The time has come for some guidelines...

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peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: The time has come for some guidelines...

Postby peanut_8 » Fri Jun 05, 2015 11:01 pm

Image
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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Maggie Nell
Posts: 1146
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: The time has come for some guidelines...

Postby Maggie Nell » Sat Jun 06, 2015 3:13 am

ditto
Last edited by Maggie Nell on Sat Jun 06, 2015 11:23 pm, edited 1 time in total.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception (ouchies)
Lymph nodes: 0/22
T3 N0 MX
Pending colonoscopy 23 March 2021
Unexpected severe allergic reaction to the prep...big WTF!?
To be rescheduled...

Nik Colon

Re: The time has come for some guidelines...

Postby Nik Colon » Sat Jun 06, 2015 3:58 am

kennytwisted wrote:Or removal of them :shock: maybe a name change is in order I vote for "colon crib" to bad grow ups can't have discussion about anything without someone getting butt hurt

Hey hon, I'm sure you and all who know me would know I would tell you! Love you hon, don't EVER change :)

All against Kenny I am against!

Kenny is one of the funniest and nicest person here!

If you disagree you will have to fight me! Lol :)

Love you Kenny <3

Nik Colon

Re: The time has come for some guidelines...

Postby Nik Colon » Sat Jun 06, 2015 4:07 am

And to add, just because people have different beliefs does not mean they can't get along! People need to be more tolerant and care! Those who don't are the TRUE assholes! Imo

Sorry, had to say that

CR, it's ok if you have to remove this, just wanted to voice my opinion.

Love you all! :)

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: The time has come for some guidelines...

Postby skypup » Sat Jun 06, 2015 8:54 am

What happened to my thread? I give up...

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: The time has come for some guidelines...

Postby peanut_8 » Sat Jun 06, 2015 9:51 am

Skypup, I think if you will re-read the first post by Mydogphoebe in this thread, you will see why we haven't gotten an explanation for the locking of KT's thread, and why we will most likely not receive one in the future. That is my opinion of course. Sorry for the disruption of your thread.
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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tdsamal
Posts: 619
Joined: Tue Dec 29, 2009 12:49 am
Facebook Username: malby.tammy
Location: Salem Oregon

Re: The time has come for some guidelines...

Postby tdsamal » Sat Jun 06, 2015 10:14 am

I don't know what all the fuss is about and I really don't care either. Yes this is America where you are free to say anything that you want. Even if it is offensive to others. I have thick skin and can just close out a topic that is offensive to me but many don't. That's why we have moderators. But this is a cancer forum and should remain a place for people seeking information about just that CANCER. The moderators have a job to do. It's that simple. They don't sit around and say, hey let's lock someone out today and really piss them off. If the content of what is posted is not about cancer then should not be on the forum. That's what Face Book or a PM is for. Yes an occasional off topic post should be OK and has always been. A simply O/T in the subject line tells people and then it is their choice as to whether the reader wants to look or not. I've been here almost 6 years now and always hate it when there is a disdane on the boards. Cancer takes to much away from us already. I need to save my sparring match for my next round of chemo not take it out on the moderators!
Tammy
Dx st IV CC & colon resection 11/09
Way to much to list
Last recurrence December 2017

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Maggie Nell
Posts: 1146
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: The time has come for some guidelines...

Postby Maggie Nell » Sat Jun 06, 2015 11:07 am

Me too, sorry for derailing your thread, Skypup.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception (ouchies)
Lymph nodes: 0/22
T3 N0 MX
Pending colonoscopy 23 March 2021
Unexpected severe allergic reaction to the prep...big WTF!?
To be rescheduled...

User avatar
Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: The time has come for some guidelines...

Postby Maia » Sat Jun 06, 2015 12:50 pm

Maia wrote:
Skypup wrote:I'm a long-time active member here, and I must say that without a clear explanation of why and how this thread got locked, I will probably stop contributing.


I agree with Theresa, that's why I've posted a request for clarification here; I can't take a decision if I don't know all the facts.


Disregard this post of mine; no further clarification is necessary, 24 hours silence gave me the answer.

Regan
Posts: 249
Joined: Sun Mar 02, 2014 11:58 pm

Re: The time has come for some guidelines...

Postby Regan » Sat Jun 06, 2015 1:34 pm

WILL SOMEONE in a moderator position PLEASE PLEASE respond to skypuppy and Maja!!!!!!
We just got Maja back and skypuppy is my rock!

They have asked so professionally and caring for a response......this club is all that keeps me in reality and sane thru my DH journey and Tammylayne........pollo..... Poor raym, Pog, Gwen, Jeanette.... Nester..... In their honor as well. How many thousands need them and this board as I do???

Just a response..... They have given so much...... KT, cheesehead, Cheri, BEV!!!! So many many people need these rocks (and all the ones I've failed to name specifically)

Just a response to their inquiry
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: The time has come for some guidelines...

Postby skypup » Sat Jun 06, 2015 4:37 pm

Mydogphoebe wrote:What conservative groups in the US provide the most funding for cancer research?
Even in forums, one has to be mindful of not biting the hand that is paying for
the search for a cure.

Follow the money.

I don't know why that thread was locked when others that definitely were offensive were not, but one thing I do know is that the mods and admins of this site have no interest other than our, the patients, good at heart. There is no "money" made here, there is only the grace of good people volunteering their time to help us all along. Agree with a decision or not, I 100% reject the idea that anything nefarious was in play.

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CRguy
Posts: 10285
Joined: Sun Feb 10, 2008 6:00 pm

Re: The time has come for some guidelines...

Postby CRguy » Sat Jun 06, 2015 4:59 pm

Skypup wrote:.... There is no "money" made here, there is only the grace of good people volunteering their time to help us all along. Agree with a decision or not, I 100% reject the idea that anything nefarious was in play.

Thanks Skypup,
that was one issue I found personally offensive. Appreciate your support here.

Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: The time has come for some guidelines...

Postby BrownBagger » Sat Jun 06, 2015 5:38 pm

CRguy wrote:
Skypup wrote:.... There is no "money" made here, there is only the grace of good people volunteering their time to help us all along. Agree with a decision or not, I 100% reject the idea that anything nefarious was in play.

Thanks Skypup,
that was one issue I found personally offensive. Appreciate your support here.

Cheers
CR


Correct. Nobody here is making any money or income from the site, at least not to my knowledge. I like to think we're independent of outside pressure. We generate enough of that of our own internally!
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: The time has come for some guidelines...

Postby peanut_8 » Sat Jun 06, 2015 5:41 pm

Sorry for the misunderstanding. I thought the Colon Club could accept charitable contributions. I guess I don't understand the structure of the organization. Apologies if I offended anyone.
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

User avatar
CRguy
Posts: 10285
Joined: Sun Feb 10, 2008 6:00 pm

Re: The time has come for some guidelines...

Postby CRguy » Sat Jun 06, 2015 6:06 pm

I would think charitable donations to the Colon Club proper are OK.
Nobody is "buying" the influence of this forum nor "paying" for censorship...was my point.
It was not your post I found offensive, either.... just FYI !
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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