I'm new and concerned I may have Colon Cancer. Can you help?

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
mstults
Posts: 1327
Joined: Fri Nov 30, 2012 11:23 am

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby mstults » Thu Jun 11, 2015 9:10 pm

ritz75 wrote:You swallow the glass too! :shock: :mrgreen:


Not until I've drank it all but the last glass full.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.

https://www.facebook.com/michael.stults2/about?ref=home_edit_profile&section=work

Nik Colon

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Nik Colon » Thu Jun 11, 2015 10:42 pm

mstults wrote:
ritz75 wrote:You swallow the glass too! :shock: :mrgreen:


Not until I've drank it all but the last glass full.

Lol :)

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Lydia666 » Fri Jun 12, 2015 9:07 am

Bracing for the colonoscopy next week. If I don't eat for 2 days instead of one, would i need less liquid to clear out? Has someone tried?

I am freaking out about the possibility of cancer, i have 2 small children and I can't bear the thought of them growing up without their mom. I will post updates for sure.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Lee » Fri Jun 12, 2015 9:32 am

Lydia666 wrote:Bracing for the colonoscopy next week. If I don't eat for 2 days instead of one, would i need less liquid to clear out? Has someone tried?



I found eating light, easy digestible food the day before prepping does help me (ie eggs, mash potato, etc). Will probably still have to take all the liquids. You really want to make sure you are cleaned out. When you are passing yellowish liquids, you can assume than that you have cleaned yourself out.

Good luck, try not to worry. But I understand, easier said than done.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
O Stoma Mia
Posts: 1709
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation. Off-line for now.

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby O Stoma Mia » Fri Jun 12, 2015 10:16 am

Lee wrote:... You really want to make sure you are cleaned out. When you are passing yellowish liquids, you can assume than that you have cleaned yourself out...
Lee

What Lee said is very important. You want for the inside of your colon to be very, very clean, otherwise it will be murky and the doctor may not see some of the polyps, especially the small flat ones that do not have heads like mushrooms. If you are only partly cleaned out, the doctor will still do the colonoscopy anyway, but the findings may turn out to be rather ambiguous, and you may not have much confidence in the results.

Be sure to ask for a printed copy of your colonoscopy report, because that report should tell whether the doctor thought the clean-out prep was adequate or not.

Also, did you see this post earlier?
http://coloncancersupport.colonclub.com/viewtopic.php?t=51653#p401721
.

Nik Colon

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Nik Colon » Fri Jun 12, 2015 10:37 am

Lydia666 wrote:Bracing for the colonoscopy next week. If I don't eat for 2 days instead of one, would i need less liquid to clear out? Has someone tried?

I am freaking out about the possibility of cancer, i have 2 small children and I can't bear the thought of them growing up without their mom. I will post updates for sure.

Don't worry about the prep, it may not be exactly fun to drink all of that but it really isn't to bad, it doesn't hurt or burn going to the bathroom but u do go alot, it's kinda nice being completely flushed all out :) And don't worry about the colonoscopy as far as how it feels, if you are nervous or the meds don't seem to be working well just ask for a little more and tell them you don't want to start until you feel comfortable.

User avatar
LeonW
Posts: 358
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby LeonW » Fri Jun 12, 2015 3:23 pm

Hi Lydia,

No need to worry. I've had several scopes done and believe there is little to it. As Nick says, it isn't too bad. I'll do it anytime, if believed necessary. That people are worried about it, may be a left over of the old days when colonoscopies were performed without sedation! Professor Daniel Kahneman (Nobel prize for Economics) used the extreme pain these patients experienced during such examinations to analyze how the human brain deals with pain . . (it forgets all instances, except the last one - hence the need for doctors to take examinations easy towards the end . . .)

Because you'll be slightly sedated, you will most probably remember hardly anything. The worst is having to drink the foul tasting liquid. I prefer to prepare two glasses. One large one at room temp with the solution, plus an extra one to wash down the taste. Then I gulp (much quicker than sucking a straw) down the foul one as quickly as I can, and wash the taste away immediately thereafter. Indian tonic water (on the rocks / no gin :oops: ) works best for me.

Don't worry - you'll survive.
Hope you fare well.
And let us know how easy/bad it was :?
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Lydia666 » Thu Jun 18, 2015 2:26 pm

Well, the day has come. Have been on liquids since this morning- it's mow 3:30pm. Will start in about 2 hours to drink the magic potion. I prepared it and smells like bubble gum. Can't wait to get thos whole thing over with and find out what's wrong with me.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

MSJC
Posts: 158
Joined: Sun Jan 26, 2014 10:31 am
Location: Ashland City, Tn.

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby MSJC » Thu Jun 18, 2015 4:17 pm

Hope all goes well for you!
Mike, 49 y/o at Dx 1/14 stage 3c
low rectal cancer 7 nodes positive
2/14 5 weeks chemo/rad. 5-fu
4/14 Lar gallbladder removed,
temp ileostomy
5/14 8 rds Folfox
10/14 reversal surgery
5/15 clean colonoscopy
6/15 clean ct scan

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Lydia666 » Thu Jun 18, 2015 5:43 pm

Had my first glass, this stuff is nasty. I don't how i can have 15 more glasses!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Lydia666 » Thu Jun 18, 2015 6:36 pm

OMG- gross! I had 2 glasses in one hour and i am supposed to have double that. Does it work if i do it slowly like this? 14 glasses to go feels impossible.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Nik Colon

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Nik Colon » Thu Jun 18, 2015 11:16 pm

All I can say is to try to take your mind off it. Do it and don't think. Breath, calm down, drink, repeat

User avatar
LeonW
Posts: 358
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby LeonW » Fri Jun 19, 2015 6:42 am

Use large glasses and set the kitchen timer to ring when it's time for the next one need to go down.
When time is there, don't think and mechanically drink in one long gulp. You'll survive.
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Lydia666 » Fri Jun 19, 2015 2:08 pm

Well i had managed 2 liters which i drank during the entire night. It was awful but even worse was the diagnosis- rectal cancer. I am devastated. I have 2 children, 6 months and 3.5 yrs.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

User avatar
LeonW
Posts: 358
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby LeonW » Fri Jun 19, 2015 2:33 pm

Sorry to hear Lydia, I'd wished the drinks were the worst you needed to go thru.
I have no RC experience, so I'd better leave this to more experienced members of this exclusive club.

Please don't panic at this stage. First get all the facts. You need to know about alternatives before you decide on anything. Also on the decision to be devastated. It may help if you add some details of the diagnosis toyour signature, so others may chime in.

I wish you all the luck you need and hope to see you here a long time.
Leon
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 365 guests