Time for hospice

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hart2hart
Posts: 792
Joined: Wed Nov 23, 2011 10:46 pm

Re: Time for hospice

Postby hart2hart » Sun Jun 21, 2015 4:04 pm

Dearest Julia,
This one really makes us really sad. We cry with you Julia.
Please let Chris know we send our love and hope you both know how much
your presence on his board has meant to us. BIGTIME!


Many, many gentle hugs,


Julie and Pete
Stamford, CT
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2020
Hai Pump/Port Removed - 1/2020

orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: Time for hospice

Postby orcasres » Sun Jun 21, 2015 4:54 pm

Can offer kind thoughts and hope for a gentle and peaceful time ahead. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

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elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: Time for hospice

Postby elise » Sun Jun 21, 2015 5:02 pm

You are equipped to deal with whatever tomorrow gives you.

Love,
Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

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Kathleen808
Posts: 1761
Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: Time for hospice

Postby Kathleen808 » Sun Jun 21, 2015 9:50 pm

Julia my Friend,
I am so sad and so sorry that this is where you two are at. My heart breaks. We are here for you. I will check in more often to see what you need. I know you spend your time wisely. Treasure the moments my friend. Much love coming your way.

Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

WifeOfMike
Posts: 1495
Joined: Thu Dec 20, 2012 9:53 pm
Facebook Username: https://www.facebook.com/vbass123
Location: San Diego, California

Re: Time for hospice

Postby WifeOfMike » Sun Jun 21, 2015 10:42 pm

Julia,

My heart is full of sorrow, that your husband Chris's journey is nearing the end. Your post was very eloquent and touched me to the core, as I walked in your shoes just 5-7 months ago. You have a good mindset for this final chapter. Yes, there are dangers & daggers, But the love somehow just feels stronger, the words and feelings are amplified. Cherish each & every moment together- it is precious & will give you something wonderful to hold on to later (at least that was my experience).

Many of us have already walked to the end of our loved ones journey, and we are here for both of you. I went through several months of home hospice with my dear husband, and although I am not sure where your paths will carry you, if I can be of assistance in any way, please feel free to reach out in any method of your choosing.

We will be here for both of you now, and whenever either of you needs us.
May you both be surrounded by Love, Light, Courage & Peace
Vicki
Bad Ass WIFE
Hubs: CRC IVA,T3, N0, M1A
Resect/LN Mets 10/12
Folfox4/Avastin 11/12-5/13
Folfiri/Erbitux 6/13-10/13
Stivarga 12/13-4/14
Trial 4/14-/14
Trial 8/14-11/14
HOME Hospice 11/17/14
Guardian Angel 1/1/15
Cost of HOPE? PRICELESS

andy21
Posts: 376
Joined: Tue Jun 26, 2012 4:07 pm
Location: N California

Re: Time for hospice

Postby andy21 » Mon Jun 22, 2015 6:52 pm

I am sincerely hoping for a spontaneous remission.
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013

mackswife
Posts: 263
Joined: Fri Aug 17, 2012 7:11 pm
Location: Atlanta, Ga.

Re: Time for hospice

Postby mackswife » Mon Jun 22, 2015 8:29 pm

May your days be filled with love. May the soft and gentle touch of caring people help to comfort to the wounds of your heart. May your tears be laced with gratitude for having found each other. My thoughts are with you both.
Husband IIIC;
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list

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hopeful
Posts: 1372
Joined: Mon Jan 04, 2010 11:43 am

Re: Time for hospice

Postby hopeful » Mon Jun 22, 2015 10:20 pm

Julia, I am so sad to hear this. I will keep you both in my prayers. Wishing you strength and love.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009

jjlist
Posts: 654
Joined: Fri Jan 21, 2011 11:56 pm

Re: Time for hospice

Postby jjlist » Mon Jun 22, 2015 11:56 pm

I suffered setbacks from chemo liver damage, and developing pain, we think its post radiation how are His pain levels? Are they being managed?
They seem to be able to work wonders with pain mgmt.
thoughts are with you.
I feel like I am getting closer . I am not in Not in hospice. Not in any treatment. Seriously, I don't want anymore treatment.
age 56
11/16/09 DIAG low rectal tumor ST II T3N0M0
12/21/09 chemopump radiation
3/18/10 suregry colo-anal anastomosis, no nodes,.
4/29/10 Abcess infection
6/3/10 started 12 folfox sessions completed 10.
1/11/11 ileostomy takedown

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O Stoma Mia
Posts: 1600
Joined: Sat Jun 22, 2013 6:29 am

Re: Time for hospice

Postby O Stoma Mia » Tue Jun 23, 2015 3:40 am

Image
Chris

I am so sad to hear of this latest development. If there is anything that we can do for you and for Chris at this point in time, we are here to help.

As you know, some who start hospice just want to be with family and only their closest of friends, while others continue to post messages or even videos of their hospice experiences from time to time. What you want is what is most important right now. If you would like for friends here at Colon Talk to check in from time to time, we could send PMs to Chris's account (no replies required). Or if you prefer to have posts to your Caringbridge link, or to Chris's Facebook account, these are other ways that friends here could keep in touch over the near time-frame.

Just let us know if there is anything that we might be able do that could be of help during this part of the journey. You have been here for us all of these years. Now it is time for us to be here for you.

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juliej
Posts: 3106
Joined: Thu Aug 05, 2010 12:59 pm

Re: Time for hospice

Postby juliej » Tue Jun 23, 2015 2:56 pm

Oh, Julia, the news was not what any of us wanted to hear, but thank you for your beautiful words. Life will give way to death for all of us, some sooner than others. This, I understand. But what my head says, my heart doesn’t want to hear. Chris is such a great writer - insightful and wise and more centered than I ever will be. I’m sending you both the warmest of positive images and much, much love!

xo,
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

drebay
Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

Re: Time for hospice

Postby drebay » Tue Jun 23, 2015 4:25 pm

I am so sorry. Your words are so beautiful. ((HUGS)) to you and yours.
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

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jgall
Posts: 814
Joined: Wed Jan 05, 2011 9:44 pm
Location: New York City

Re: Time for hospice

Postby jgall » Tue Jun 23, 2015 8:12 pm

Thank you all for your kind and lovely words of support and love. I am so touched by it all. This group has meant so much to me during this journey and I know in the coming weeks, and hopefully months, you will help carry me through.

With much gratitude!
Julia
DH Chris, 50, Dx Nov '10 Stg 4
cardiac arrest from 5-FU
Iri/Erbi, RFA, liver/colon resection, more Iri/Erbi
Oct14-Feb15 clinical trial
SIRT Apr15-unsuccessful
Stopped treatment May15
Hospice July15
Passed 8/15/15
http://www.caringbridge.org/visit/chrisandjulia

DBF
Posts: 319
Joined: Fri Jun 07, 2013 1:44 pm
Facebook Username: https://www.facebook.com/#!/profile.php?id=1000008
Location: New York

Re: Time for hospice

Postby DBF » Tue Jun 23, 2015 10:31 pm

I'm heartbroken to read your post, but so touched by your ability to express your feelings. You are both such strong, kind people- I've always admired you guys as a couple. I hope you will have many good days together.
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Spread to liver
9/13 Liver resection
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
2019: NED :D
Mom to 3 boys: 21, 10 & 6

Julie YW
Posts: 170
Joined: Tue Aug 27, 2013 2:25 am
Facebook Username: Julie.yip-williams

Re: Time for hospice

Postby Julie YW » Thu Jun 25, 2015 7:16 am

So beautifully written. You and Chris are spiritual guides to me. You teach me and others how to handle this disease with grace.
DX July 2013, 37yo
12 of 68 LN
Stage IV w/ drop peri met
Folfox 8/12/13
Clean scans 1/24/14
Rising CEA 2/13/14
HIPEC 3/13/14
Folfiri 4/21/14
Recurrence in lungs 12/19/14
Xeloda & Avastin
Follow my blog: http://julieyipwilliams.wordpress.com/about/


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