Surgery

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jalusa
Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: Surgery

Postby jalusa » Fri Jun 26, 2015 4:00 pm

Got out yesterday. Doing ok in our little apt. New York smells like onions.

I got a call, they want to repeat the pump study in a couple weeks. There appears to be a bit of leakage. Sometimes this resolves itself, other times they have to go in and fix something, I am not sure how they would do this.
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

CM35
Posts: 265
Joined: Tue Dec 03, 2013 1:16 pm

Re: Surgery

Postby CM35 » Fri Jun 26, 2015 10:53 pm

Glad to see your update, and that you managed to break out of the hospital. Sorry about the pump study, I found it to be less than enjoyable and wouldn't be thrilled to repeat it! For your sake, I hope whatever issue it has resolves itself.

Onion smell aside, I hope you are able to enjoy the city while you are there. :wink: While I cannot envision living there permanently, I really enjoy visiting. Particularly in the summer.
stg IV 4/2013 @34 - liver, ovary/peritoneum
Lots of chemo, surgery and good luck - still doing well 03/2016...

jalusa
Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: Surgery

Postby jalusa » Sat Jun 27, 2015 10:07 am

The pump test is a bugger. I sure hope it turns out ok.
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

User avatar
jgall
Posts: 814
Joined: Wed Jan 05, 2011 9:44 pm
Location: New York City

Re: Surgery

Postby jgall » Sat Jun 27, 2015 9:14 pm

Glad you are out and feeling ok. It was so great to meet you and we enjoyed taking your wife and son to a show! Maybe next time you can join us!

Julia
DH Chris, 50, Dx Nov '10 Stg 4
cardiac arrest from 5-FU
Iri/Erbi, RFA, liver/colon resection, more Iri/Erbi
Oct14-Feb15 clinical trial
SIRT Apr15-unsuccessful
Stopped treatment May15
Hospice July15
Passed 8/15/15
http://www.caringbridge.org/visit/chrisandjulia

jalusa
Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: Surgery

Postby jalusa » Sun Jun 28, 2015 9:52 am

Thanks much for your kindness. Kelly & Luke had a great time.
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: Surgery

Postby Lee » Sun Jun 28, 2015 3:38 pm

Glad to hear your surgery is behind you and you are out of the big house. I too hope your pump test is ok. Remember to keep walking.

Thinking of you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

hart2hart
Posts: 789
Joined: Wed Nov 23, 2011 10:46 pm

Re: Surgery

Postby hart2hart » Tue Jun 30, 2015 6:34 pm

Hi Jim -

Just wondering how you are doing? Pete hopes to connect up with you on July 8th!
Write back soon!



Julie and Pete
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - To Current

jalusa
Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: Surgery

Postby jalusa » Tue Jun 30, 2015 9:36 pm

My pump study is at 10:00 at the hospital. I will head to 53rd after that. I am not sure when I will be there.
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Surgery

Postby Stanfordmom » Wed Jul 01, 2015 2:14 am

Hi Jim and Pete,

I am at 53rd street pretty much the whole day. looking forward to connecting with you guys!

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

jalusa
Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: Surgery

Postby jalusa » Sun Jul 12, 2015 5:04 pm

2nd pump study still not good. I will be having a laparoscopic procedure in a couple days to try and correct it. I hope it works. The pump is why we are here. Jim
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: Surgery

Postby Lee » Sun Jul 12, 2015 6:20 pm

Hope you get the pump issue under control.

Thinking of you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: Surgery

Postby Nik Colon » Sun Jul 12, 2015 6:57 pm

jalusa wrote:2nd pump study still not good. I will be having a laparoscopic procedure in a couple days to try and correct it. I hope it works. The pump is why we are here. Jim

Sorry you are having issues, hope all goes well.
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Surgery

Postby Stanfordmom » Sun Jul 12, 2015 11:48 pm

Jim,

Sorry it still was not fixed. Hope they will fix it in a couple of days!

sending you strength and prayers.

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

jalusa
Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: Surgery

Postby jalusa » Thu Jul 16, 2015 10:42 am

Had a procedure yesterday where they emboli zed a suspicious looking vein near where the pump tube enters the hepatic artery. Tommorow I will have my 3rd pump study hoping this fixed it. Tons of fun.
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Surgery

Postby JudeD59 » Thu Jul 16, 2015 5:35 pm

Oh, geez. I hope it's fixed. Keep us updated, please.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4


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