dianetavegia wrote:Why do people who are NED continue to post? Because NED can become active disease at the next doctor's visit. There are no guarantees AND the 'what if' never goes away
I believe that cancer NEVER leaves us? It changes us. It torments us. Even if the disease is removed and never returns, that fear, dread will always be just under the surface and just there enough to steal a bit of joy from every situation.
Diane
cptmac wrote:Why do I come back????
When I was first diagnosed, I was looking for long term survivors, and they were hard to find. I told myself, until I meet my demise, I would post, to let people know I'm here. I agree with disco nap.... My reason is, to give people hope.
The question is, what deters me from coming back so often... I have to admit, I became increasing distant because of the disparaging remarks I too received from Gaelen. I felt like I had to apologize for not having any issues and surviving. I had to start putting in disclaimers on my posts, and I thought that was silly. But I kept coming back because of the promise I made for myself. And I did appreciate Gaelen's wealth of knowledge. She offered great advice. Because of where she worked and her background, she could really assist people during their treatments. I miss reading those types of posts that she made.
Why do I not come back as often now that Gaelen has unfortunately passed??? I was dx'd almost 11 years ago. Some protocols have changed. My knowledge may be outdated.
So my promise comes down to.... on occasion I check back. But every year, on my birthday, which is also my cancerversary, I retell my story. I put the disclaimer up for a few years to please ignore it if you heard it before, because I was informed that hearing my story over and over again wasn't pleasing to all.... But to the newbies who don't check back in the archives and to my old long time friends who appreciate hearing it, I repost it, once a year. If you don't want to see it, skip it. For those who find inspiration in it, I thank you for making me feel good about posting it every year.
As a warning.... It's coming up July 22nd.
Cappy ... Bring IT ... don't sing It !cptmac wrote:Why do I come back????
.... My reason is, to give people hope.
horizon wrote:disco nap wrote:Every member here, NED or not, has a role. Some of us need things from this forum. Some of us give things to this forum.
When I was diagnosed and in treatment, I needed things from this forum. I remember searching for people with similar staging as me and desperately looking for long term survivors and people who were "cured" in order to give myself hope. It helped a lot to see long term NED stage IIIs because i had evidence that survival was possible.
Now that I'm NED, I try to give back. And, I now look for people with the same staging as me who are beginning their journey and I am hopeful that I can be the sign of hope to them that others once were for me.
It's important to have positive stories and NED posters here to ensure a balanced view between the good and the bad, and the hope and the despair, of this disease.
It's as if you read my mind and pulled out the words I would have said.
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