Blood Clot & Port

[Larijjo1]

Hello,
Looking to hear from folks that got a blood clot from their port. How was it handled in your case? I have one in my jugular. I am on blood thinning shots. Doc wants to keep port in.
Any stories/advise would be greatly appreciated.
Thank you,
Lari

[Voxx66]

I had blood clots associated with my port. The treatment depends on the severity of the issue. My port was removed and I felt much better afterwards.

[Larijjo1]

Thank you Voxx66.
How do you receive your chemo now?
lari

[Voxx66]

At the moment I don't. I have stopped treatment for now and am waiting on tests and new drugs.

[CLD]

Larijo or Voxx, just wondering if you could share your symptoms that led the doctors to dx a blood clot...what should others look out for? Thanks

[Voxx66]

The first sign was my port stopped working well for blood draws. Then a c/t showed some sort of occlusion at the end of it. It progressed to where I would get insanely dizzy standing up or bending over and actually passed out once and broke 3 ribs. I also started having this odd shoulder pain. A newer c/t showed a clear clot in the Jugular and several other smaller occlusions. It was severe enough that the port needed to come out. I started feeling better almost right away.

[Mastan]

Hello,
Looking to hear from folks that got a blood clot from their port. How was it handled in your case? I have one in my jugular. I am on blood thinning shots. Doc wants to keep port in.
Any stories/advise would be greatly appreciated.
Thank you,
Lari

Been there. They tried to unblock mine with TPA and that did't work then they tried to rotor router it and that did't work so they removed it and put one in on the other side. Its my 3rd port so far. The first one was taken out because I went NED for a couple of years. i'm a clotter, just recovered from a pulmonary embolism. I am hoping my daily shots of Lovenox prevent another one. I blame the clotting on chemo because I never had a clot until I started chemo. It just an added perk!


Mark

[Voxx66]

Some people clot in response to the tube stuck into the Vein even if they never clotted before. I think that is what happened to me. My body didn't like that much.

[Mastan]

Some people clot in response to the tube stuck into the Vein even if they never clotted before. I think that is what happened to me. My body didn't like that much.

That's a good point. The clot in the vein cleared shortly after the port was removed. Of course that does not explain why I have gotten 2 DVTs and a PE while in treatment. I blame that on the chemo. I had cancer long before I was treated and never developed a clot.

[Larijjo1]

Larijo or Voxx, just wondering if you could share your symptoms that led the doctors to dx a blood clot...what should others look out for? Thanks

Mine was simply pretty intense pain and swelling in my neck. Ultrasound confirmed blood clot in jugular.

[Larijjo1]

Been there. They tried to unblock mine with TPA and that did't work then they tried to rotor router it and that did't work so they removed it and put one in on the other side. Its my 3rd port so far. The first one was taken out because I went NED for a couple of years. i'm a clotter, just recovered from a pulmonary embolism. I am hoping my daily shots of Lovenox prevent another one. I blame the clotting on chemo because I never had a clot until I started chemo. It just an added perk!


Mark[/quote]

Thanks for responding Mark
Lari

[Dorat]

I had a blood clot in my port and it was taken out. My symptoms were swelling of the neck and face.

[Larijjo1]

I had a blood clot in my port and it was taken out. My symptoms were swelling of the neck and face.

Hi Dorat,
Your port was taken out? Was it replaced?
Lari

[Dorat]

I was done with my chemo so I did not needed any more. My Oncologies wanted me to leave it for at least a year after finishing chemo, but because of the clotting it had to come out.

[Larijjo1]

Thank you Dorat. I start my 4th round on Monday. Onc wants to keep mine in.