Is vitamin C my hero?

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Cherie
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Facebook Username: cherie
Location: New Zealand

Is vitamin C my hero?

Postby Cherie » Fri Jun 19, 2015 1:21 am

Hi Everyone,

So I though I would inform you as to the discussion over my PET scan. At this point no one is saying the cancer is gone. The suspicious spots that were noted everyone is labelling as cancer...even through that are not burning sugar like cancer does "not significantly hyper metabolic."...... BUT in July the surgeon is going to crack me open and take a look.

rp1954 I had vitamin C on Friday and my Pet was on the following Wednesday five days latter. I take vitamin C with some B vitamins and take Celebrex daily with some other natural stuff.

I'm not sure if I have dumb slow growing cancer or the vitamin c has halted what was there at christmas. But I have not done any chemo. It just makes me too sick even the smallest amount. So here I ponder what will the surgeon find....I pray vitamin c will be my hero.
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

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Jack&KatiesMommy
Posts: 621
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Is vitamin C my hero?

Postby Jack&KatiesMommy » Fri Jun 19, 2015 7:05 am

I pray for that for you also, Cheri!
Cynthia
Cynthia
Mommy to Jack (8) now (17) and Katie (4) now (13)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Is vitamin C my hero?

Postby KWT » Fri Jun 19, 2015 8:24 am

That would be too cool, Cherie.

megan120
Posts: 127
Joined: Mon Jun 16, 2014 10:54 pm

Re: Is vitamin C my hero?

Postby megan120 » Fri Jun 19, 2015 11:13 am

That would be amazing!!!
36 year old mama to 3 (8,5,3)
Dx May 2014
Stage IV cc with met to cervix
2/134 pos LN
partial colectomy with temp ileostomy
folfox with avastin 6/14
Oct 14, hyst-mets to uterus, rt ovary implants
1/6/15 6 rounds of folfox
5/4/15 done with 28 tx chemo-rad
7/24/15 completion colectomy, NED!

orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: Is vitamin C my hero?

Postby orcasres » Fri Jun 19, 2015 3:48 pm

That would be fantastic. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: Is vitamin C my hero?

Postby jillbugs4110 » Fri Jun 19, 2015 4:05 pm

How do I get via min c how much do I take
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Is vitamin C my hero?

Postby KWT » Fri Jun 19, 2015 5:01 pm

I wonder what a hit of that runs here in the states?

Cb75
Posts: 1216
Joined: Sun Apr 22, 2012 3:52 pm
Location: Ontario, Canada

Re: Is vitamin C my hero?

Postby Cb75 » Fri Jun 19, 2015 6:31 pm

Amazing Cherie. It could be! There is some good research on it. Because of you, i've added it back into my protocol. I scan soon, so time will tell. I can say, that I feel better and have more energy. Fingers crossed for you Cherie, anything is possible with this disease.

cb <3
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...

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Cherie
Posts: 590
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Facebook Username: cherie
Location: New Zealand

Re: Is vitamin C my hero?

Postby Cherie » Fri Jun 19, 2015 9:30 pm

I take one gram per killo of body weight. So I am given 60grams over two / three hours intravenously.

I can't find any information on "suspicious spots" not being hypermetabolic. All I know is that cancer is hypermetabolic and my "spots" are not. I hope I not getting my hopes up for nothing.

Vitamin c is no where near as expensive as chemo however is not covered by my insurance. I am lucky that the NZ government is picking up the bill.
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

rp1954
Posts: 1535
Joined: Mon Jun 13, 2011 1:13 am

Re: Is vitamin C my hero?

Postby rp1954 » Sat Jun 20, 2015 4:03 am

Kenny, my shopping experience with low to middle cost parts of America range $125-250 for 50 - 100 gram vitamin C infusions. Due to FDA attacks on supplies, alternative providers have had wild fluctuations in their own supplies and costs.

Cherie, IV vitamin C can stop/reduce hypermetabolism and activity but that doesn't guarantee cancer kill. That said, celecoxib-C-supps sounds favorable for you one way or the other, keep hitting more pathways. Hope the surgeon makes himself more useful than only a tourist. We try to get as many markers CEA, CA19-9, AFP, CA125, CA72-4 before surgery as possible, and after on the non-low markers.

This ND uses predictive blood testing to guide his supplement recommendations.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Is vitamin C my hero?

Postby KWT » Sat Jun 20, 2015 8:11 am

jillbugs4110 wrote:How do I get via min c how much do I take

Jill, I think you would need to see an naturopath to help you along

Rp, that's not terrible but how often does one receive the intrusion? If it was once a week it could get pretty spendy

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Cherie
Posts: 590
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Facebook Username: cherie
Location: New Zealand

Re: Is vitamin C my hero?

Postby Cherie » Sat Jun 20, 2015 5:25 pm

Kenny, I am having vitamin c while i'm in the USA there are a lot on clinics that do it. There has been a lot in the media here about how doing it everyday and has "cured" a police office of all of his tumours. Here is a article the man in the article was on 60 minutes in New Zealand now everyone wants to give it a try. I do not think it is a magic cure BUT my QOL is so much better with less pain and way more energy. The clinic in FL where i'm going is charging $150 to have the vitamin C.

http://www.nzherald.co.nz/northern-advo ... d=11250323
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

Lee
Posts: 6086
Joined: Sun Apr 16, 2006 4:09 pm

Re: Is vitamin C my hero?

Postby Lee » Sat Jun 20, 2015 5:49 pm

While I'm not familar with this, it does sound hopeful.

Keep up the good work,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

bitchslapped
Posts: 1531
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Is vitamin C my hero?

Postby bitchslapped » Sat Jun 20, 2015 6:09 pm

I hope Vit C therapy is your hero, Cherie. Don't see how frequently you are receiving the infusions.

Found this link to The University of Kansas Medical Center, an NCI designated institution that may help answer some questions for the curious among us:
http://www.kucancercenter.org/patient-c ... ion-clinic

Also several sources within the holistic community on the internet link to this facility as far as research & lists their IV Vit C Protocol:
https://riordanclinic.org/research-stud ... -protocol/


From what I've read VitC infusions start slowly, gradually build up based on your labs, body, cancer type & spread. So you might start out 2- 3X/week, then level off + a bazillion supplements, no doubt. Interestingly the above two sources say it does not interfere w/chemo, considered a pro-oxidant vs antioxidant.

I know someone doing it, monthly maintenance now IV Vit C @ $120 a pop for breast cancer, 20 something herbs & supplements that vary depending...NED due to double mastectomy, the dreaded HER 2 positive, 8% remission rate, told by 3 oncs that she was terminal, still NED 3 yrs now, refused adjuvant chemo. At this point she is still coughing up between $1000 to $1500/monthly out of pocket which includes traditional medical copays. I'm sure the cost of infusions vary depending on patient needs & what's in it.


BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Is vitamin C my hero?

Postby pfCml73183 » Sat Jun 20, 2015 9:45 pm

Cherie, I sure hope this continues to work for you!!!
Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15


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