you on a drug to use which won't comprise your breastfeeding.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

tif2112
Posts: 114
Joined: Wed Jul 04, 2012 4:23 pm
Facebook Username: tif2112
Location: Henderson, NV

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby tif2112 » Tue Jun 30, 2015 12:56 pm

I was DX 2a Rectal Cancer. I had a colon resection and then approx 5 weeks of radiation and Xeloda.
So far I am still NED. I had a MRI recently on my back and they noticed " Interval enlargement of several retroperitoneal and aortocaval lymph nodes. Largest measuring 1.6 and 1.9 cm in AP diameter located just below the bifurcation of aorta. These appear to have increased in size from the prior CT". So now I am waiting for my CT scan results.
51 year old female
Henderson, Nv

T3N0M0
2012 DX - Rectosigmoid Mass, Colon Resection, rx - radiation and chemo
07-24-2014 NED
2014 englarge lymph nodes, biopsy of 1 negative
07-07-2015 even bigger enlarged lymph nodes, shown on MRI & CT
2015 biopsy of bone marrow, lymph nodes-negative
3-6-2018 still enlarged lymph nodes, no diagnosis

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby Lydia666 » Tue Jun 30, 2015 1:09 pm

Oh tiff, i hope it's nothing. Please keep us posted.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Jachut
Posts: 1137
Joined: Mon Sep 26, 2011 11:16 pm
Facebook Username: hutchinson@aanet.com.au

Re: Who had stage 1 and 2 rectal, and how did it go?

Postby Jachut » Tue Jun 30, 2015 5:33 pm

I was a stage 2 - right through the rectal wall but not in any lymph nodes. I had six weeks of chemoradiation, surgery with temporary ileostomy, six months of chemo and I'm here five years from diagnosis, still NED. :D

Hasn't been an easy trip, and my reversal wasn't successful, I have a colostomy. But I've gotten on top of all the effects of chemo and surgery now and life is good.


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