Two not one UPDATE

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trbiggins
Posts: 163
Joined: Mon Dec 09, 2013 7:20 pm
Facebook Username: Richard Biggins
Location: North Carolina

Two not one UPDATE

Postby trbiggins » Sat Jun 13, 2015 10:18 am

The radiologist told me I had two liver mets that were growing instead of one. My CEA has risen to 166 from 29 in like 4 months. Explains a lot. Monday they are going to run a catheter up through my groin and hit the tumors with chemo directly. They are also going to map out the area for possible spheres later down the road if this does not work. Good news is that my largest met had shrank a lot. It was hard to measure because it has been eaten away and is oddly shaped now. Still have the blot clot in one of my portal veins so the daily injections continue. My appetite has been weird lately also. Don't know if it's cancer related or just mental. I can get mental sometimes. I finally asked how many mets I had on my liver. I have always been told "numerous" mets. Well, he said I have less than 10, possibly around 6. I took that as good news because in my mind I've always imagined about 20 or so. Now that I have a number I know how many we need to get rid of. Anyhow, that's my update if anyone wants to know. I'm a little nervous about the procedure Monday, but the doctor told me I wouldn't remember anything. We'll see how this works. Prayers appreciated.

The procedure well well according to the radiologist. They put my fully asleep for over 6 hours. I wasn't down that long for my last surgery. Chemo was delivered directly to the mets and some blood vessels were tied of to direct future chemo from my pump to those areas. They also mapped that area if I need spheres in the future. It took them a while but I didn't know; I was in lala land.I am home and resting. Thanks everyone for the care and concern!

Richard
Last edited by trbiggins on Tue Jun 16, 2015 4:43 pm, edited 1 time in total.
42 male at DX
Husband, father (girls 13 and 16)
Stage IV mets to liver Oct 2013
Xelox Dec 13-Apr 14
Avastin, Xeloda Apr-July 2014
Vectibix July
Vectibix/Irinotecan Dec 2014
Colon resect/ HAI pump Jan 2015
Folfiri/Vectibix/FUDR ongoing

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Two not one

Postby JudeD59 » Sat Jun 13, 2015 10:20 am

You have my prayers, Richard.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

User avatar
BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Two not one

Postby BrownBagger » Sat Jun 13, 2015 10:27 am

Good luck on Monday, Richard. I'll be in chemo, and I'll be thinking of you.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: Two not one

Postby canadiandaughter » Sat Jun 13, 2015 10:42 am

Prayers sent!!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

jalusa
Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: Two not one

Postby jalusa » Sat Jun 13, 2015 11:36 am

Praying
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

User avatar
ANDRETEXAS
Posts: 662
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Two not one

Postby ANDRETEXAS » Sat Jun 13, 2015 11:52 am

Prayers from Austin ----- wishing you good thoughts, good fortune and good health the rest of the way ---- Andre
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT

3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT

3/23/16 - clean CT

2/22/17- clean CT

3/21/18 - clean CT
4/1 - clean colonoscopy

3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !

4/13/23 - clean colonoscopy

ONE DAY AT A TIME !

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Two not one

Postby Lee » Sat Jun 13, 2015 12:02 pm

I will swing a few chicken for you for good results.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Maddielolo
Posts: 140
Joined: Tue Apr 08, 2014 4:57 pm

Re: Two not one

Postby Maddielolo » Sat Jun 13, 2015 12:11 pm

It will go well; another step fwd

MSJC
Posts: 158
Joined: Sun Jan 26, 2014 10:31 am
Location: Ashland City, Tn.

Re: Two not one

Postby MSJC » Sat Jun 13, 2015 3:00 pm

Hope all goes well for you!
Mike, 49 y/o at Dx 1/14 stage 3c
low rectal cancer 7 nodes positive
2/14 5 weeks chemo/rad. 5-fu
4/14 Lar gallbladder removed,
temp ileostomy
5/14 8 rds Folfox
10/14 reversal surgery
5/15 clean colonoscopy
6/15 clean ct scan

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Two not one

Postby KWT » Sat Jun 13, 2015 3:07 pm

I'm sorry Richard, the fun just never ends with this crap. However it seems dr kemeny will just have to recalculate the plan of attack

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Two not one

Postby ams5796 » Sat Jun 13, 2015 4:03 pm

Good luck on Monday. You'll be in my thoughts.


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Two not one

Postby DarknessEmbraced » Sat Jun 13, 2015 4:23 pm

Good luck on Monday, hope your procedure goes well.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
mstults
Posts: 1327
Joined: Fri Nov 30, 2012 11:23 am

Re: Two not one

Postby mstults » Sat Jun 13, 2015 5:44 pm

Good luck. Hope all goes well.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.

https://www.facebook.com/michael.stults2/about?ref=home_edit_profile&section=work

Valorie
Posts: 365
Joined: Mon May 05, 2014 6:33 am

Re: Two not one

Postby Valorie » Sat Jun 13, 2015 7:25 pm

Richard my thoughts and prayers are with you. Good luck on Monday.

Val
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!

behconsult
Posts: 264
Joined: Fri Jul 04, 2014 4:53 pm

Re: Two not one

Postby behconsult » Sat Jun 13, 2015 10:20 pm

Positive energy and prayers sent your way from Ohio. Peace to you and your family. Bob
Stage 4 Age 56 BrafV660E 5/14
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT


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