If anyone is interested

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KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

If anyone is interested

Postby KWT » Sat Jun 13, 2015 4:42 pm

A few of us are also hanging over here on Facebook,

Colorectal Cancer Survivors Unlimited

Anyone here is welcome irregardless of anything.

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mstults
Posts: 1327
Joined: Fri Nov 30, 2012 11:23 am

Re: If anyone is interested

Postby mstults » Sat Jun 13, 2015 5:41 pm

Just joined
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.

https://www.facebook.com/michael.stults2/about?ref=home_edit_profile&section=work

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Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: If anyone is interested

Postby Maggie Nell » Sun Jun 14, 2015 12:34 am

In the immortal words of a Bard.....

Prospero, you are the master of illusion.
Lying is your trademark.
And you have lied so much to me
(Lied about the world, lied about me)
That you have ended by imposing on me
An image of myself.
Underdeveloped, you brand me, inferior,
That s the way you have forced me to see myself
I detest that image! What's more, it's a lie!
But now I know you, you old cancer,
And I know myself as well.

~ Caliban, in Aime Cesaire's A Tempest

I'm hunting and gathering quotes about the Big C ....plus I like anyone who rips off Shakespeare because that
dude was such a bullshitter about Richard III and Cleopatra, ya know? Totally ass-assinated their characters.

Best quote so far: Cancer is a one-way ticket to the Land of No Bullshit. I'm going to woodburn that onto the
bumperbeam of the last wagon in my mule train.


Back to cookin' meth.....


Image



pyrogravure art by Baconfactory, 2012
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

User avatar
Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: If anyone is interested

Postby Annemiek » Sun Jun 14, 2015 4:02 am

Try the reduced shakespeare company, all 37 plays in 97 minutes!

http://www.openculture.com/2015/04/shakespearean-actor-brian-cox-teaches-hamlets-soliloquy-to-a-2-year-old-child.html.

I might be more of an Alice: "If you don't know where you are going, any road will get you there "

Annemiek

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

Sandy1962
Posts: 33
Joined: Tue Dec 11, 2012 10:52 pm
Location: Atlanta, Georgia

Re: If anyone is interested

Postby Sandy1962 » Sun Jun 14, 2015 9:05 am

Kenny-
Just requested to join. :D
Sandy
4/11/2012-Colonoscopy-Adenocarcinoma
4/12/2012 CT Scan-1 Liver Met-Stage IV
4/17/2012 Port In -5FU & 5 Weeks Radiation
6/17/2012 Surgery - Removed Rectal,Liver Tumor, & Gallbladder
7/17/2012 CEA <0.5
12/16/2013 PET Clear CEA <0.5

Kiwi Debz
Posts: 167
Joined: Fri Aug 22, 2014 9:42 am
Facebook Username: Deb Goldby

Re: If anyone is interested

Postby Kiwi Debz » Sun Jun 14, 2015 9:28 am

KT, for those technology challenged, viz me. How do I join the group of fb?

Deb
6/14 DX mCrc stage 4
7/14 R. hemicolectomy; 4/17 LN; liver res. peri met; repair to illiac artery
8/14 FOLFOX
10/14 PET recurrence LN; liver ? Peri met Continue FOLFOX
12/14 PET: stable .Liver only! FOLFOX
02/15 Liver resection. NED
03/15 foundation One testing - BRAF mutant
05/15 progression; Hilum node; both lungs?
08/15 NED !!!!
Age 51 Mum to Tom (RIP) and Jose 18
KIA KAHA - Be strong!

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: If anyone is interested

Postby KWT » Sun Jun 14, 2015 9:35 am

Kiwi Debz wrote:KT, for those technology challenged, viz me. How do I join the group of fb?

Deb


Send me a friend request, Debz
https://www.facebook.com/profile.php?id=100000139455425

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Crystald
Posts: 142
Joined: Thu Feb 26, 2015 1:50 pm

Re: If anyone is interested

Postby Crystald » Sun Jun 14, 2015 9:46 am

Just sent a request on FB.
Age 58
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
KRASwt
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice

Kiwi Debz
Posts: 167
Joined: Fri Aug 22, 2014 9:42 am
Facebook Username: Deb Goldby

Re: If anyone is interested

Postby Kiwi Debz » Sun Jun 14, 2015 9:53 am

Aargh KT ... The link doesn't work for me and I can't find the group in search engine.

Can u send request to me

Deb Goldby
6/14 DX mCrc stage 4
7/14 R. hemicolectomy; 4/17 LN; liver res. peri met; repair to illiac artery
8/14 FOLFOX
10/14 PET recurrence LN; liver ? Peri met Continue FOLFOX
12/14 PET: stable .Liver only! FOLFOX
02/15 Liver resection. NED
03/15 foundation One testing - BRAF mutant
05/15 progression; Hilum node; both lungs?
08/15 NED !!!!
Age 51 Mum to Tom (RIP) and Jose 18
KIA KAHA - Be strong!

User avatar
vilca11
Posts: 730
Joined: Fri Feb 14, 2014 11:19 am
Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012

Re: If anyone is interested

Postby vilca11 » Sun Jun 14, 2015 10:12 am

Kenny my dearest,

Can you all please come back?

In the "No Man's Land" that we all ended up with, with all the tragedies that cause our hearts to cry - our own or our friends here - there is not place for feeling hurts caused by anything else.... Just be above that, please.... I miss you all... In Unity we can support each other, not in separation. This Forum is made by us and for us, personal decisions that moderators take should not in any way affect our presence and comradery here.... We all are going thru the serious trials here, trials of spirit, strength, dignity, brevity, etc... Nothing should weaken us.... Please, please, from my name ask your group to settle here and by that show their maturity...
Hugs and lots of love, Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: If anyone is interested

Postby KWT » Sun Jun 14, 2015 12:21 pm

I'm still here, Vilca. This place is great, I just wanted a place where we could hangout do the off topic and humor thing and not hurt anyone's feelings or make them feel we're not being sensitive. Not trying to replace colon club that would be impossible.

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: If anyone is interested

Postby KWT » Sun Jun 14, 2015 12:31 pm

My dog phoebe, WHAT THE HELL HAPPENED TO YOUR AVATAR PHOTO?

Carolinabluetec
Posts: 415
Joined: Wed May 28, 2014 11:52 am
Location: Greenville, SC

Re: If anyone is interested

Postby Carolinabluetec » Sun Jun 14, 2015 12:53 pm

Don't do FB or any social media sites unless it involves colons, cars, or Duke Athletics.
03/14 DX Adenocarcinoma Sigmoid Polyp
05/14 Da Vinci Sigmoid Colectomy
06/14 T3N0Mx, staged IIa
07/14 Xeloda 3000 mg/day 14 on/7 off 8 rounds
12/14 Finished Chemo
01/15 CT NED :D
07/15 Colonoscopy NED :D
08/15 CT NED :D
03/16 CT NED 8)

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: If anyone is interested

Postby KWT » Sun Jun 14, 2015 1:01 pm

Carolinabluetec wrote:Don't do FB or any social media sites unless it involves colons, cars, or Duke Athletics.

There's "colon" in the name.

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: If anyone is interested

Postby justin case » Sun Jun 14, 2015 1:38 pm

OK, so here is what is up with me. Years ago I joined AOL, and got so much junk mail, attacks on my little computer, and added stuff I just don't need, with the limited time I have. There are other colon forums out there, butt if your already on the most informative forum, why would you waste time on others. I spend a lot of time working, running a home business, paying taxes, mowing the lawn, and pressure washing the concrete to appease my homeowners association! No offense I just don't have time for Facebook, or any other social media. I do have time for XM radio though, I love my Jazz 8) 8) 8) 8) :roll: :roll: 8) 8)
Bro Nut
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012


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