I'm new and concerned I may have Colon Cancer. Can you help?

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Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

I'm new and concerned I may have Colon Cancer. Can you help?

Postby Lydia666 » Sat Jun 06, 2015 6:57 pm

Hi, i know this is from 4 years ago, but i have the same symptoms as you RH - how did it turn out for you?? I am getting a colonoscopy in 2 weeks. Please ease my mind! Thank you.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

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CRguy
Posts: 10146
Joined: Sun Feb 10, 2008 6:00 pm

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby CRguy » Sat Jun 06, 2015 7:07 pm

Welcome lydia666,
the original poster and topic have not been active here for 4 years, so I have started a new topic where you can get some information specific to your own current situation.

Please post more info and I am sure other members will be happy to welcome you on board.
CRguy

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vilca11
Posts: 730
Joined: Fri Feb 14, 2014 11:19 am
Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby vilca11 » Sat Jun 06, 2015 7:14 pm

Lydia, hi.... First of all, welcome to the forum.... Secondly, I would suggest you do not read much for now here, because you have no idea what you have and if you have..... Just to save yourself some nerves.... When you know your Dx and suggested treatment, that is when it could be helpful for you to read it..... Also, it is not clear who you are talking to - who is RH and what symptoms you had? And what about 4 years knowing - know what? Take a deep breath and just hang in until colonoscopy, or explain your concern so that someone can advise you, please....
Best, Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Lydia666 » Sat Jun 06, 2015 8:04 pm

@vilca11
I got my answer- i wanted to hear the follow up from a person on here RH3223, and found it. He/she had the same symptoms i am currently having and it turned out he had a non cancerous polyp and was fine. My symptoms are rectal bleeding, change in bowel movement(fragmented BM), mucus, i go twice in the morning to empty. I've recently given birth and doc is not worried, thinks is hemorroids. Colonoscopy scheduled for june 19th. Worried about the prep. Any tips to help ?
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

MSJC
Posts: 158
Joined: Sun Jan 26, 2014 10:31 am
Location: Ashland City, Tn.

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby MSJC » Sun Jun 07, 2015 12:02 am

If you have had a baby... prep should be a walk in the park for you! It's not fun but survivable, as already stated, don't worry until you know something for sure!
Mike, 49 y/o at Dx 1/14 stage 3c
low rectal cancer 7 nodes positive
2/14 5 weeks chemo/rad. 5-fu
4/14 Lar gallbladder removed,
temp ileostomy
5/14 8 rds Folfox
10/14 reversal surgery
5/15 clean colonoscopy
6/15 clean ct scan

Nik Colon

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Nik Colon » Sun Jun 07, 2015 2:47 am

What prep did they give you? Some are easier to drink than others.

Golytely is the worst imo. If you got that there are others that are easier imo. All will give you diarrhea and you will keep going until it's clear, looks like pee kinda, no brown should be left only yellow like pee.

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Lydia666 » Sun Jun 07, 2015 3:38 pm

I got golytely!!! What else is there?
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

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chrisca
Posts: 242
Joined: Wed Dec 07, 2011 10:35 pm
Location: Portland, Oregon

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby chrisca » Sun Jun 07, 2015 4:49 pm

Your symptoms are almost identical to mine before diagnosis. See my recent post on "how to get a good colonoscopy." Ask the endoscopist those questions. You will especially want the doc to show you the source of the bleeding. Don't take "we can't" for an answer. Between 6 and 15% of colonoscopies are false negative, meaning they don't find cancer that's there. It's very easy for the doc to blame hemorrhoids when there is a tumor present. That's what happened to me, and three more years went by before the tumor was found. By then it required much more radical surgery.

Hemorrhoid bleeding is usually accompanied by pain from the hemorrhoids. It can be very light and present only at the end of the BM or when straining. Cancerous bleeding is more often painless, and looks like a long streak of bright red on the stool. It will happen during an otherwise normal BM and is present on the stool when the BM starts if the tumor is low, meaning it's near the beginning end of it.

If your doctor can't find a tumor but the bleeding persists, ask for a new colonoscopy in six months with a different endoscopist so you have another set of eyes checking you out. Pay for it out of pocket if necessary. But most insurance companies know that there are false negative colonoscopies and that the situation must be monitored because any rectal bleeding is very serious unless it can be absolutely proven to be hemorrhoidal.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 10 years

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby jhocno197 » Sun Jun 07, 2015 9:08 pm

The prep I had was Miralax + Gatorade. While I am in no hurry to drink Gatorade again, it was pretty easy.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby cathy123 » Mon Jun 08, 2015 12:15 am

I used golytely. Not that bad - chill it and use a straw to get it down fast. And just plan to hang out near a bathroom for a few hours. Definitely have someone else in charge of the baby during that time. Hope your dr is right and it is just hemmerhoids!
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

Nik Colon

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Nik Colon » Mon Jun 08, 2015 9:27 am

Lydia666 wrote:I got golytely!!! What else is there?

The best imo is prepopik

Nik Colon

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Nik Colon » Mon Jun 08, 2015 9:33 am

cathy123 wrote:I used golytely. Not that bad - chill it and use a straw to get it down fast. And just plan to hang out near a bathroom for a few hours. Definitely have someone else in charge of the baby during that time. Hope your dr is right and it is just hemmerhoids!

I did it with the water and little flavored packed which didn't help the taste at all! It was like really nasty salt water and I could taste the nasty salt even when holding my breath, after awhile I trained myself not to taste it as much but omg! And I usually don't mind much but that was horrible! Jmo of course.

User avatar
chrisca
Posts: 242
Joined: Wed Dec 07, 2011 10:35 pm
Location: Portland, Oregon

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby chrisca » Thu Jun 11, 2015 2:55 pm

Add Crystal Light to the Golytely (no red or purple coloring, I used the lemon/lime Fit version.) The flavor packet, if supplied, is usually not enough to make it palatable. Start with one of the single-serving Fit packets in the gallon and if not enough, add another one or two. It's OK to combine with the one that comes with the Golytely.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 10 years

User avatar
mstults
Posts: 1327
Joined: Fri Nov 30, 2012 11:23 am

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby mstults » Thu Jun 11, 2015 6:15 pm

I use Golytely and have no problems. I drink 8 oz every 10 min until the bathroom starts and then I stretch it to 15 min. I keep it in refrigerator and when I drink a glass I refill it for the next time. I can swallow a glass all at one time.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.

https://www.facebook.com/michael.stults2/about?ref=home_edit_profile&section=work

Nik Colon

Re: I'm new and concerned I may have Colon Cancer. Can you help?

Postby Nik Colon » Thu Jun 11, 2015 7:07 pm

mstults wrote:I use Golytely and have no problems. I drink 8 oz every 10 min until the bathroom starts and then I stretch it to 15 min. I keep it in refrigerator and when I drink a glass I refill it for the next time. I can swallow a glass all at one time.

You swallow the glass too! :shock: :mrgreen:


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